Latest Blog Article: Interstitial cystitis is more of an injury to the bladder
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  1. #1
    ICN Member musiclover's Avatar
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    Jan 2009
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    Some tips when using baking soda

    Of course we know the old trick of taking a teaspoon of baking soda in water after eating something that can flare us. I've found that for me the baking soda works much better if I take the time to stir it and actually let it dissolve in the water completely before I drink it, not just let it float around suspended in the water. If the water is too cold it won't totally dissolve, either. So taking the time to really stir it in room temperature water seems to be what works the best at neutralizing the urine.

    Also, if there is any left at the bottom of the glass, make sure to dissolve that, too. Because if you drink down a chunk of that stuff, it will likely give you a really bad stomach ache later. I even read that baking soda can give you ulcers. It seems that if I dissolve all of it well, with nothing left behind, my stomach does much better.

    Oh, and one more thing. Sometimes using baking soda water just once doesn't really help my flares. For a bad flare, I sometimes have to drink it twice a day for 2-3 days before I notice improvement.

    Hope those tips help!
    Last edited by musiclover; 01-21-2011 at 09:38 AM.
    36 Years old, Live in Bay Area, California.

    Update! Feeling much better these days and can usually live my life! I've had severe IC symptoms since Nov '08, and I've had treatments since June '09. I'm so thankful for the info on this forum to help me get to a place where I can feel okay.

    Pelvic pain began July 2008. Urinary frequency began in November of 2008. IC Doctor says I'm one of the worst frequency patients he has had.

    Main symptoms: Frequency, burning pain. Sometimes I feel I have to go even after I empty my bladder. Completed 8 months of physical therapy.

    Currently on: IC Diet, Elavil (30mg), Elmiron since June '09 (500mg/day).

    Previously tried and quit: one series of six instillations, Neurontin, Ditropan, Oxytrol, electric stimulation to the pelvic floor, Desert Harvest Aloe, Cystoprotek and Flomax, Hydroxyzine (50mg), Alesse Birth control (this helped my period flares when my symptoms used to be bad), PTNS (I think this helped).



  2. #2
    ICN Member ermkenne's Avatar
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    Jul 2010
    Location
    Indianapolis, IN
    Posts
    143

    Thanks

    Thanks for the info. I have been having a lot of bladder pain for about 2 weeks now, worst it's been in a while. They tried increasing my elavil but it did not help, and my doctor recommended 1/4 of a teaspoon of baking soda in an 8 ounce glass of water. They want me to do it 4 times a day throughout this weekend to see if it helps calm down this flare. I hope it does! It's been bad. I have been doing everything they have told me, I just need something to get this under control. It seems like many people have responded to it, so I hope that it helps me so I can get back to work.

    Erin
    24 year old Ph.D student in Organic Chemistry

    Loves to listen to music, play with my animals (cat, fish, 2 hamsters), and live life to the fullest each and every day.

    My blog (just started):

    http://imaginenoworries.blogspot.com/

    Medications:
    Elavil 25mg (helped with nighttime urination-used to be 7 or more times a night, now just once)
    Cymbalta 60mg
    Gabapentin (Neurontin) (3200mg/day)
    Zyrtec 10mg
    Xanax 0.5mg up to 3 times a day(spasms, anxiety)
    Uribel
    Macrobid 100mg (only on days when doing an instill)
    Albuterol
    Yaz Birth Control (3 months on birth control, then period)
    Pelvic floor therapy
    Valium 5 mg (inserted vaginally)
    MScontin 30 mg (3 times a day)
    Percocet 10/325mg (every 6 hours)
    TENS Therapy, CVS machine, 30 minutes once or twice a day
    Sanctura XR 60 mg (to help control severe bladder spasms that are causing urinary retention episodes and enable normal bladder sensations)

    *** 1/4 of a teaspoon of baking soda in an 8 ounce glass of water up to 4 times a day*****

    Instill:

    Currently doing hyaluronic acid instillations (cystistat-6 instillations, once a week, already had 4...not sure if helping)

    Used to do these:

    Solu-Cortef (act-o-vial) 100 mg: 2 mL
    Marcaine (bupivicaine) 0.5 % 25 mL
    20,000 units Heparin
    3 mL sodium bicarbonate

    Diagnoses: Moderate IC, scoliosis, asthma, ovarian cysts, PFD, IBS, Fibromyalgia, vulvodynia, Fowler's syndrome (mild) 'Central Sensitivity Syndrome.'

