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Thread: curious
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07-07-2004, 11:00 PM #1Registered User
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curious
for those of you who are on/have tried elmiron, did it help? i know it varies a lot, but i'm just curious.
~heather
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07-08-2004, 01:19 AM #2Registered User
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- Apr 2004
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I'm on Elmiron and have been since Dec of 2003. I have no idea whether it's helping because I have so many other problems. I do know that if you try it that it can take up to 6 months to start noticing any difference. I do feel better since aI've been on all the meds. I'm still in so much pain but it would be 10x worse if I stopped them all. I can tell when I miss a dose OUCH! Take care - Chris
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07-08-2004, 01:32 AM #3ICN Member
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- Jul 2003
- Location
- Nova Scotia ,Canada
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- 604
Hi,
I have been on Elmiron for 9 months..I felt good so Uro told me I could cut back .. I did and ended up in a long lasting flare.. I saw my family Dr and he told me to go back to the full dose.. I have and feel good again.. I still get flares but not as often..
I think elmiron has really helped me...And I can eat Strawberries with no problem.. Yahoooooo!!
~~Pam~~God brought me to it, He will bring me through it!!!
Diagnosed 2003
by cysto/hydro
Elmiron took almost a year- made me sick, caused diarrhea
Pyridium -Made me sick
Detrol and Ditropan- caused constipation
Trying DMSO instill- had 5 out of 6
Started Oxytrol Patch- no side affects so far --Jan 2011
stopped using them after 3 months-- skin was getting irritated
Cysto/hydro April 6ht 2011-- on expansion only hold one cup
IBS/ IC
High blood pressure meds and Crestor
Sinequan
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07-08-2004, 01:56 AM #4ICN Member
- Join Date
- May 2001
- Location
- Eastern USA
- Posts
- 5,506
I have been on Elmiron for almost 3 years with no side effects other than feeling normal now most of the time. (And I am back to eating whatever I want....) It doesn't work for everyone - but for those it helps it's a blessing.
Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
*****************************
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
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