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03-15-2012, 08:29 AM #1ICN Member
- Join Date
- Feb 2012
- Location
- Cocoa, Florida
- Posts
- 90
Anyone know of te best Drs to see for IC in Florida mostly brevard county area?
Does anyone know of the best drs (Gyno and urologist) to see for treating IC in or around brevard county Florida? I just feel like the ones I have now dont help me as much as they could.
Last edited by Sweetpea85; 03-15-2012 at 08:34 AM.
~Michelle~
I can do ALL things through Christ who gives me Strength! Philippians 4:13 (He never gives us more then we can handle, even though it feels like we can't handle it He gives us continued strength to keep going.)
Short view of my story:
Trying to learn as much as I can. I'm 27 and married for 5 years and have Been trying for children for 4 years. Have never had health issues or infections before all this. I was diagnosed with a puitary tumor (non cancerous) 2 years ago found out by high prolactin levels and MRI. I took dostinex to shrink the puitary tumor for a little over 6 months it made the tumor smaller but didnt work with my body and caused alot of pain so I stopped that. Then last year in march 2011 I was diagnosed with a large cyst on my right ovary and had the cyst removed through laparoscopic surgery. And ever since then I've had these painful symptoms of infection, acidic burning pain, bladder spasms, frequent urination then I had a cystoscopy with hydrodistension and now newly diagnosed with IC Feb 1 2012 Also now diagnosed with Pelvic Floor Dysfunction. And currently in Physical therapy for that.
What im trying:
Elmiron 100mg 3 times a day
Vesicare 1 a day
Acidophilus pills 2 times a day
baking soda baths
IC diet
Prelief when needed
Muscle relaxer once a day
What Ive tried and no longer on or didnt work for me:
Reclipsen birth control for yeast infections... it helped that go away but caused me to get ovarian cysts.
Estrace for vaginal dryness didnt work for me caused me to be in pain.
Havent tried or been disgnosed with anything else yet. Still in waiting process of healing. It seems when my stress levels are down and I follow the diet very well it helps me alot. Im taking things one day at a time and trying my best.
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03-16-2012, 09:23 AM #2ICN Staff
- Join Date
- Jan 2002
- Location
- Memphis, TN
- Posts
- 10,858
I am sending you the link to the ICN FL professional list not knowing if you have looked here or not.
http://www.ic-network.com/md/listings/Florida.htmlSharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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03-16-2012, 11:40 AM #3ICN Member
- Join Date
- Feb 2012
- Location
- Cocoa, Florida
- Posts
- 90
OMYGOSH! Thank you so so much! I had no idea this was out there. So this is a list of support groups and drs in my area that know all about IC?
Originally Posted by SharonA
~Michelle~
I can do ALL things through Christ who gives me Strength! Philippians 4:13 (He never gives us more then we can handle, even though it feels like we can't handle it He gives us continued strength to keep going.)
Short view of my story:
Trying to learn as much as I can. I'm 27 and married for 5 years and have Been trying for children for 4 years. Have never had health issues or infections before all this. I was diagnosed with a puitary tumor (non cancerous) 2 years ago found out by high prolactin levels and MRI. I took dostinex to shrink the puitary tumor for a little over 6 months it made the tumor smaller but didnt work with my body and caused alot of pain so I stopped that. Then last year in march 2011 I was diagnosed with a large cyst on my right ovary and had the cyst removed through laparoscopic surgery. And ever since then I've had these painful symptoms of infection, acidic burning pain, bladder spasms, frequent urination then I had a cystoscopy with hydrodistension and now newly diagnosed with IC Feb 1 2012 Also now diagnosed with Pelvic Floor Dysfunction. And currently in Physical therapy for that.
What im trying:
Elmiron 100mg 3 times a day
Vesicare 1 a day
Acidophilus pills 2 times a day
baking soda baths
IC diet
Prelief when needed
Muscle relaxer once a day
What Ive tried and no longer on or didnt work for me:
Reclipsen birth control for yeast infections... it helped that go away but caused me to get ovarian cysts.
Estrace for vaginal dryness didnt work for me caused me to be in pain.
Havent tried or been disgnosed with anything else yet. Still in waiting process of healing. It seems when my stress levels are down and I follow the diet very well it helps me alot. Im taking things one day at a time and trying my best.
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