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  1. #1
    Registered User
    Join Date
    Jun 2004
    Location
    South Carolina
    Posts
    13

    Question ?maybe out of major pain??

    Well ever since I went to my new urologist and he prescribed these medications (Elmiron,Atarax, Neurontin and home instills) I have not had near as much pain or frequency or urgency. :thumbsup: I was not taking Atarax or Neurontin before so one or both have been the key to helping get rid of my pain. Now I can feel low level pain and most of the time that I do it is because of something I ate. I seem to be very sensitive to foods and have to watch my diet like a hawk. Prelief does not do that much for me (or maybe it did and everything would have been much worse had I not taken it).
    Anyway I am now feeling much better with my IC but am tired and/or sleepy. I work parttime and come home and need to take a nap (sometimes of 2+ hours) and am still ready to go to bed around nine!!! I get absoutely nothing accomplished at home which is the same position I was in before except instead of pain I am dealing with side effects of the meds. I am hoping that I will adjust....especially since they do seem to work.
    But no matter.....I feel this was a success because I was going crazy and getting severly depressed having to deal the chronic pain.

  2. #2
    Support Leader Sarojini's Avatar
    Join Date
    Jan 2004
    Location
    North Carolina
    Posts
    6,856


    I'm glad you're feeling less pain.... give your body a chance to deal with the meds, too. Many people become accustomed to them and report not feeling nearly as sleepy. I know Atarax used to completely knock me out, but I got used to it. There have been several other meds that I've become accustomed to as well.. although there are a few that keep me sleepy, too.

    Good luck!!!
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  3. #3
    No longer active mayray518's Avatar
    Join Date
    Apr 2002
    Location
    Rockville, MD
    Posts
    891
    Yeah the chronic pain is hard to handle. Believe me I know that combined with the fact that no one believes how bad it is. Glad you found something to help you!!

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