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  1. #1
    ICN Member MelissaJ's Avatar
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    Nov 2004
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    Revelstoke
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    Increase in symptoms after getting flu shot?

    Not sure where to post this, but since it is causing my symptoms to flare maybe this is a good place. Has anyone else had their IC flare after getting the flu shot? I got a flu shot for the first time ever and I've noticed my IC symptoms increased quite a bit.
    You must be the change you want to see in the world.
    ~ M.K. Ghandi

  2. #2
    ICN Member nanawaggs's Avatar
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    Nov 2009
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    Southern California
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    HI, Melissa~ I'm so sorry you're not feeling well. I had a flue shot about 3 weeks ago and haven't had any problems. I do feel that I'm in a period of remission though so don't know if that makes a difference.

    Hope you start feeling better soon.
    Blessings,
    Ginger
    Never heard of IC until it was suspected....Never knew so many are suffering from it.
    Praying for a cure.


    11/2007 IC Symptoms began during recovery period of surgery for bladder suspension and hysterectomy, painful urgency/frequency
    8/2009 Suspected IC
    1/2010 Treatment began
    2/2010 Diagnosed PFD, began Physical Therapy
    2/2010 Surgery to remove mesh from bladder suspension
    5/2010 Surgery to repair bladder, vaginal vault and small intestine prolapse
    5/2010 IC officially diagnosed during surgery
    7/2010 Diagnosed with Candida Esophagitis, Gastritis, Diviticulosis, Gallstones
    8/2010 Surgery to remove gallbladder

    Treatments:
    Heparin/Lidocaine/Bicarb/Kenalog Instills
    Macrodantin 100 mg after each instill
    Valium Vaginal Suppositories: Cyclo/diaz/lido, 10/5/62.5 mg
    Pyridium as needed up to 3xday
    Celexa 10mg daily
    Premarin Cream 3xweek
    Aloe Vera
    Prelief
    Dual Action Acid Reducer/Antacid
    Fiber supplement
    Probiotics
    Physical Therapy for PFD
    IC Diet since 8/2009
    Gabapentin, 12/2011....seems to be working great!

    Medications Tried and Discontinued
    Elavil, worked up to 50mg (started 1/2011), caused retention & high blood pressure
    Urelle, caused retention
    Vesicare, caused retention


  3. #3
    ICN Member Mothergoose's Avatar
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    Mar 2008
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    Sorry to hear that you feel bad after the flu shot.

    I don't know if it is true but I have heard that people often feel worst after the 1st flu shot and not after any future ones.

    Hopefully this will be short lived for you, it could be a preservative in the shot, that it is bothering you.

  4. #4
    ICN Member
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    Jul 2001
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    New Carlisle, OH
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    Hi all, I have been in a terrible flare for the last 8 weeks, during which I got a flu shot. I never factored that in but plan on going through my old journals to see if I've ever had a reaction before. Maybe one more thing I add to my "caution" list!
    Jan

  5. #5
    ICN Member IHAVETOGO's Avatar
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    Aug 2005
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    24

    Flu Shot and Increase in Symptoms

    YES! I got the flu shot on Thursday and today, Sunday, I have an IC flare. I haven't had a flare in quite some time and I just don't feel like it's a mere coincidence.

    Quote Originally Posted by MelissaJ View Post
    Not sure where to post this, but since it is causing my symptoms to flare maybe this is a good place. Has anyone else had their IC flare after getting the flu shot? I got a flu shot for the first time ever and I've noticed my IC symptoms increased quite a bit.

    Symptoms began - 7/2005. IC Diagnosis - 11/2005
    Had four years relatively flare-free;
    Flare - 02/2010
    Urethral Sling Surgery - 11/2011
    Vaginal Atrophy - 08/2012
    Flare - 08/2012
    Diagnosed with Global Prolapse - 9/2012
    Flare - 01/2013

    12/31/2010 Began Tamoxifen therapy to reduce high risk of Breast Cancer
    On Lexapro to reduce side effects (specifically, hot flashes) of Tamoxifen

  6. #6
    Forum Manager ICNDonna's Avatar
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    Oregon
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    I get a flu shot every year and it's never been a problem for me other than a sore arm for a few days.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  7. #7
    ICN Member IHAVETOGO's Avatar
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    Aug 2005
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    24
    I just remembered that the same day I got the flu shot, my doctor doubled the dose of my Lexapro (anti-depressant). I am on Tamoxifen and it's supposed to help reduce hot flashes and anxiety.

    My goodness, I Google'd Lexapro and Bladder and there were pages and pages of bladders becoming irritated by Lexapro! Back to the drawing board.

    Symptoms began - 7/2005. IC Diagnosis - 11/2005
    Had four years relatively flare-free;
    Flare - 02/2010
    Urethral Sling Surgery - 11/2011
    Vaginal Atrophy - 08/2012
    Flare - 08/2012
    Diagnosed with Global Prolapse - 9/2012
    Flare - 01/2013

    12/31/2010 Began Tamoxifen therapy to reduce high risk of Breast Cancer
    On Lexapro to reduce side effects (specifically, hot flashes) of Tamoxifen

  8. #8
    ICN Member TexasHoney's Avatar
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    May 2004
    Location
    near Fort Worth
    Posts
    1,854
    I got a flu shot 2 weeks ago and I didn't flare right away but over the last 4 days I've been in a major flare with outrageous burning and frequency. My guess is that my flare was not caused by the shot unless it is a delayed reaction.
    TexasHoney

    Let's keep praying for a cure.
    IC Symptoms began in early 2001
    Divorced : Sept 2002 (Partly due to IC)
    Diagnosed with IC in April 2004
    Most recent injury - Rupurtured Left Achilles Tendon
    Wed Jan 28 2009
    (Ice Storm Accident)
    2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
    Other Injuries
    Broken Left Ankle - July 2004 ( fell off ladder)
    Broken Left Ankle (Again) - May 2005 (car accident)
    Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

    CURRENT MEDS
    Elmiron, Pyridium

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