Thread: Quick introduction...
05-23-2004, 05:53 AM #1
I've been lurking on and off for months now and thought I'd introduce myself. While I've not been "officially" diagnosed, I have all of the symptoms and very much believe IC is my problem. Bummer!
I'm a 35 year old mother of a five year old and live in rural Mass. My troubles began last year with a nearly five month giant flare and major depression along with it. After that, I went into a total remission for nearly five months. I could eat anything I wanted--it was wonderful. Then I got a real UTI early this spring and it sent me right back into a flare that's been coming and going for nearly three months. I'm tired of it!!!!
I've learned SO MUCH from this board. THANK YOU! I follow the diet quite religiously and have found that much of the time I can get by with the diet and my tool kit of xanax for spasms (.25 mgs usually works, .5 puts me to sleep!) and pyridium (not usually needed but comes in handy when flaring!).
Thankfully, I have continued to work and can keep my flares fairly managable, but boy when it acts up I can get pretty miserable and grumpy. Like today!
In fact, I've had a flare for the past few days and haven't been able to figure out if it's a UTI, something I ate, or a result of trying to go on the birth control patch. The flare started five days after putting on my first patch. Just had the doctor run a urinalysis and culture this afternoon so I'll find out in an hour. We just moved to Mass. this past year and thankfully, my doctors (including a female urologist) are wonderful! Bless them.mom_in_ma
05-23-2004, 06:17 AM #2
Ugh...it's a flare.
@#$#...it's a flare and not a UTI. Just talked to the doctor. While there's a bit of blood, there's no evidence of infection. He's putting me on levequin just in case because of the trace blood. BUT, I just have to wait this one out. Ok...now I'm REALLY grumpy!mom_in_ma
05-23-2004, 07:04 AM #3
Oh, no... yeah, I know how you feel... sometimes I wish it were a UTI so I could be sure I'd feel better after a couple days of antibiotics....
I hope your flare goes away soon!!
And... to the boards, glad you decided to start posting!!
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
05-23-2004, 07:15 AM #4
Me, too - such a bummer when it isn't a UTI causing the flare.
Welcome to the site - glad you came out of lurkdom.Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
05-23-2004, 08:04 AM #5
welcome to the icn family i'm also sorry your flareing and it wasnt a uti so you could get it under control but it could had been a uti getting started.
but wasnt enough infection for the doctor to call it a uti.
i also have blood in my urine alot.
sending you hugs and many prayers for a better tomorrow.
please let us know how you are.Medicine taken daily or as needed:
1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
2. MS.Cotin 100mg 3x daily
3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
4. Fentanyl 100 mg Change every 48hrs.
5. Gentamicin 80mg install after each rescue treatment
5 Leviquin 500mg self start as needed.
6. Klonopin 1 or 2 daily as needed.
7. Prosed/DS as 1 every 6hrs as needed.
I have IC, but IC doesn't have me anymore!
05-23-2004, 03:09 PM #6
Hi and welcome, glad you joined us. A flare is definitely a bummer, and you have a right to be grumpy with one, they are definitely the pits. Hope it starts to easing up on you really soon, take care and let us know how you are doing, welcoming hug Iris.Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.
05-23-2004, 03:48 PM #7
Thanks for the welcome. I really appreciate your comments. I promise to comment and post when I can! I'm SO glad this board is here.mom_in_ma
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