07-22-2004, 12:38 PM #1
Just had first Uro appointment!!!
Hey everyone! It's been quite a while since I have been on here. The new forum looks nice! I'll miss the unread messeges link though! So I just hadf my first app. this morning, it went really well! I just saw the PA, but he seemed very knowlegdable about IC, and keeps up with all the new treatments and research on it. He did this test thing, not sure whats its called, but measured how much urine was in my bladder or something like that. And I guess that my bladder isn't emptying very well because of a muscle or something like that, and that's why I probably go so frequently and still feel like I gotta go after I go! So I have my first cystoscopy scheduled for two weeks from today. So I'm excited to finally get that going and get an diagnoses! He also gave me a paper of the diet, which is basically the same as it is on this website. So between my diet for endo and IC it's really hard trying to figure out what to eat, but I'm slowly learning. So just wanted to let you all know what's going on, and that things are pretty good! Hope you all are doing well and having a good summer!!!
07-22-2004, 01:44 PM #2
You sound really upbeat. I'm glad you felt so good about today's appt.Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
07-22-2004, 01:57 PM #3
So glad you will get some answers.Good Luck and hope your feeling better soon.
KellyTo the world you might be one person but to one person you might be the world..
I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
07-22-2004, 02:26 PM #4
It's really nice to see some positive dr. experiences! I'm so happy that you had a good exam! Good luck with your diet and treatments. Keep us posted on your progress.Jen
Life is a collaboration and in a collaboration, you have to be willing to admit that you may be wrong. Validation is the thread that holds the key to understanding.
07-22-2004, 03:53 PM #5
Great I'm so happy you finally saw the doc, and that it was a positive step for you
Best wishes for the cysto!!! :grouphug;****
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
07-22-2004, 03:57 PM #6
sound like things are looking up please keep us updated
RhondaMedicine taken daily or as needed:
1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
2. MS.Cotin 100mg 3x daily
3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
4. Fentanyl 100 mg Change every 48hrs.
5. Gentamicin 80mg install after each rescue treatment
5 Leviquin 500mg self start as needed.
6. Klonopin 1 or 2 daily as needed.
7. Prosed/DS as 1 every 6hrs as needed.
I have IC, but IC doesn't have me anymore!
07-23-2004, 10:45 AM #7
Glad you saw the doc, and you have a positive attitude, which is really great. Keep us posted, hugs Iris.Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.
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