Thread: Fear of the Unknown
09-21-2011, 07:38 AM #1
- Join Date
- Mar 2011
Fear of the Unknown
Hi All, My husband and I are thinking about bringing a child into the world.....the only thing stopping us at this juncture is my IC. I was diagnosed this past March and have done pretty well controlling my symptoms by following the IC diet VERY strictly and taking Cystoprotek. Oh, and I completely avoid intercourse b/c I am terrified of an infection or a flare. This all makes having a baby nearly impossible and very terrifying! How does your body and bladder handle all of the intercourse it takes to make a baby? I guess the joy of becoming a possible parent needs to outweigh the fear of a flare or infection. I will be darned if I'm going to let my IC get in the way of my life long dream of becoming a mom. I don't even know where to start. Does anyone else have these same fears? If so, do you have any tips on how to handle them? I believe my last flare was due to intercourse.....which of course doesn't help. I don't want my IC to win this battle! The fear of the unknown is killing me. Any suggestions are welcome. Thanks for reading. I hope you all are well!
09-28-2011, 05:03 AM #2
- Join Date
- Aug 2011
- Oahu, Hawaii
Love my children!
Iím not to sure how bad your IC is but for me. I usually get 1 really bad flare every month, other than that I am pretty fine. Also sex is fine for me, but if I get an orgasam I usually flare. I also wanted to tell you that when I was pregnant I did not get my usual monthly flare, I think I only had 1 or 2 flares during the ENTIRE pregnancy. I do feel bad for my kids when I am on the toilet for about 3 days straight alot of times they are keeping me company in the bathroom. Sometimes I stay under the blanket too cuddled up with them. The only thing is I really depend on my husband during these times. He is a great support.
09-29-2011, 02:09 AM #3
- Join Date
- Dec 2010
- Athens Alabama
you dont say what treatments your uro has you on.<center>
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09-29-2011, 03:17 AM #4
I know we've had members who have babies --- some have reported remission throughout pregnancy and some have had difficult pregnancies --- but I've never seen a post by anyone who regretted it after they have their little ones.
My children were born before my IC --- my first pregnancy was awful --- the other two were actually a pleasant experience.
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
10-02-2011, 07:35 AM #5
- Join Date
- Mar 2011
Thanks for the Input!
I am trying to get it in my head that some people have a wonderful experience with IC and pregnancy....and I could be one of those lucky people Right now I am just sticking strictly to the IC diet (it literally gave me my life back) and I take Cystoprotek. I was given a script for Elmiron and Elivil when I was diagnosed, but I wanted to try and do this without the use of those meds. So far I have done alright. I feel like I'm back to 80% of my old self. I feel like most of the damage that remains is psychological. I am afraid to stop taking the Cystoprotek while trying to get pregnant (because it could REALLY be helping me). I guess that all these fears just come with the territory. I am also on B.C. which I'm not sure if that is helpful to IC or I will actually do better off of it. I am going to make an apt with my URO/GYNO and I am hoping he can offer me some direction, because right now I just feel really scared! Not so much of the pregnancy part....but all of the intercourse that it will take to get to that point. I fear a UTI or a flare up from all of the intercourse. That is the one area of my life that I haven't gotten back to where I was before just yet
10-03-2011, 03:04 PM #6
I was in remission during my entire pregnancy and ive only had a few minor flare ups since he was born. Kaleb will be a year old in a few weeks! Good luck to you!Meds: Percocet PRN; Pyridium PRN. First symptoms Dec 2005. Diagnosed in March 2006.
I am the proud mom of a two year old boy! I was lucky enough to be in remission my entire pregnancy. If you have any questions regarding my pregancy, delivery, breastfeeding, or pumping, feel free to contact me!
Im on Facebook! Just tell me you are from the ICN. Look me up under Kim Wayne.
I love working as a CNA in a nursing home. Started school in August part time. Going for my LPN!!!!
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