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  1. #1
    ICN Member
    Join Date
    Oct 2005
    Posts
    121

    Cysto & Kenalog Injection

    I went to a new specialist (at the U of MN) and they want to do a cysto with an injection of Kenalog (a steroid), Lidocaine and an antibiotic.

    I've never heard of injections in the bladder other than botox. Has anyone else had this? I've searched the board and didn't find much.

    I'm scheduled for this procedure Sept. 13.

    My last and only other cysto was in May. They did a hydrodistension and a urethra dilation - and I suffered for two months afterward. My bladder went into full retention immediately after the cysto, and then again a week later - for 5 whole days. I mention this all to let you know how unexcited I am at the thought of another cysto again so soon.

    Please let me know if you've heard of this type of injection. Thanks!
    Conditions:
    IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10 ; Ulcerative Colitis 4/12

    Medications
    Elmiron 3x day
    Trazadone at bedtime
    Tramadol as needed for pain
    Monthly B-12 injections
    Continuous Birth Control (even though I had a hyst, to control cysts)
    heating pad, hot epsom salt baths, strict IC diet
    Interstim implant 9/11
    Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year

    Failed Bladder Treatments
    Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretching

  2. #2
    Forum Manager ICNDonna's Avatar
    Join Date
    Mar 2000
    Location
    Oregon
    Posts
    35,396
    I've heard of all of those things being instilled, but not injected into the tissue.


    Donna
    Have you checked the ICN Shop?
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    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    .....My Meggie.....

  3. #3
    ICN Member nanawaggs's Avatar
    Join Date
    Nov 2009
    Location
    Southern California
    Posts
    1,068
    Kathi, like Donna said about those meds being instilled in the bladder, I'm one who gets those instillations. I did read somewhere about Kenalog injections intramuscularly, but I've not heard of them in the bladder either. Maybe you can call you doctor to find out. I wouldn't think a cysto alone would be as painful as when you had the hydro but have you asked why your doctor wants another one so soon?

    Take care and may all go well. Please keep us posted.
    Never heard of IC until it was suspected....Never knew so many are suffering from it.
    Praying for a cure.


    11/2007 IC Symptoms began during recovery period of surgery for bladder suspension and hysterectomy, painful urgency/frequency
    8/2009 Suspected IC
    1/2010 Treatment began
    2/2010 Diagnosed PFD, began Physical Therapy
    2/2010 Surgery to remove mesh from bladder suspension
    5/2010 Surgery to repair bladder, vaginal vault and small intestine prolapse
    5/2010 IC officially diagnosed during surgery
    7/2010 Diagnosed with Candida Esophagitis, Gastritis, Diviticulosis, Gallstones
    8/2010 Surgery to remove gallbladder

    Treatments:
    Heparin/Lidocaine/Bicarb/Kenalog Instills
    Macrodantin 100 mg after each instill
    Valium Vaginal Suppositories: Cyclo/diaz/lido, 10/5/62.5 mg
    Pyridium as needed up to 3xday
    Celexa 10mg daily
    Premarin Cream 3xweek
    Aloe Vera
    Prelief
    Dual Action Acid Reducer/Antacid
    Fiber supplement
    Probiotics
    Physical Therapy for PFD
    IC Diet since 8/2009
    Gabapentin, 12/2011....seems to be working great!

    Medications Tried and Discontinued
    Elavil, worked up to 50mg (started 1/2011), caused retention & high blood pressure
    Urelle, caused retention
    Vesicare, caused retention


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