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Thread: Joplin??

  1. #1
    ICN Member staciesteinbach's Avatar
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    Joplin??

    I'm from the Joplin area but there are no support groups here is anyone else suffering in this area?

  2. #2
    ICN Member Shelby101's Avatar
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    Hi,
    I am from Neosho
    lidocaine, Sodium Bicarbonate instills 2Xweekly
    Prelief
    Estrodial injections 1xmonth
    Valium 10mg at night when needed to relax
    Hydroxyzine 10mg before bedtime

    Medicines I have tried:
    Amytriptiline
    Aloe Vera
    Elimiron



    Diagnosed with IC Dec 2007 by hydro/cysto. TAH/BSO Aug 2007


    I have a wonderful husband of 30 years and 6 children ages 29,27,17,17,15 & 12. Three boys and three girls. Two wonderful daughter-in-laws, 4 grandchildren, two dogs and 1 cat.

  3. #3
    ICN Member staciesteinbach's Avatar
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    Do you know of a support group in the area? I thought I was doing fine for a long time (why I haven't logged on in so long). Now I'm realizing that it's not going to just go away....

  4. #4
    ICN Member RuthAnna88's Avatar
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    I am not super close, but I live in Springfield. There is a support group that meets here the third Monday of every month, but I know it would be a drive. I wish we had a support group in every town in the country!!

  5. #5
    ICN Member staciesteinbach's Avatar
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    If I didn't work until 7 on Mondays I would definitely make that drive!! If I can find people around the area of Joplin, I would be open to forming a support group I think that we can support each other the best

  6. #6
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    I live in Neosho. I would love to get together. Do you have a Uro in Joplin?

  7. #7
    ICN Member staciesteinbach's Avatar
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    I'm in Neosho every week for my job! I do have a uro in Joplin, Dr. Stephen Hoyt. He is pretty good, I really like him. But some of his nurses are not so great. They have been rude in the past. But he is the one that finally did something about my IC rather than just brushing it off.
    IC 2011-dealing with symptoms since 2010
    Fibromyalgia 2012
    Chronic Fatigue 2012
    Asthma-since I was 3
    Allergies since forever
    Major Depressive Disorder-2007
    Anxiety-2007
    Obsessive Compulsive Disorder-2007
    Possible IBS as well, they say yes then no then yes.

    I take: Effexor 75 mg (3x/daily), Zyrtec (daily), Gabapentin 100 mg (3x/day), Elmiron 100 mg (3x/day), Baclofen 10 mg (3x/day), Tramadol (as needed), Miralax (as needed), Senna-Plus (as needed), Hydroxazine (daily), Hyoscamine (as needed), Orthocyclen (daily), Hyophen (as needed), Pyridium (as needed), Ambian (as needed), Advair (2x/day), Proventil (as needed), Albuterol (as needed)

    Failed: Cymbalta, Lyrica, Celexa, Prozac, Zoloft

  8. #8
    ICN Member
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    What did your uro do for you? I was diagnosed in 07 at UMKC and have had problems since. I wish I would go into a remission or something. My uro in Springfield just did a hydrodistention and I am feeling better.

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