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Thread: Polymyalgia

  1. #1
    ICN Member NJB's Avatar
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    Question Polymyalgia

    I hope it's okay to post this here. I am wondering if anyone here has polymyalgia rheumatica? My mum suffers from it and it is getting really bad. She does not want to take NSAID Steroids because of the awful side effects and potential risks, and I wonder if anyone has any experience of natural remedies or treatments which may help?
    One supplement I have read about is called Serrapeptase.
    If anyone has any info that I could pass along to my mum I would be very grateful. Thank you to anyone who replies.

  2. #2
    Forum Manager ICNDonna's Avatar
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    Sometimes we have to bite the bullet and take medications --- and even the common aspirin and natural remedies have side effects. Some of the anti-inflammatories have less side effects. I have to say that I would encourage her to work with her doctor to find the most effective medications for her specifically --- at the lowest possible dose that will help. I hope she feels better soon.


    Donna
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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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  3. #3
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    My older sister has PMR and did a year of steroids. PRM got better then flared back so she currently on a shorter duration of steroids. It was so bad she couldn't move and my sister doesn't complain much so I know it really limited her ability to get around. Of course while on the steroids she felt so much better. About 10 months into her first year of steroids she started taking quercetin, curcurmin and other natural antiinflammatory supplements and she felt alitttle better. She gained 40 lbs while on the steroids, but she's been able to lose 20 lbs so far and now she's really trying to eat healthy so I know she'll get the other 20#off. It's hard because they don't want your to overdue it with exercise because that can make the PMR flare up. My sister is thinking about joining a YMCA or gym that has a pool.

    Sorry your mom has PMR, but just with any disease your mom will find her way through it.







    Quote Originally Posted by NJB View Post
    I hope it's okay to post this here. I am wondering if anyone here has polymyalgia rheumatica? My mum suffers from it and it is getting really bad. She does not want to take NSAID Steroids because of the awful side effects and potential risks, and I wonder if anyone has any experience of natural remedies or treatments which may help?
    One supplement I have read about is called Serrapeptase.
    If anyone has any info that I could pass along to my mum I would be very grateful. Thank you to anyone who replies.

  4. #4
    ICN Member NJB's Avatar
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    Thanks Donna and Applegal. She is just very scared about taking steroids and I don't think anyone could convince her. So many people seem to gain tons of weight when they take them and she says they suppress the adrenal glands and can lead to osteoporosis, diabetes, digestion problems, reduced vision, weak bones etc.
    She is thinking of trying the Serrapeptase which is marketed as a miracle supplement. It is an enzyme taken from the silk worm. I hope it works. She is in constant pain now and has weird fluid filled lumps appearing on her legs, swollen ankles, swollen fingers and wrists and the cold weather makes it much worse. She is thinking she might have to take early retirement.

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    See my remission thread!

  6. #6
    Forum Manager ICNDonna's Avatar
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    Quote Originally Posted by NJB View Post
    Thanks Donna and Applegal. She is just very scared about taking steroids and I don't think anyone could convince her. So many people seem to gain tons of weight when they take them and she says they suppress the adrenal glands and can lead to osteoporosis, diabetes, digestion problems, reduced vision, weak bones etc.
    She is thinking of trying the Serrapeptase which is marketed as a miracle supplement. It is an enzyme taken from the silk worm. I hope it works. She is in constant pain now and has weird fluid filled lumps appearing on her legs, swollen ankles, swollen fingers and wrists and the cold weather makes it much worse. She is thinking she might have to take early retirement.
    Sometimes it takes really being sick to convince someone about medications. I'm afraid I'm a little leery about "miracle supplements" --- it usually is a sales ploy.

    I know it's tough when someone you love is having medical problems. Your mother is fortunate to have you to care about her.

    Huuuugs,
    Donna
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    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  7. #7
    ICN Member NJB's Avatar
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    Quote Originally Posted by ICNDonna View Post
    Sometimes it takes really being sick to convince someone about medications. I'm afraid I'm a little leery about "miracle supplements" --- it usually is a sales ploy.

    I know it's tough when someone you love is having medical problems. Your mother is fortunate to have you to care about her.

    Huuuugs,
    Donna
    Thanks Donna. that's really nice of you to say. I know....I have to admit that the Serrapeptase does sound 'too good to be true', and you know what they say: if it sounds too good to be true, it usually is. Some of the websites seem credible but others have that definite look of 'pseudo-science' sales ploy, like you say.

    Quote Originally Posted by Briza View Post
    See my remission thread!
    Thanks Briza. where can I find your remission thread?

  8. #8
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    In the I'm in Remission forum.

  9. #9
    ICN Member NJB's Avatar
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    Thanks Briza. I'll check that out. My mum has decided to go ahead and try the Serrapeptase. It can't do any harm to try it. If it doesn't work, at least she gave it a shot!

  10. #10
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    Sorry no experience with it. But I have insight. Inflammation is just that and it can be the body's way of telling us to respond correctly. I came across a few sights that address inflammation. Serrapeptase enzymes and omega 3/Essential Fatty Acids. Fish oil has definitely significantly reduced my joint pain and I look forward to taking them twice a day for management. No aspirin, no NSAIDS. I do walk regularly and will have to committ to that exercise plan even when the winter arrives.

  11. #11
    ICN Member NJB's Avatar
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    That's great news! I'm glad the fish oil worked for you. My mum is actually going to buy fish oil capsules too. They have been proven to be very effective, as your experience shows. I will tell her to get walking too! She said she feels better when she is on the move and doing things, but often feels worse when she sits or lies down. She finds sleeping at night very difficult.

  12. #12
    Forum Manager ICNDonna's Avatar
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    There is the potential for side effects for any medication, even if it's herbal, natural, or over the counter. That's why I always suggest that if anyone is going to take them, they start one at a time, with about a week between additions. Fish oil gave me nasty diarrhea, which stopped when the supplement was stopped (My doctor had suggested the fish oil).

    Good luck --- I think it's great that you are giving your mother some encouragement. That can be so very important.


    Donna
    Have you checked the ICN Shop?
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    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  13. #13
    ICN Member NJB's Avatar
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    Yes, very wise words. Thanks again, Donna. She is starting with the lowest dose of 20,000 units. You can get up to 80,000 but that dose brings much bigger side effects risks. I will let everyone know how she gets on! She just ordered them last night. Not sure when they will arrive.

  14. #14
    ICN Member NJB's Avatar
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    Red face

    Just thought I would post an update. My mum hasn't actually started the Serrapeptase yet but is feeling massively better. Her mobility has greatly improved, her joints are less painful, the swelling has gone down, and the strange lump on the back of her leg has vanished. Want to know why? She stopped drinking coffee! And she is taking Chondroitin and Glucosamine supplements. She started seeing the difference almost immediately after cutting out coffee. I know this sounds too good to be true, but she is amazed, and so am I!! Apparently drinking coffee suppresses the adrenal glands, affecting the amount of steroid hormones they produce. She only learned of this when we were investigating polymyalgia and Serrapeptase. She is going to try the Serrapeptase too and maybe it will help even more. Right now she is feeling great and is able to work for much longer without getting sore and is sleeping way better.
    If only my I.C would improve as easily!! Lol.

  15. #15
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    So pleased to hear that she discovered the coffee/adrenal connection!! Her sleeping will continue to support her overall well being! Surely, your IC will improve. I believe your good news is on its way!

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