Thread: Ic and RA taking Remicade
09-02-2011, 01:12 PM #1
- Join Date
- May 2011
Ic and RA taking Remicade
I have had Ic for overr 20 years and the last 10 it has been pretty much okay, then I hit menopause and needed added vaginal estrogen and that hleped. I have been on methotrexate and enbrel for 11 years for my Rheumaoitd arthritis, it has stopped working the enbrel that is, so dr switched me to Remicade, I could feel it bothering my bladder as I had the iv infusion for over 3 hours. On day three after it by the worst flare I have ever had. I can not say for sure it was the remicade but becasue one of the side effects can be bladder infections I assumed it was from that.
The dr disagrees.
Has anyone else used remicade while having IC?
10-19-2011, 05:13 PM #2
Not remicade but I'm on Plaquenil for inflammatory arthritis. Not sure if it's what's irritating my IC or just stress. So hard to tell!(formerly DonnaRenee1)
Diagnoses: IC, fibromyalgia, inflammatory arthritis, connective tissue disease, reynaud's, APS, (the lupus anticoagulant, also known as "sticky blood syndrome")
Meds: low molecular weight heparins, synthroid, methadone for pain, tizanidine, cymbalta, pyridium plus, urelle, phenergan for nausea, ambien, lisinopril, norvasc, plaqenuil for arthritis, and over the counter Prelief
Treatments: DMSO, occasional hydrodistentions, hot baths, strategically placed heating pads and ice packs, TENS unit, and everything from pity parties to prayer.
I have lots of support from my family. My husband and my parents are amazing! I have a wonderful daughter who also has IC, and she has given me 2 precious granddaughters. They are my heart and soul! Thank you God for my family!
01-02-2013, 07:29 AM #3
- Join Date
- Oct 2005
I'm on Remicade for Ulcerative Colitis. My bladder has never been great (since diagnosis) but I have not noticed mine getting worse with Remicade. I've had 4 treatments now. So sorry this is happening to you!Conditions:
IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10 ; Ulcerative Colitis 4/12
Elmiron 3x day
Trazadone at bedtime
Tramadol as needed for pain
Monthly B-12 injections
Continuous Birth Control (even though I had a hyst, to control cysts)
heating pad, hot epsom salt baths, strict IC diet
Interstim implant 9/11
Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year
Failed Bladder Treatments
Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretching
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