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  1. #1
    ICN Member Xylazine's Avatar
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    Pain AFTER Urinating - Not Before

    So in my research, most IC patients have pain when their bladder is full. My excruciating pain comes AFTER I've emptied my bladder. I'm also having to wait about 1-3 minutes before I can empty my bladder and even then, I have to concentrate to finish urinating.

    Anyone have their pain AFTER urinating?
    - Chelle: Emergency/Critical Care VMT, RVT, CVT

    Diagnosed in 2010 - initiallly by family doctor, confirmed by a urologist and urogynocologist in 2012. Diagnosed with bladder sphincter dyssynergia in 2012.
    Current TX: Elmiron 100mg TID, Vicoprofen 7.5/200mg PRN Q4/6H
    Past TX: Hydroxyzine, Imipramine, Tamsulosin.

  2. #2
    Forum Manager ICNDonna's Avatar
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    When I'm flaring, I always have worse pain immediately after urinating. It's kind of like my bladder doesn't like to be completely empty.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  3. #3
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    I have pain afterwards as well ,this is not to say I don't feel a nagging ache before but the stinging, burning sensation has always been after.
    IC diagnosis 3 weeks ago.
    Vesicare 10 mg once daily
    IBS and Gerd-Zegerid
    IC diet
    Elmiron 100 mg three daily
    Hydroxyzine 25 mg at night
    Amitriptyline 10mg at night
    Diovan 60/12.5 daily
    Topral 50 mg daily
    Zoloft 100 mg at night
    Klonopin .5 twice daily

  4. #4
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    Pain

    I have really bad pain afterwards, but have pain before. Seems like I read a post recently that stated that pain afterwards was pelvic floor dysfunction related.
    Diagnosis: Endometriosis, IC, PID, PCS, PFD, PN/PNE, VV, fibro, Pelvic Adhesions, DDD, Hysterectomy at a young age. Unable to take estrogen, causes pain—extremely bad pain.

    Thankful: For all the support and comfort I receive on this site.

  5. #5
    Forum Manager ICNDonna's Avatar
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    My theory (and it's MY theory only ) is that when the bladder is completely empty, and it collapses kind of like an empty balloon --- if the irritated top & bottom of the bladder touch at all (painful tissue touching painful tissue) it's going to hurt.

    I do NOT have pelvic floor dysfunction.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  6. #6
    ICN Member
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    Pain after

    Actually I read this on the IC site in the section what is Interstitial Cystitis & Painful Bladder syndrome, not a post.


    http://www.ic-network.com/whatisinterstitialcystitis/
    Diagnosis: Endometriosis, IC, PID, PCS, PFD, PN/PNE, VV, fibro, Pelvic Adhesions, DDD, Hysterectomy at a young age. Unable to take estrogen, causes pain—extremely bad pain.

    Thankful: For all the support and comfort I receive on this site.

  7. #7
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    My pain is pretty much always AFTER I go, rarely before (unless I'm in a really bad flare in which the pain is non-stop). I have an easy painless flow, then the burning sensation starts about 30 seconds later, and continues anywhere from a few minutes to an hour. On my really bad days it reaches its peak about 10 minutes after I go when I start feeling like my insides are being shredded with a knife.

    I don't have pelvic floor dysfunction, but I have a nasty looking bladder as my hydro showed with several Hunners' ulcers. My uro says the feeling of pain after urinating is atypical, but then again I'm an atypical case in many ways. I also don't seem to be half as diet sensitive as many people in this board are.

  8. #8
    ICN Member Xylazine's Avatar
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    Thanks for the responses everyone! Good (well, not "good", but you know what I mean) to know I'm not the only one.

    Donna, I agree with your analysis. I'd always kinda thought of it that way, but wasn't sure if I was going thinking about it correctly

    It's especially bad at night/early morning when I have to get up to pee. Almost every time, I have to take Vicoprofen afterward (strangely enough, it's usually at least 4 hours apart).
    - Chelle: Emergency/Critical Care VMT, RVT, CVT

    Diagnosed in 2010 - initiallly by family doctor, confirmed by a urologist and urogynocologist in 2012. Diagnosed with bladder sphincter dyssynergia in 2012.
    Current TX: Elmiron 100mg TID, Vicoprofen 7.5/200mg PRN Q4/6H
    Past TX: Hydroxyzine, Imipramine, Tamsulosin.

