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  1. #1
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    Duloxetine/ Cymbalta

    Has anyone had any experience with duloxetine for pain relief? I've been taking it for a month on a very low dose, which is about to be increased.

    I haven't noticed any improvement, but I also haven't noticed any side effects.

    I don't seem to be able to get normal pain meds prescribed.

    Any experience good or bad would be appreciated.

    Many thanks
    Jess
    Last edited by j.mcloughlin; 12-29-2013 at 05:55 AM.

  2. #2
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    Re: Duloxetine (Cymbalta)

    Quote Originally Posted by j.mcloughlin View Post
    Has anyone had any experience with duloxetine for pain relief? I've been taking it for a month on a very low dose, which is about to be increased.

    I haven't noticed any improvement, but I also haven't noticed any side effects.

    I don't seem to be able to get normal pain meds prescribed.

    Any experience good or bad would be appreciated.

    Many thanks
    Jess
    It's also known as Cymbalta --- I haven't taken it. I hope others will answer your question.

    Donna
    Last edited by ICNDonna; 12-30-2013 at 06:36 AM.
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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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  3. #3
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    Re: Duloxetine

    Thank you Donna. I tried to changed the thread title to include cymbalta so hopefully someone will see. I'll also have a look back through the threads looking for cymbalta.

    Thank you very much x

  4. #4
    ICN Member RachelPage's Avatar
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    Re: Duloxetine

    Aside from my TENS machine duloxetine was the only thing my NHS pain relief clinic gave me. I had a horrible time with it so had to come off it, I was on it for a few months and it did nothing for my pain. I spoke to my urologist about this and he couldn't believe that it was prescribed for bladder pain. I've just been prescribed amitrptyline which I'm happier about as I see a number of the people on these boards of benefited from it
    Last edited by ICNDonna; 12-29-2013 at 03:55 PM.

  5. #5
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    Re: Duloxetine

    Quote Originally Posted by j.mcloughlin View Post
    Thank you Donna. I tried to changed the thread title to include cymbalta so hopefully someone will see. I'll also have a look back through the threads looking for cymbalta.

    Thank you very much x
    I fixed it.
    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  6. #6
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    Re: Duloxetine

    Thank you for your reply. That's strange because when my GP suggested duloxetine, I asked about amitryptiline as I knew many were prescribed it for IC. My GP said that duloxetine was much better at treating this type of pain. Well so far I see no result, but the dose needs to be increased.

    I have taken amitryptiline before for depression and it made me feel like a zombie. So that is something to be wary of.

    I am also now taking cimetidine and toviaz (instead of vesicare) prescribed by a nurse specialist so we shall see. My urologist brushed me off on my first consultation I was very lucky that he referred me to this nurse who was much empathetic.

    How did you go about getting a referral to a pain clinic?

    Thanks again Rachel for your reply.

    Thank you very much Donna for changing the thread title!!
    Last edited by j.mcloughlin; 12-29-2013 at 09:30 PM.

  7. #7
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    Re: Duloxetine

    I was prescribed Cymbalta by my Rheumatologist for my fibromyalgia. My Urologist prescribed Elmiron for the IC. Honestly tho, this has been going on for so long, it seems like nothing works anymore. I do take Amitryptiline, but I can't feel the effects of it. I hope you have more luck than I do!
    Also in the state I live in pain specialists and Psychiatrists are the only ones who can write pain meds, so I just saw a Psychiatrist a couple of weeks ago and he's working on a medicine plan that hopefully brings relief. I was referred to him by my Urologist, which they did happily.
    Good luck to you!

  8. #8
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    Re: Duloxetine

    Thank you for your reply. Unfortunately elmiron isn't available in the UK, so we are at the mercy of the unspecific medicines. There seems to be a culture in the uk where if you have back pain they throw every narcotic pain med at you. But chronic pain they suggest paracetamol. I used hot water bottles to the point of burning my skin.. And obviously once I realised what I had done had to stop. Now I have nothing. Only then did any prescribe anything for the pain.

    Fingers crossed we both find relief soon.

