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Thread: Ugh. Can't even believe this.
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11-29-2011, 04:03 PM #1Support Leader
- Join Date
- Dec 2003
- Location
- California
- Posts
- 8,281
Ugh. Can't even believe this.
I can't believe I'm having hassles with getting 2 five minute restroom breaks at work. I've worked at this job for 4 months now. I'm so frustrated we're STILL having to talk about the "schedule" and one of the staff members who is supposed to cover for me is so @#$#%^ rude about it! And insultingly, she keeps telling me she "understands" because her "mom had IC and it was terrible", right after she says & does rude things.
Decided today I'm out of patience and reported today's harassment to our supervisor and the union. I hope they can get some resolution on this. Thank God I have a union to appeal to for help.
My supervisor has been very complimentary of my work, and her supervisors and every consultant we've had visiting us has said I'm doing a great job, so hopefully that will count more than this frustration!!!
Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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This week's favorite one-liner:
"Just remember, if the world didn't suck, we'd all fall off. ~Author Unknown
"
New second favorite:
Please, Lord, let me prove that winning the lottery won't spoil me.
- Unknown
Adding a third because I'm just so darn easily amused...
"Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup.
- Bruce Graham"
Current treatments:
-IC diet
-Elavil 30mg at night
-Ditropan 5mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills every morning and night
-Pyridium if needed, usually once a week or so
-1 Vicodin at bedtime,
-Flexeril 10mg at bedtime
-Dye Free Benadryl for allergies occasionally
-Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
-Managing stress
-Fur therapy: Hugging the cat!
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11-29-2011, 04:06 PM #2Support Leader
- Join Date
- Jun 2002
- Location
- Iowa
- Posts
- 3,768
Ugh is right. I am glad you have someone you can go to. Hopefully this will get resolved soon for you.
Jolene
"Life is what happens when you are making other plans" John Lennon
IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html
Information for Patients can be found here.
http://www.ic-network.com/patientlinks.html
Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]
Newbie Angel...I will be happy to answer any questions or just listen. Email me at joleneb2@yahoo.com
"IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."
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11-29-2011, 04:07 PM #3ICN Member
- Join Date
- Dec 2004
- Posts
- 6,363
I'm sorry this is still going on and hope there's a resolution soon. What creeps.
In remission since Aug 2009!
New to IC? read this--IC Treatment and Diagnostic Guidelines--American Urological Association
http://interstitial-cystitis-diet.bl...nosis-and.html *** http://www.auanet.org/content/guidel...ent_ic-bps.pdf
What helped me get to and stay in remission? stress reduction, diet, time, meditation, stress reduction, stress reduction, stress reduction!--I no longer take medications for IC, PFD,VV, anxiety, or depression. Making career and lifestyle changes to reduce stress and learning techniques to manage anxiety set the stage for my bladder to heal.
My history: No history of bladder issues***Onset of IC and VV sxs Nov 2003***Diagnosed Nov 2004 based on symptoms and hydro/biopsy results***Cysto-Hydro did not give therapeutic relief, I had complications and long recovery
***Hunner's Ulcers found and removed during hydro***Symptoms: the usual~pain, burning, spasms, frequency, urgency, nocturia, lower back and upper thigh pain, very bloated "IC Belly"
Treatments that helped my IC,VV,& PFD symptoms: pyridium, elavil, tylenol 3, ibuprofen, lidocaine gel and patches, cold packs, heating pad, diet, lots of water
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11-29-2011, 05:52 PM #4Support Leader
- Join Date
- Mar 2000
- Location
- Clarkston, Michigan
- Posts
- 3,346
I know very few people with as much patience as you, Kadi............I am glad you have someone on your side to help pave the way to resolution......
sending you hugs............Hugs, Julie B
Do you need help figuring out the IC Diet? I also do phone, Skype, or Facetime consultations through the ICN. Learn more here...
Join the IC Diet Facebook Group!
www.ic-diet.com
Free IC Diet Booklet: What Can I Eat?
] and: 
and from Amazon.com 
Double the value of your purchase! Now you can support these message boards by buying the Confident Choices books from the ICN Store: Confident Choices, Customizing the Interstitial Cystitis Diet and Confident Choices: A Cookbook for Interstitial Cystitis and Overactive Bladder
*Let's Connect!*
Blog: www.interstitial-cystitis-diet.blogspot.com
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Julie Beyer, MA, RD
Dietitian and Author
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11-30-2011, 04:52 AM #5ICN Member
- Join Date
- Feb 2007
- Location
- I live in Chicago IL
- Posts
- 2,400
wow, people can be such Jerks. It is unfortunate, but our society( the healthy ones) does not accept chronically ILL people and are not empathetic nor understanding.It is really sad, but sometimes it takes a rude person like that to experience what your going though to be able to actually understand it. Keep your chin up and do not waste time feeling upset over people like that, you cannot change them anyhow.
Jen
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