Thread: flaring again
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05-25-2004, 10:21 AM #1
flaring again
it's not as bad as it could be, but it still sucks.
frequency isn't a big problem right now, but pain is. any ideas on what i can do to help until i see the uro next week?
so far, this is what i'm doing.
prelief before ANY food enters my mouth (this includes drinks too).
urelle about 3 times a day.
still taking the elmiron (hasn't started working yet).
lots of water.
trying to stick to boring blah foods.
the only change in my life right now is stress and lots of it. usually my flares are just lots of pain and bloating. but this time, i don't have the bloating, but i feel like i've got something inside my bladder just shocking me with electricity. and if i touch my skin near my pelvis, it just sends it into conniptions. i'm seeing some blood in my urine too.
i just need some tips to get through this week until next tuesday. anyone?holly 35
IC, endometriosis, graves, chronic uterine infection
no kids, just me and my man (and some furry things that beg for food a lot)
"if the Lord has set you free, be free indeed"
IC dx 2003/mysteriously developed while on depot lupron to treat endometriosis
treatments tried so far:
elmiron, elavil, pyridium, urelle, heparin instills, doxycycline regimen (most successful, but not completely), IC diet
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05-25-2004, 05:21 PM #2
Sometimes taking some Tums can help me out of a flare --- and they're good for their calcium even if it doesn't help your pain level.
Are you drinking plenty of water? That can be very important to help keep the urine diluted. A heat pad can be a real savior.
Warm healing thoughts,
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
.....My Meggie.....

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05-25-2004, 06:00 PM #3
When I'm in a bad flare, I drink distilled water only and super-bland foods. Eggs & rice with butter. Also, an ice pack on lower abdomen, and sleeping on my side with pillow between knees.
And lots of videos at night to distract me when I can't sleep. I tape shows I like then watch them when I'm up a lot at night.
Hope you feel better soon!!!
Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
This week's favorite one-liner:
"Just remember, if the world didn't suck, we'd all fall off. ~Author Unknown
"
New second favorite:
Please, Lord, let me prove that winning the lottery won't spoil me.
- Unknown
Adding a third because I'm just so darn easily amused...
"Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup.
- Bruce Graham"
Current treatments:
-IC diet
-Elavil 30mg at night
-Ditropan 5mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills every morning and night
-Pyridium if needed, usually once a week or so
-1 Vicodin at bedtime,
-Flexeril 10mg at bedtime
-Dye Free Benadryl for allergies occasionally
-Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
-Managing stress
-Fur therapy: Hugging the cat!
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05-26-2004, 04:37 AM #4
sending you hugs and prayers for a better day.
RhondaMedicine taken daily or as needed:
1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
2. MS.Cotin 100mg 3x daily
3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
4. Fentanyl 100 mg Change every 48hrs.
5. Gentamicin 80mg install after each rescue treatment
5 Leviquin 500mg self start as needed.
6. Klonopin 1 or 2 daily as needed.
7. Prosed/DS as 1 every 6hrs as needed.




I have IC, but IC doesn't have me anymore!
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