    Jess

  9. #9
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    Re: Duloxetine

    Wow, it seems like it would be available everywhere. With all the research being done, people just don't get it! It's so frustrating.
    Good luck to you and I'll pray for comfort for you!
    Candy

  10. #10
    ICN Member RachelPage's Avatar
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    Re: Duloxetine

    My first uro didn't have a clue how to help me so a few months after having uracyst which didn't help he referred me to the pain clinic himself. They didn't really help me though, they kept saying things that hinted this pain was all in my head... I blame my first uro's referral for that though. If I get referred again it'll be by the uro I see now (after two and a half years of no relief I finally got a second opinion) The best thing you can do is make sure you are referred to a urologist that is at least aware of I.C.
    I also meant to add, the dose of amitriptyline for chronic pain is lower than it is for deppression. I've been on it for just under two weeks and the side effects I was having at the beginning have passed. I am on 25mg

  11. #11
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    Re: Duloxetine (cymbalta)

    How do you go about getting a second opinion with the Nhs? Although I have a "diagnosis" from a nurse specialist based on symptoms and medical history, I haven't had a cysto with hydrodistension for a formal diagnosis. In the new year I'm going to contact my university disability office, see whether or not they will except my diagnosis as is.

    If not then I don't know how to go about getting a second opinion or even another appointment with the original uro. He knew about IC he mentioned inflammation of the bladder lining once I started hysterically crying when he suggested I take paracetamol. But referred me to the nurse and said he may do a cysto at a later date.. Maybe I need to speak to the nurse.

    I'm seeing my primary care doctor today to increase the duloxetine from 20mg - 40mg. I will stick with duloxetine until the 60mg recommended dose, see whether it helps. In the mean time I have been compiling academic research on amitriptyline and IC. No doctor can disagree with evidence right?

  12. #12
    ICN Member RachelPage's Avatar
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    Re: Duloxetine (cymbalta)

    I went to my GP and cried and they contacted the uro nurse I was seeing at hospital and it was her that did it. So yeah, your nurse would be the best person to ask. The urologist I saw before mainly dealt with stones so he didn't have a clue what to do... The paracetamol thing is rough but the NHS has to go through stages much like the guidelines posted on this website, they'll suggest self help things first, the problem I had before is my last uro only tried one treatment and didn't bother to do any follow up. My new uro will be reviewing how I'm getting on with treatments and will try other things if I don't respond. I had my hydro done on the 19th of this month and it didn't show anything abnormal still waiting on biopsy results which I will be phoning my GP about. The not having a diagnosis is the hardest thing. My uro doesn't doubt my pain is coming from my bladder but hasn't diagnosed me with I.C, I guess it depends if the biopsy shows chronic inflammation. I'm at uni too and I know how hard it is, they accepted my letter from my GP that just said reoccurring bladder pain. I hope you are able to get a second opinion soon. Yes I'd speak to your nurse about amitriptyline too. If the duloxetine doesn't help I am sure you will be able to change to that without any bother.

  13. #13
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    Re: Duloxetine (cymbalta)

    I would definitely find another Uro, what is the Nhs? It would probably be a good idea to get a good solid diagnosis by having a cystoscope done.
    I just do t understand why you were given Cymbalta instead of Elmiron or something like it. I also take 75mg of Amitryptiline at night, but as I've said before, I don't feel that anything is working for me right now.
    Keep looking until you find the right doctor for you and one who understands IC and is understanding of what you go thru daily. They're hard to find, but there are some out there!
    Good luck to you!

  14. #14
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    Re: Duloxetine (cymbalta)

    Candy the Nhs is the national health service in the uk. Elmiron just isn't readily available in the uk. Only in specific regions and has to be sought by your consultant (or so I read).

    The uro I saw hadn't even read my notes to know that I had already had blood tests to rule out diabetes and what not. When I said I didn't regularly have visible haematuria in my urine he dismissed a cysto until later. I've not even had an ultrasound. I will speak to the nurse, she is very good. I've been on a strict IC diet since August, (I saw the uro on the 25th October)and had been taking cocodamol and anti-inflammatories, and i'd brought uristat online to help with the burn. But discontinued cause they didn't help, and was worried it would make things worse.

    I will definitely speak to the nurse on my next appointment, I may call before. She said I could call at anytime, even if just to shout at her. Lol, in a student nurse and I think she felt responsible for me. Lol.

    Well ladies have a very happy new year. I may cheat and have a glass of bubbly (bicarb at the ready). I'm now off to my appointment I will speak to him about duloxetine.

  15. #15
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    Re: Duloxetine (cymbalta)

    And Rachel good luck with those results, if it's IC at least you definitely know what your dealing with, if not at least you know it's not IC. Have you been checked for pfd?

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