Latest Blog Article: Pin of the Day - It's Okay To Tell People You're Not Okay And That Your IC Is Flaring
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  1. #1
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    Elmiron is expensive!

    If I recall correctly, it is about $200 CDN for a month's supply at 3 pills/day. I hear that American drug prices are even higher. How much does Elmiron cost you?

    Fortunately I have drug insurance for 90%..whew! People who aren't so fortunate must really have a tough time paying for all their meds.

  2. #2
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    My Elmiron would've cost me $235.59 for a month's supply. Luckily I have insurance & it ended up costing me $20.89. I only took it for a month though because of bleeding problems. -- Karma

  3. #3
    Registered User JAMIEL's Avatar
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    I too am lucky to have insurance that pays the bulk of the cost...I think I am paying $40.00 for a three months supply....

    Jamie

  4. #4
    Guest YankeeCandle224's Avatar
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    Elmiron is VERY expensive. In fact I cant even afford it because with all my other meds my copay every month is 200.00. For the elmiron its another 60 bucks even with insurance. Unreal. My doctor is trying to find a way to get me back on it because even tho I dont have a hydro/cysto til Monday he is convinced its IC. The drug companies, and insurance companies sure screw with us dont they? At least I have United Healthcare which is good with my meds with the exception of the Elmiron, and Medicare as secondary so I pay no copays at the docs offices, just on my meds. 200.00 a month is like 3 weeks worth of groceries for my kids......So, I had to give it up. It's sad. I'm sorry you're having a hard time getting your RX.......you surely are not alone.

    Sandy

  5. #5
    ICN Member jen_dahling's Avatar
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    One of the hardest things for me to see here on the boards is the high cost of meds and how a lot of us are struggeling with drug companies/drs to get what we need. I think my elmiron is what Karma pays. I have a $25 co-pay so it isn't a huge cost for me. I was just denied my vioxx med by my insurance, though. I have to get "reasonable consideration and follow-up care" from my prescribing euro before they will give my pharmacy the ok to fill the Rx again. Grrrrr.
    Jen

    Life is a collaboration and in a collaboration, you have to be willing to admit that you may be wrong. Validation is the thread that holds the key to understanding.

  6. #6
    Registered User SaraJ's Avatar
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    I know I pay about $300.00 dollars in copays for my meds and about $500.00 a month for insurance and that doesn't include office visits - ortho has a program to help people pay for elmiron... I work at an OBGyn and the Ortho rep told me about it. A bottle of elmiron with no insurance runs about $287.00 with no samples available and no generic available until the patten in up!!! (I think that is seven years on meds) I have spontaneous bruising and sores in my nose that bleed any time they want, but me doc doesn't want to take me off - stupid side effects - It seems when you have IC you have a side effect to everything!!

  7. #7
    IC Friend kelly McC's Avatar
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    When I was taking elmiron my co pay was 98.00 dollars for a 30 days supply high I thought... All my other meds together did not costs that much. :yikes:
    Kelly
    To the world you might be one person but to one person you might be the world..
    I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  8. #8
    ICN Member Dixiefireball's Avatar
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    Arrow

    YES Elimron is very high exp if you don't have inc. but don't freak out the drug company that makes elimron will help people who can't afford it to get it your doctor has to fill out a form.
    Or you can check out the low income board for drug companys that helps pay for medicine one is called needed meds.
    there is many site that will help.
    if anyone needs help getting these meds please pm me and i will send you in the right dir. in order to get your elimron this information also goes for other medicines.
    but please know all of these company goes by your income.
    if i can help you please pm me.
    Rhonda
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.





    I have IC, but IC doesn't have me anymore!

  9. #9
    Forum Manager ICNDonna's Avatar
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    Somehow it sticks in my mind the the patent on a new medication is for 17 years! I know the drug companies spend a lot of money developing a new med, but it still seems like the mark-up is pretty high. We don't have any medication coverage so we have to foot the bills for our prescriptions. We do get a "discount" through our HMO, but the discount isn't much.

    We have found that we save a considerable amount by purchasing prescriptions out of Canada, but if you live in Canada, that doesn't really help.

    Hugs,
    Donna
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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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  10. #10
    ICN Member VickiB's Avatar
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    Being self-employed, the only insurance I can afford is catastrophic, with $5000.00 deductable. So I pay for my Elmiron out of my own pocket. $219.00 a month. I wouldn't mind it so much if I felt like it was working, or knew with some degree of certainty it would have a positive affect in the future. I'm beginning to have the nagging feeling that I'm just flushing that money down the toilet!

    Vicki

  11. #11
    Registered User michelleskw's Avatar
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    I agree that Elmiron is expensive.I pay $50, that's not so bad in comparison to what all of you pay. I didn't realize that it didn't work for so many people! I hope I'm not wasting my money as well, but I feel like it may be working... it's hard to tell, I've only been on it a few months.

  12. #12
    Registered User ChrissyH's Avatar
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    I've been paying $330 a month just for Elmiron. Just got a new insurance, so I'm not sure how much it will be now. It's crazy how much this stuff costs, I wish there was a generic.

  13. #13
    Registered User IcyAngel22's Avatar
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    I think my elmiron cost like 27.00 for a month supply. I don't take it anymore because I had an allergic reaction to it. I tried it three times just to make sure well so my doc would be sure. It sucked. I am now sitting on two bottles of the stuff. It is so expensive I don't want to throw it away after reading how much everyone pays for it. Maybe I'll se if my doc can give it to another patient would needs it and can't afford it.

    Kristin
    KP

  14. #14
    ICN Member classics's Avatar
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    My prescription drug plan must be pretty good then. I pay $25.00 for a month's supply. On the receipt it showed the original cost of the Elimiron was $173.15. This was filled at CVS Pharmacy.
    Connie

  15. #15
    ICN Member Peggy Anne's Avatar
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    I now pay $90 a month - before when my doctor was trying to get me to take it but I didnt want to, and I had better insurance, it was $5. I could kick myself for not trying it then. I can afford it but it takes away from other bills and stuff for my kids. I have that same nagging feeling that I am wasting money on something that is not working.

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