Results 1 to 4 of 4
  1. #1
    ICN Member Esmerelda's Avatar
    Join Date
    Sep 2010
    Posts
    12

    Thumbs down Need recommendations for medical professionals in Washington State

    I live in Washington state, and have Interstitial Cystitis and Pelvic Floor Dysfunction. I also appear to have Pudendal Neuralgia (I diagnosed it on my own and haven't undergone tests to confirm it, but I do have a physical therapist with pudendal neuralgia experience, and she also strongly believes I'm a classic case of PN).

    I'm searching for medical professionals to help me, but am at a loss as to who to go to, or even what kind of medical professionals I need to seek out. I live in western Washington state, and desperately need recommendations for my area. I feel completely and utterly lost and alone in this.

    If you live in Washington and can give me advice, please, please do.

    I believe I need to potentially find:
    * Neurologists
    * Urologists
    * Urogynecologists
    * Rheumatologists
    * Anyone with experience with my conditions

    P.S.
    My physical therapist is a wonderful woman named Claudette Wheeler, and she works in the Poulsbo branch of the Kitsap Physical Therapy offices. She has experience treating pudendal neuralgia and is FABULOUS at what she does. So if you're in the area and need similar help, contact her!

  2. #2
    Forum Manager ICNDonna's Avatar
    Join Date
    Mar 2000
    Location
    Oregon
    Posts
    32,561
    If you scroll to the top of this page and click on "Professionals" you may find someone in Washington who is near you. Have you talked with your primary care doc about specialists? I have found that to work very well for me.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  3. #3
    ICN Member mylilegirls2's Avatar
    Join Date
    Aug 2006
    Location
    Fallon, NV
    Posts
    148

    Washington

    I wish I could help. I was living in washington. That is where I grew up. I was seeing a great urologist back in 2006. But it appears he has finally retired.. He was very old and had already once come back from retirement. I wish you luck. Try looking into going to the UW they have great urologists over there I have also seen one there but can not remember his name.
    I wish you luck I know how hard finding the right doctor can be as I suffer from many different health issues also
    Goodluck and hope you find the right doctor soon.
    Melinda


    With all the pain in the world comes love and hope.. For someday they will find the cures for all the pain we suffer and just take it all away and we can again be pain free and enjoy life.. and remember those who suffer the same pains and sorrows are usually the ones with the most understanding hearts
    Hugs and Loves
    Melinda


    Multiple health issues.. IC , Type 2 diabetic, Knee problems (7 surgeries), Fibromyalgia, Cystoscope with botox injections done on 11/17/11, Hystorectomy in 2005, Asthma, Migraines, High BP, High colestoral, pseudotumor cerebri and Depression..

  4. #4
    ICN Member bjcov's Avatar
    Join Date
    Nov 2007
    Location
    Benton City, WA
    Posts
    783
    Esmerelda, Would she help diagnose PFD? We don't really have anyone here in thetri-cities that deals with IC stuff
    symptoms when in a flare:

    I feel everything in my urethra but I know its really my bladder. Pressure, stinging, urgency,tingling feeling thats hard to describe.
    *I have a fibroid on my uterus near my bladder.

    Medication
    100mg Amitripyline ( I have seriously gained almost 50lbs on this drug but I feel it works)
    Flexoril 10mg (doesn't work)
    Hydrocodone 5/325 PRN
    Cetalopram 40mg *severe anxiety over flare

    Physical therapy hasnt really helped but I love her! I've learned so much! She states that my muscles around
    My urethra are very tight.

    currently seeing a Gyn in my town and a Uro in Seattle (4 hrs away)

    I have had lots of long term remissions. Currently been struggling with good & bad days since Jan 2012



    find me on Facebook! Brandy Schildknecht Covington

Thread Information

Users Browsing this Thread

There are currently 1 users browsing this thread. (0 members and 1 guests)

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •