Latest Blog Article: Female Triathletes At Risk For Pelvic Floor Disorders
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  1. #1
    ICN Member
    Join Date
    Jun 2001
    San Ramon

    Urologist does not give drugs.

    My uro will not give me any drugs. He only believes in instills. What doctor will help with other meds.
    So grateful for your support.

  2. #2
    Support Leader kadi's Avatar
    Join Date
    Dec 2003
    I get some of the medicines for my IC from my primary care doctor. He prescribes my muscle relaxants, topical lidocaine (for external vulvar pain) and pain medication. My gynecologist prescribes my birth control pills, which also help control my IC.

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest

    Current treatments:
    -IC diet
    -Elavil 60mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills every morning and night
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic to prevent UTI infections from 2x daily catheter use
    -Colace & Senna to treat chronic constipation from meds
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

  3. #3
    ICN Member Jinny Jean's Avatar
    Join Date
    Apr 2011
    Sicamous, British Columbia, Canada
    My regulat GP prescribed Elmiron and Atarax for me.
    25 yrs old,

    Flaring: 20-25 x's, raw feeling in my urethra just before urinating.

    On a regular day: My frequency is normal 5-8 x's

    I have little to no problems now with my bladder, unless I am very stressed out, I forget to take Elmiron for a few days, or I eat or drink something that I know is a trigger...(i.e) like eating a tomato or drinking tea.... Took a long time to get here, but it IS possible to feel good again I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC.

    What Works: Tylenol 3's, Pyridium, Elmiron (Going on 14 months now!) HOT showers!!!

    Medications/ Vitamins: Elmiron-100mg 4x's daily Tylenol 3's/Advil and PROBIOTICS!

    Me in my graduation gown!

  4. #4
    ICN Member Briza's Avatar
    Join Date
    Dec 2004
    You should consider a second opinion with another urologist. Additionally, as the others have mentioned, your GP and/or gyn may also be of help. Also some here are under the care of a uro-gyn.
    Favorite quote: "Moderation kills." ~ Dr Caldwell Esselstyn

    I've been remission since Aug 2009! My apologies but I will no longer respond to private messages regarding my IC and VV symptoms, diagnosis, treatments, remission, lifestyle changes including my diet or stress management techniques, etc. I am simply too busy. If you have questions please refer to my remission thread as well as the other 6000 something posts I have made on this board....they pretty much cover it all from beginning to end.

    My remission story: Healing from the Inside Out
    What helped me get to and stay in remission? stress reduction, diet, time, meditation, stress reduction, stress reduction, stress reduction!--I no longer take medications for IC, PFD,VV, anxiety, or depression. Making career and lifestyle changes to reduce stress and learning techniques to manage anxiety set the stage for my bladder to heal.
    My history: No history of bladder issues***Onset of IC and VV sxs Nov 2003***Diagnosed Nov 2004 based on symptoms and hydro/biopsy results***Cysto-Hydro did not give therapeutic relief, I had complications and long recovery ***Hunner's Ulcers found and removed during hydro***Symptoms: the usual~pain, burning, spasms, frequency, urgency, nocturia, lower back and upper thigh pain, very bloated "IC Belly"

  5. #5
    Forum Manager ICNDonna's Avatar
    Join Date
    Mar 2000
    If your current urologist is unwilling to prescribe any of the medications usually prescribed for IC patients, I have to agree that a second opinion is a good idea.

    In the meantime, your primary care doctor may be able to help.

    Warm hugs,
    Have you checked the ICN Shop? for US & Canada for all others

    Patient Help:

    Diet list:

    You'll find my story at:

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

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