11-02-2011, 09:12 AM #1
Need recommendations for medical professionals in Washington State
I live in Washington state, and have Interstitial Cystitis and Pelvic Floor Dysfunction. I also appear to have Pudendal Neuralgia (I diagnosed it on my own and haven't undergone tests to confirm it, but I do have a physical therapist with pudendal neuralgia experience, and she also strongly believes I'm a classic case of PN).
I'm searching for medical professionals to help me, but am at a loss as to who to go to, or even what kind of medical professionals I need to seek out. I live in western Washington state, and desperately need recommendations for my area. I feel completely and utterly lost and alone in this.
If you live in Washington and can give me advice, please, please do.
I believe I need to potentially find:
* Anyone with experience with my conditions
My physical therapist is a wonderful woman named Claudette Wheeler, and she works in the Poulsbo branch of the Kitsap Physical Therapy offices. She has experience treating pudendal neuralgia and is FABULOUS at what she does. So if you're in the area and need similar help, contact her!
11-02-2011, 04:07 PM #2
If you scroll to the top of this page and click on "Professionals" you may find someone in Washington who is near you. Have you talked with your primary care doc about specialists? I have found that to work very well for me.
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
11-02-2011, 05:06 PM #3
I wish I could help. I was living in washington. That is where I grew up. I was seeing a great urologist back in 2006. But it appears he has finally retired.. He was very old and had already once come back from retirement. I wish you luck. Try looking into going to the UW they have great urologists over there I have also seen one there but can not remember his name.
I wish you luck I know how hard finding the right doctor can be as I suffer from many different health issues also
Goodluck and hope you find the right doctor soon.
With all the pain in the world comes love and hope.. For someday they will find the cures for all the pain we suffer and just take it all away and we can again be pain free and enjoy life.. and remember those who suffer the same pains and sorrows are usually the ones with the most understanding hearts
Hugs and Loves
Multiple health issues.. IC , Type 2 diabetic, Knee problems (7 surgeries), Fibromyalgia, Cystoscope with botox injections done on 11/17/11, Hystorectomy in 2005, Asthma, Migraines, High BP, High colestoral, pseudotumor cerebri and Depression..
01-07-2012, 12:48 PM #4
Esmerelda, Would she help diagnose PFD? We don't really have anyone here in thetri-cities that deals with IC stuffsymptoms when in a flare:
I feel everything in my urethra but I know its really my bladder. Pressure, stinging, urgency,tingling feeling thats hard to describe.
*I have a fibroid on my uterus near my bladder.
100mg Amitripyline ( I have seriously gained almost 50lbs on this drug but I feel it works)
Flexoril 10mg (doesn't work)
Hydrocodone 5/325 PRN
Cetalopram 40mg *severe anxiety over flare
Physical therapy hasnt really helped but I love her! I've learned so much! She states that my muscles around
My urethra are very tight.
currently seeing a Gyn in my town and a Uro in Seattle (4 hrs away)
I have had lots of long term remissions. Currently been struggling with good & bad days since Jan 2012
find me on Facebook! Brandy Schildknecht Covington
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