  3. #3
    ICN Member lalarainbow's Avatar
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    Jul 2003
    Location
    Nova Scotia ,Canada
    Posts
    611
    Yes I have used baking soda in the past.. just be careful if you have high blood pressure though.. Hope it helps your flare..
    God brought me to it, He will bring me through it!!!

    Diagnosed 2003
    by cysto/hydro
    Elmiron took almost a year- made me sick, caused diarrhea
    Pyridium -Made me sick
    Detrol and Ditropan- caused constipation
    Trying DMSO instill- had 5 out of 6
    Started Oxytrol Patch- no side affects so far --Jan 2011
    stopped using them after 3 months-- skin was getting irritated
    Cysto/hydro April 6ht 2011-- on expansion only hold one cup
    IBS/ IC
    High blood pressure meds and Crestor
    Sinequan

  4. #4
    ICN Member cmclien's Avatar
    Join Date
    Jun 2009
    Location
    Chicago
    Posts
    712
    Great advice on the "how to", appreciate it.
    Cindi


    Gelnique for frequency/urgency - works great
    Macrobid after sex
    Prilosec, continuous birth control pills
    synthroid .088mg, mucinex-d, restasis

    Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

    Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

    IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
    AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
    AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
    Great treatment flowchart on page 19 of the pdf

  5. #5
    ICN Member ermkenne's Avatar
    Join Date
    Jul 2010
    Location
    Indianapolis, IN
    Posts
    143

    Question

    Is it normal for the baking soda and water to cause intense frequency and urgency? It seems my pain has gotten better, but my frequency and urgency has been through the roof? Has that happened with anyone else?
    24 year old Ph.D student in Organic Chemistry

    Loves to listen to music, play with my animals (cat, fish, 2 hamsters), and live life to the fullest each and every day.

    My blog (just started):

    http://imaginenoworries.blogspot.com/

    Medications:
    Elavil 25mg (helped with nighttime urination-used to be 7 or more times a night, now just once)
    Cymbalta 60mg
    Gabapentin (Neurontin) (3200mg/day)
    Zyrtec 10mg
    Xanax 0.5mg up to 3 times a day(spasms, anxiety)
    Uribel
    Macrobid 100mg (only on days when doing an instill)
    Albuterol
    Yaz Birth Control (3 months on birth control, then period)
    Pelvic floor therapy
    Valium 5 mg (inserted vaginally)
    MScontin 30 mg (3 times a day)
    Percocet 10/325mg (every 6 hours)
    TENS Therapy, CVS machine, 30 minutes once or twice a day
    Sanctura XR 60 mg (to help control severe bladder spasms that are causing urinary retention episodes and enable normal bladder sensations)

    *** 1/4 of a teaspoon of baking soda in an 8 ounce glass of water up to 4 times a day*****

    Instill:

    Currently doing hyaluronic acid instillations (cystistat-6 instillations, once a week, already had 4...not sure if helping)

    Used to do these:

    Solu-Cortef (act-o-vial) 100 mg: 2 mL
    Marcaine (bupivicaine) 0.5 % 25 mL
    20,000 units Heparin
    3 mL sodium bicarbonate

    Diagnoses: Moderate IC, scoliosis, asthma, ovarian cysts, PFD, IBS, Fibromyalgia, vulvodynia, Fowler's syndrome (mild) 'Central Sensitivity Syndrome.'

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