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Thread: Self cathing

  1. #1
    ICN Member Mothergoose's Avatar
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    Self cathing

    Are most of you told to self cath because you have retention and can't void on your own?

    I have seen quite a few uro who seem quite surprised that I have trouble peeing and have retention.

    I went to a new uro and he figures I should self cath for a while and maybe my ablity to pee will return, does this sound reasonable?

    I have had problems with this for years and my bladder is streached really big.

    I also run across uro's who say I don't have IC if I have retention. I was tested with a hydro distention under anastetic, and was told for sure I have IC.

    Just confused a bit, I know lots of others have problem voiding too.

    MG

  2. #2
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    Hi Mothergoose :-)

    I have been looking into several catheters for myself. I have samples coming from Lofric Canada this week to try them myself for instillations and in those desperate moments when I have retention.

    However, my friend saw this catheter advertised and I thought about your post... they are compact catheters made specifically for your problem. They are called speedicath.com. Look them up and see what you think! They come in boxes of 30. They are very small and compact!

    And I looked into my health insurance today and thankfully, catheters are covered 100 percent. I am so thankful for that because I am very low income and do not have money to cover it... I am hoping my job will cover my uracyst treatments for another year. Praying that this will happen!

    Praying for you,
    Wizbe!
    Praying for all those who suffer from the chronic pain from ic - relying on God for strength every day!



    Current Meds:
    2 Elmiron 100mg 2x a day
    25mg Elavil 2 at bedtime
    200mg of Pyridium 3x a day (usually do in cycles - on for two weeks, off for a week)
    2 belladonna and opium suppositories as needed for pain daily.
    Oxytrol Patch = change every three days
    (Oxybutynin Transdermal System)
    Uracyst Instillation Maintenance as Needed.

    Herbal Supplements:
    Quercetin
    Contemplating (Colostrum)
    *money is the issue

    I have tried but failed -
    lidocaine instillations, heparin instillations, oxybutynin by mouth also called ditropan, tylenol 3s with coedine, cyclobenzaphrine, ativan


  3. #3
    ICN Member Briza's Avatar
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    I had both IC and retention issues. I did self cath when needed but it had zero effect on my ability to pee.
    Favorite quote: "Moderation kills." ~ Dr Caldwell Esselstyn

    I've been remission since Aug 2009! My apologies but I will no longer respond to private messages regarding my IC and VV symptoms, diagnosis, treatments, remission, lifestyle changes including my diet or stress management techniques, etc. I am simply too busy. If you have questions please refer to my remission thread as well as the other 6000 something posts I have made on this board....they pretty much cover it all from beginning to end.

    My remission story: Healing from the Inside Out
    http://www.ic-network.com/forum/showthread.php?75536-My-remission-healing-from-the-inside-out
    What helped me get to and stay in remission? stress reduction, diet, time, meditation, stress reduction, stress reduction, stress reduction!--I no longer take medications for IC, PFD,VV, anxiety, or depression. Making career and lifestyle changes to reduce stress and learning techniques to manage anxiety set the stage for my bladder to heal.
    My history: No history of bladder issues***Onset of IC and VV sxs Nov 2003***Diagnosed Nov 2004 based on symptoms and hydro/biopsy results***Cysto-Hydro did not give therapeutic relief, I had complications and long recovery ***Hunner's Ulcers found and removed during hydro***Symptoms: the usual~pain, burning, spasms, frequency, urgency, nocturia, lower back and upper thigh pain, very bloated "IC Belly"

  4. #4
    Forum Manager ICNDonna's Avatar
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    There can be a huge benefit in being able to catheterize yourself. I learned how many years ago when I was unable to urinate following a surgery. It isn't difficult to do --- many ICers do their own instillations --- I did for a long time, but don't need the instills very often any more.

    Just knowing I'm able to do this if needed gives me more confidence in dealing with any potential problem urinating.

    Warm hugs,
    Donna
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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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  5. #5
    ICN Member Mothergoose's Avatar
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    Thanks for the responses.

    I am not too worried about self cathing, my Dr. is, I have very low immunity and very prone togetting infections, this is why he is opposed to self cathing and instills for me.

    I am willing to give it a try, I worry about being somewhere and going into total retention and not being able to day anything about it.

    So we will see, I will go with what ever is recomended.

    My neibour told me about speedicaths she saw them advrtised on TV.

    Thanks for the tip.

    I just really was wondering about slef cathing being able to make it so I can pee on my own again, when they know it is caused from the muscle not contracting?

    MG

  6. #6
    ICN Member imakar27's Avatar
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    I also have problems voiding, but I can't even tell my bladder is full. How do you tell when your bladder is full? The pain? How do you know when you have to void, and how do you know that you're not empty? I'm just trying to understand, we all seem so different in our symptoms.

  7. #7
    Forum Manager ICNDonna's Avatar
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    imakar, you may need to use a clock to know when your bladder should reasonably have enough urine to need to be emptied. I can always tell if my bladder is full --- I can definitely feel it.

    Donn
    Have you checked the ICN Shop?
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    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

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    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  8. #8
    ICN Member Mothergoose's Avatar
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    A couple of suggestions, keep a voiding diary. Time you pee, how much you go, notes like had trouble starting, week stream, stopped and started, etc.

    What and how much fluid you drank, with time you drank it.

    This can tell you if you are putting out as much as going in.

    After keeping a record for a week, my Dr. told me to pee every hour, but to still keep the voiding diary with all the same info on it.

    I have lost sensation too in my bladder and don't always get the signals I need to go, I have been told to go at least once an hour, and to double void, pee and wait a few mins or get up and move around and pee again.

    I really don't know if this helps or not, but I do know if I wait too long to go to go then I might not be able to go at all.

    My Dr. tried me on vaginal estrogen, it is supposed to helpthe bladder, butthe estrogen really disagreed with me so I could not take it long enough to see if it would help.

    MG

  9. #9
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    self cathing

    I keep trying this and as soon as i get close, my post gets lost??? My Mom has to start cathing after a year and a half. She had a bladder lift then was diagnosed aving IC and her Uro recommended it. After this long and up every 10 minutes for a year and a half, she has decided to cath, yet due to the IC diet and other testing and restricted foods she has lost a tremendous amount of weight and will not use the nurce on hand to teach her to cath and wants to do it on her own. I have gotten her the info and also a YOU TUBE video on self cathing and she tried it last night with the samples sent and was not able to do it. I recommended she see the nurse on staff at her Uro's office and she will not do it because she is so embarrased about the way she looks with weight loss. I told her that as bad as it may seem that if she chose not to get help with it that she may have to actually put her fingers down there and feel where her urine is comming from even though it is sterial and that she could wash her hands afterwards. She can hardly go anymore and I know that she now has to cath but won't get the help she needs. She tried a mirror and still can't see where it needs to go. I told her to careful that some may end up with the cath in the vaginal opening, but she said she couldn't imagine that happening since she had had it done by her URO, I told her to keep it in mind anyway and when I spoke with her this morning she told me that even though she couldn't imagine it, that it had happened to her and that she could not find the opening. She needs to go and needs some relief and will not get help, what does she need to do. Plaese help, I think she's near the end with weight loss , IC, sleep deprivation, and urine retention. Carolyn

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