  9. #9
    ICN Member
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    I actually have pain before and after I urinate...I have the least amount of pain when my bladder has a little urine in it, but not too much.

  10. #10
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    Thingone...I'm so glad you mentioned that pain afterward might be a sign of pelvic floor dysfunction. My urologist suspects I have pelvic floor dysfunction. My gyno examined me the very next day, and he said he was almost 100% sure I didn't have PFD. I'm going to have a PFD therapist evaluate me (I guess that will be the tie breaker). If I have PFD along with my IC, that might explain why we are not having much success in treating my IC.
    Last edited by Melanie526; 06-03-2011 at 03:41 PM.

  11. #11
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    Donna...that makes complete sense to me.

  12. #12
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    I have the exact same symptom. I have more pain AFTER urinating than BEFORE. My bladder always seems to feel better with some urine in it. I always thought this was atypical of IC. But its good to hear that others have this too. Has anyone found any treatment that works for this symptom?

  13. #13
    ICN Member
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    Pain

    Melanie526

    I found this post by jill (see below)"


    cnmgrjill
    04-22-2010, 02:36 AM
    Before considering bladder removal, you absolutely should be assessed for pelvic floor dysfunction first by a seasoned professional with experience in diagnosis. Remember the golden rule.. pain before urination that is relieved abit when you empty your bladder is usually bladder wall pain. Pain after urination is usually spasms or PFD.

    Also.. cheereo.. you didn't mention if she had Hunner's Ulcers or not. The new protocol for injecting triamcinolone into the ulcers is VERY promissing!!! Showing a good reduction of pain and discomfort in research studies.

    I'm always happy to go through the various options and strategies before considering surgery with patients. Do it regularly. She can sign up for a coaching session or give me a call!

    Jill


    The golden rule stuck in my head because I was wondering why I have serious problems with the pain after in the mornings or when I get up in the wee hours of the morning. It really makes it hard to sleep. It can take an hour or more for the pain to subside. I'm glad you are going to PT to get evaluated. I'm hoping you get good news and find some relief soon.

    My GYN sent me to PT just for IC, not PFD. I had a lot of problems with my muscles in the pelvic floor that my GYN was not aware of, but she sent me to the right person to evaluate me. My therapist's have been a bright light for me. Relaxation techniques, have helped me tremendously when flaring. I'm so thankful for these wonderful compassionate professionals.
    Diagnosis: Endometriosis, IC, PID, PCS, PFD, PN/PNE, VV, fibro, Pelvic Adhesions, DDD, Hysterectomy at a young age. Unable to take estrogen, causes pain—extremely bad pain.

    Thankful: For all the support and comfort I receive on this site.

  14. #14
    ICN Member
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    Quote Originally Posted by greeneyes View Post
    I have pain afterwards as well ,this is not to say I don't feel a nagging ache before but the stinging, burning sensation has always been after.
    That is exactly how I feel!! I do feel relief from the pressure of a full bladder but then get the stinging weird feeling after. And it tends to be worse when I actually have held it like at night.

  15. #15
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    Thingone

    Thank you so much for the info...I met with a urologist today, and he scheduled me for a cystoscopy next week...he told me to find an IC specialist at Ohio State or someplace bigger (wish he knew of one to refer me to...I'm constantly trying to find doctors, and it's not the easiest thing)...he even mentioned bladder removal (which shocked me...I thought this was a last resort thing)...there are several things I haven't tried (Elavil, antihistamines, Elmiron, interstim, etc.), so he really caught me off guard...not the kind of thing I want to hear...I'm going to another urologist on Friday (I'm all about 2nd opinions, 3rd opinions, etc.).

    BTW...How do I sign up for a coaching session? Also...did I read the post correctly? I can call and speak with Jill?

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