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  1. 03-03-2011, 04:05 AM #1
    bubbe1
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    prayer for husband

    Hi,
    My husband, who has an Interstim for his lower back, is in surgery today to have the leads extended to his upper back. He has been living with a great deal of pain in his thoracic area, so his surgeon said he would TRY to alleviate some of Bob's discomfort by implanting leads to that area.
    The problem is, they have tried this before, when they put in the original stim and leads, and it didn't work. However, the doctor said he has a new way of doing it now, and that it was worth a shot. Since this Dr. is one of the inventors of the stim that my DH uses, we're trusting his ability.
    Anywho, I know the trial implant is not a big deal surgery, but I would like to ask for prayers/positive thoughts, that the trial works.
    The temps come out on Monday and if the surgery is a success, then the perms. will be put in on the 16th. This will be a little bit more of a big deal surgery, since they have to reopen the area where the receiver is, and use some general anesthesia. Dh has a heart condition, so I always worry when he has to have anesthesia, but, one step at a time.
    Thanks,
    Laurie
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  2. 03-03-2011, 05:03 AM #2
    nanawaggs
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    Hi, bubbe1 ~ Any time we go under anesthesia it's a frightening experience.

    Prayers for your hubby and that he will have success with this surgery.
    Never heard of IC until it was suspected....Never knew so many are suffering from it.
    Praying for a cure.


    11/2007 IC Symptoms began during recovery period of surgery for bladder suspension and hysterectomy, painful urgency/frequency
    8/2009 Suspected IC
    1/2010 Treatment began
    2/2010 Diagnosed PFD, began Physical Therapy
    2/2010 Surgery to remove mesh from bladder suspension
    5/2010 Surgery to repair bladder, vaginal vault and small intestine prolapse
    5/2010 IC officially diagnosed during surgery
    7/2010 Diagnosed with Candida Esophagitis, Gastritis, Diviticulosis, Gallstones
    8/2010 Surgery to remove gallbladder

    Treatments:
    Heparin/Lidocaine/Bicarb/Kenalog Instills
    Macrodantin 100 mg after each instill
    Valium Vaginal Suppositories: Cyclo/diaz/lido, 10/5/62.5 mg
    Pyridium as needed up to 3xday
    Celexa 10mg daily
    Premarin Cream 3xweek
    Aloe Vera
    Prelief
    Dual Action Acid Reducer/Antacid
    Fiber supplement
    Probiotics
    Physical Therapy for PFD
    IC Diet since 8/2009
    Gabapentin, 12/2011....seems to be working great!

    Medications Tried and Discontinued
    Elavil, worked up to 50mg (started 1/2011), caused retention & high blood pressure
    Urelle, caused retention
    Vesicare, caused retention

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  3. 03-03-2011, 05:58 AM #3
    bubbe1
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    prayers for husband

    Thank you, Ginger.
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  4. 03-03-2011, 06:19 AM #4
    VickiB
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    Any surgery is scary, and I would think especially so when there's a heart condition involved.

    I pray that all goes well and your husband finds relief through this. Pain is such a nasty thing to live with! Let us know how it goes today!


    Vicki
    "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."
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  5. 03-03-2011, 06:24 AM #5
    bubbe1
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    prayer for husband

    Quote Originally Posted by VickiB View Post
    Any surgery is scary, and I would think especially so when there's a heart condition involved.

    I pray that all goes well and your husband finds relief through this. Pain is such a nasty thing to live with! Let us know how it goes today!


    Vicki
    Thank you, I'll let you know.
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  6. 03-03-2011, 12:39 PM #6
    Linda May
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    bubble1 i will pray now for you and your husband.
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  7. 03-03-2011, 02:05 PM #7
    ICNDonna
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    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....
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  8. 03-03-2011, 02:34 PM #8
    flowerangela
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    Newly IC diagnosed as of February 2011.

    Medications I'm on that seem to work:
    Zoloft- one once a day
    Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

    Failed Meds:
    Elmiron-after 4 months,digestive side effects got to be too much
    tramadol-allergic
    DMSO treatments(5-6)
    probiotics

    THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
    AROMATHERAPY-candles,incense
    Village Naturals Aches and Pains Peppermint Bath Salts
    Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

    ACUPUNCTURE/HERBS
    Significant pain relief so far.

    MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

    Add me on facebook Angela Hasic

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Lord, make me an instrument of your peace;
    where there is hatred, let me sow love;
    when there is injury, pardon;
    where there is doubt, faith;
    where there is despair, hope;
    where there is darkness, light;
    and where there is sadness, joy.
    Grant that I may not so much seek
    to be consoled as to console;
    to be understood, as to understand,
    to be loved as to love;
    for it is in giving that we receive,
    it is in pardoning that we are pardoned,
    and it is in dying [to ourselves] that we are born to eternal life.
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  9. 03-04-2011, 06:14 AM #9
    bob04951
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    Always scarey Laurie, you almost wish it was you instead of him. Just make sure they pay attention to his heart condition and take the appropriate precautions. You will be his mouthpiece through this. Hope it works out okay, he will be in our thoughts as well. Jill, wife of Bob
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  10. 03-04-2011, 11:21 AM #10
    bubbe1
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    prayers for husband

    Quote Originally Posted by bob04951 View Post
    Always scarey Laurie, you almost wish it was you instead of him. Just make sure they pay attention to his heart condition and take the appropriate precautions. You will be his mouthpiece through this. Hope it works out okay, he will be in our thoughts as well. Jill, wife of Bob

    Thank you Jill.
    Yes, it is always scary when husbands are in the hospital. Unfortunately, I've had an awful lot of practice being his advocate, but that's part of the deal, right?
    Laurie
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  11. 03-04-2011, 07:56 PM #11
    Snowden1
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    Teresa

    We are not HUMAN BEINGS going through a temporary SPIRITUAL EXPERIENCE. We are SPIRITUAL BEINGS going through a temporary HUMAN EXPERIENCE....so that we may become more SPIRITUAL.
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