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  1. #1
    ICN Member classics's Avatar
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    Ovarian Cyst and I C. Any connection?

    I would like to talk to anyone who has been diagnosed with an ovarian cyst and also has I.C. I wondered if the cyst could cause I. C. Also, if anyone has had the CF125 cancer test and had elevated levels. Mine is 38 (normal is 0-35).

    My primary doctor thinks it possible that my level was slightly elevated on this test because I was using Estrace cream during test time. I wondered if IC could alter the results of this test as well.

  2. #2
    Support Volunteers Kathi's Avatar
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    I had ovarian cysts & thought the pain on my right side was the cyst. Instead of the C125? test, my doc went in and did a sonogram. The cyst was gone & that's when I went to the uro & was dx with IC. That was 1999 & I had another sono last check up, just to make sure there was nothing going on. He prefers them to the blood test. Hugs, Kathi
    One Day At A Time
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  3. #3
    ICN Member Katrina's Avatar
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    Well I have been diagnosed with overian cyst and than undiagnosed (long story) but since they are caused by hormones and there seems to be a hormonal connection to IC there could be a frequency for that reason. Just a thought?

    Now I get to party that this is 1000 posts!!!!
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  4. #4
    Support Volunteers ICNJess's Avatar
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    I had two ovarian cysts when I was 17, that grew to be very large and rupture, causing them to somehow leak into my blood stream and make me very ill. I ended up in the hospital for those stinking things, and missed a month of school. The joys of being a woman. A month before they ruptured, I had my first "UTI".
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

  5. #5
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    ovarian cyst connection?

    I wanted to put in my two cents on this one...i had my tubes tied in Mar 2000...woke up in severe pain that wouldn't ever go away. treated with antibios for a UTI? then within 3 weeks after procedure I had grapefruit sized cysts. They were repaired...Still no relief from the pain. In fact, female gyno told me that she herself had had that procedure done and that I should not be in so much pain. Three weeks later the cysts are back. Hmmmm?
    One ovary removed at that time. Eight months later no relief from pain...Volunteered to do conscious "pain mapping" so i could show them where it hurt. Cysts had returne don remaining ovary....but when they touched my ureter...I went through the roof. this alerted them to do a cysto/hydro...and Voila! I had IC.
    Imagine that. I had a complete hyster so i don't have to worry about cysts...but I have severe chronic pelvic pain and IC with fibro ever since. Very painful stuff, this IC.
    Anyway. There is a connection somewhere..but I will admit I am baffled like the rest of us. PS. I never had any problems female wise, except cramps...until i got my tubes tied.
    Thanks for listening. Any similar stories out there?

  6. #6
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    I have had cysts on my right ovary too...and elevated levels of progesterone.

  7. #7
    Member KimMulry's Avatar
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    I am trying to make a connection here too.
    I have multiple small cysts on both my ovaries. Apparently they grow every month and into the second and third month. I only get my period every two to two and a half months. I hate it.
    MRI showed the cysts when I had scan for extreme back pain. I also have a tear in disc between L4 & L5, arthritis in lumbar spine and arthritis in my SI Joints. I am only 33. I think this is unusual but I have had four kids and I have had two epidurals and 2 spinal blocks( for when I had 2 miscarriages.)
    I keep thinking that the needle that was inserted into my spinal cord and delivered medicine(toxins) into that area could have caused all my problems. All my problems are from the bellybutton down(except of course for my mind being lost... which is debatable)

  8. #8
    ICN Member classics's Avatar
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    I made an appointment with a oncologist/gynecologist to look at my ultrasound reports and films of my ovary. The reason I did this is beause my gyn wanted to remove the ovary based solely on CA-125 test. This way I'm getting a 2nd opinion from a cancer specialist.

    I have other news too. I have decided to get the cysto/hydro from the urologist. He was going to order the I.C Prelude test, but now that it's been put on hold, I don't want to wait any longer. I just want to get this resolved after eight months.

    He said they will do general anesthesia, with a biopsy. It was kind of funny, because I asked him if I would have any marcaine put in r and he said he usually doesn't do it, but if I ask him just before sugery, he will. I should be receiving a call next week from his office to set up the cysto/hydro, but I think it will be a while because he will be out of town the week after next.

  9. #9
    ICN Founder icnmgrjill's Avatar
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    This is an excellent question. I've had, at a minimum, seven ovarian cysts.... all while I was in college. Some of mine burst and the others were just reabsorbed. I, too, missed two weeks of school... and had to fly home to wait for surgery. But, by the then, the darn things just burst... and whammo... I was mega pain that resolved after a week or so.

    We don't know how the connection works but I absolutely believe that there is a connection.

    Jill
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  10. #10
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    My birth mother died of uterine cancer, but I was told for a few years that it was ovarian cancer. (I'm adopted) So for a while I thought I was high risk for Ovarian cancer...especially with all the cysts I've had. I've had a normal C125, but I've been told by a geneticist that its not completely reliable. I just had my right ovary removed because it hurt so bad. I did a laparascopy with pain mapping. They wake you up long enough to tell them where you hurt. My pain was only coming from my right ovary, so they removed it. I would be concerned about removing an ovary just because of a test. I would at least want to retest using a different lab...and get a second opinion.

  11. #11
    Registered User JAMIEL's Avatar
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    I had an ovarian cyst removed in November...At that time I did not have any symptoms of IC...after the surgery that is when all the trouble started...I was diagnosed in January...I think that the surgery triggered it!

  12. #12
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    I also have a history of ovarian cysts. I had an ovary removed in '79. I had a 2nd laparoscopy done 3 years ago with some additional cysts still remaining. My former and present OBGYN's don't see a connection between IC and the cysts. I believe there is.

    Lyn
    Lyn

    IC - dx in 2001
    Vulvodynia - dx in 2006

    "We make a living by what we get, but we make a life by what we give."

  13. #13
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    I think maybe the hormone trouble that comes with cysts may be the culprit with IC. I've had high progesterone levels for years.

  14. #14
    Registered User kim mondro's Avatar
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    does everyone seem to get cysts on there ovaries? i thought it wasnt that common and now it seems to make me worry because i want to have kids and if ic is related to causing cysts im worried. im only 21 still a baby and i want to have kids. is there any research on any connection between the two? the other question i have is everyone that has been diagnosed with ic in here have you all had hysterectomies?
    kim

  15. #15
    Forum Manager ICNDonna's Avatar
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    I hve never seen any scientific report indicating even the possibility of cysts being caused by IC. Overian cysts are common in women who are nearing menopause.

    Sending gentle hugs,
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