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Thread: Purchasing lo-fric catheters ?
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03-28-2012, 10:11 AM #1ICN Member
- Join Date
- Oct 2011
- Posts
- 17
Purchasing lo-fric catheters ?
Does anyone know where I can purchase lo-fric catheters? I can't find them in the ICN Shop. Thanks!
DIAGNOSES:
* Interstitial cystitis - developed this immediately after hysterectomy on 21/09/2010
I do not have flares. I have been in horrible pain 24/7 since I developed IC.
* Vulvar Vestibulitis - came along with the IC
* Depression
* Chiari 1 Malformation
Nothing has helped yet..
PAST MEDS/SUPPS:
* Tramadol - stopped working for pain
* Morphine - had to stop because of extreme constipation, unresponsive to laxatives.
* MSM - 2 months
* Glucosamine - 2 months
* Endep (Elavil) - stopped due to extreme fatigue/urge to sleep 24/7
* Periactin - 1 month - similar to Hydroxyzine, which is not available in Australia (the pharmacist told me).
* Nizoral - 2 months
* Nilstat - 2 months
* Aloe Vera Juice 98.9% pure inner gel - 1 month
* Chinese herbs & accupuncture - 3 months
* Bladder Q - 3 months
* IC diet
* Juice fast
* Alkaline diet
* Alkalising supplements & drops
* Barleygrass, wheatgrass,
* Prebiotic & probiotic supplements
* fish oil
* evening primrose oil
* D-Mannose - 1.5 months
...and more I can't remember.
CURRENT MEDS/SUPPS:
* OxycontinSR 20mg 3xdaily - since Jan 2011
* Osmolax - laxative - 6 scoops per day
* Amitriptiline - tricyclic antidepressant, has reduced 50% of Vulvar Vestibulitis pain. IC pain-no response. I want to come off this because I have gained 5kg (12 pounds) and counting
* Elmiron 400mgxdaily - since 27th May 2011 - It's not working
* colostrum - 9 pills per day since August 2011
* spirulina
* marshmallow root
* comfrey
* cat's claw
* slippery elm
...you can't say I haven't tried.
SOON TO BE TRYING:
* Bladder instills: heparin, lidocaine, sodium bicarbonate. (I'm scared)
* Cyclosporine (maybe)
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03-29-2012, 07:21 AM #2ICN Member
- Join Date
- Jan 2003
- Location
- Oklahoma
- Posts
- 516
info.lofric@astratech.com This is the email address for info on purchasing these catheters. I'm sure they can help you for your area. I know you need a script for them from your doc. I used them a few years ago and my doc had a rep that came to his office and I got mine that way.
Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
_____________________________
DX: IC - November 2002 after hysterectomy
Interstim implanted March 2006 - died May 2011
Interstim replacement June 2011
Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
Docs: Pain management doc, urologist, family practice
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03-29-2012, 12:05 PM #3ICN Member
- Join Date
- Oct 2011
- Posts
- 17
Thanks for that! I'm in Australia so I've emailed the Australian site. I didn't realise I needed a prescription, that must be why I can't find them in the shops anywhere.
Originally Posted by momw/ic
DIAGNOSES:
* Interstitial cystitis - developed this immediately after hysterectomy on 21/09/2010
I do not have flares. I have been in horrible pain 24/7 since I developed IC.
* Vulvar Vestibulitis - came along with the IC
* Depression
* Chiari 1 Malformation
Nothing has helped yet..
PAST MEDS/SUPPS:
* Tramadol - stopped working for pain
* Morphine - had to stop because of extreme constipation, unresponsive to laxatives.
* MSM - 2 months
* Glucosamine - 2 months
* Endep (Elavil) - stopped due to extreme fatigue/urge to sleep 24/7
* Periactin - 1 month - similar to Hydroxyzine, which is not available in Australia (the pharmacist told me).
* Nizoral - 2 months
* Nilstat - 2 months
* Aloe Vera Juice 98.9% pure inner gel - 1 month
* Chinese herbs & accupuncture - 3 months
* Bladder Q - 3 months
* IC diet
* Juice fast
* Alkaline diet
* Alkalising supplements & drops
* Barleygrass, wheatgrass,
* Prebiotic & probiotic supplements
* fish oil
* evening primrose oil
* D-Mannose - 1.5 months
...and more I can't remember.
CURRENT MEDS/SUPPS:
* OxycontinSR 20mg 3xdaily - since Jan 2011
* Osmolax - laxative - 6 scoops per day
* Amitriptiline - tricyclic antidepressant, has reduced 50% of Vulvar Vestibulitis pain. IC pain-no response. I want to come off this because I have gained 5kg (12 pounds) and counting
* Elmiron 400mgxdaily - since 27th May 2011 - It's not working
* colostrum - 9 pills per day since August 2011
* spirulina
* marshmallow root
* comfrey
* cat's claw
* slippery elm
...you can't say I haven't tried.
SOON TO BE TRYING:
* Bladder instills: heparin, lidocaine, sodium bicarbonate. (I'm scared)
* Cyclosporine (maybe)
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03-29-2012, 12:30 PM #4ICN President
- Join Date
- Mar 2000
- Posts
- 3,220
Exactly! If we could carry them, we would! - Jill
Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Diana Brady CNC on alternative medicines. http://www.icnsales.com/icn-personal-coaching/
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