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  1. #1
    ICN Member funinsun18's Avatar
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    IC and Diabetes whats next?

    I was just diagnosed with pre-diabetes.I'm scared,angry and lost.I have changed my lifestyle so much with IC,now I have to with diabetes.I can't imagine what foods I can eat now.I can't find any info on both for food.IC & diabetes cookbooks?I'm in a small town that doesn't know much about IC so finding a dietitian for both will be hard if not impossible.

    Anyone else dealing with the same?Can anyone point me in the right direction?

    Thanks ladies
    Hugs
    Machele


    Diagnosed w/ IC Oct 98 via Hydro
    Migraines,IBS,VV,PFD,Endometriosis,
    insomnia,depression
    Disability in 99 very easy
    Hysterectomy in 2000 left in ovaries
    Right ovary out in March 03 Cysts
    Too many Hydro's to count

    Meds,
    Lortab
    Amitriptyline Up to 100mg
    Lorazapam. stopped useing.Trying benadryl for sleep
    Imitrex when needed plus injections if needed for migrains,


    Dance as if no one is watching.Laugh as much as you can.Live as if there's no tomorrow

  2. #2
    ICN Member KatieB's Avatar
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    This is just my guess, but if you were to take the IC diet to a nutritionist and then explain to her that you also need a diet for diabetes they might be able to put something together for you.
    Do you have a nutritionist? If not then it might be worth it. And taking the IC diet with you will insure that he/she knows what your limitations are already. I've learned the hard way that not everyone knows the in's and out's of IC.
    Good luck to you and hopefully you'll be able to handle the diabetes now, before you need medication for that too.
    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
    Lexapro-20 mg
    Aciphex
    Ambien-as needed
    Percocet-7.5 up to 3 per day as needed
    Valium-10 mg x2 per day
    Phenergan-1 at night
    Prelief w/everything
    Now recovering from acute pancreatitis

    Currents treatments that help somewhat:
    Heating pad
    Hot baths
    Ice
    Being VERY still while lying down with legs elevated

  3. #3
    Forum Manager ICNDonna's Avatar
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    I have both diabetes and IC. I did go for diabetes education classes to learn how to count carbs and keep my blood sugar under control. It's no more complicated than just the IC diet. I test my blood sugar several times a day and so far am doing fine.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  4. #4
    Support Volunteer sailawaygrl's Avatar
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    I find out Dec 22nd if my pre-diabetes has progressed into full blown diabetes. I was put on abilify and gained about 40 pounds in a little over a month. Now my triglycerides are 356 and should be less than 150!! I am not happy at all. I am scared, I am a picky eater, with IC and diabetes, I am lost. I got a book called "Tell me what to eat If I have Diabetes" and am reading it to try and learn how to deal with everything. I will have to find a nutritionist as well I suppose.

    Good luck to you, you are not alone and neither am I!!!

    Sandra

  5. #5
    Forum Manager ICNDonna's Avatar
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    I think the thing that helped me most when my diabetes was diagnosed was diabetes education classes. I learned what to eat to keep my blood sugar under control. I actually lost weight on my diabetes diet for many months --- I've leveled off now and am still overweight. My last A1C test was 6.1 so I feel the diabetes is well controlled at least for the present. The only medication I take for diabetes is metformin, which is one of the $4 meds at our pharmacy.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  6. #6
    ICN Member funinsun18's Avatar
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    GR,MN
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    Thank you for writing.I will definably get more info on diet.And hope to find a nutritionist.
    sailawaygrl Good luck on the 22nd.I too am a picky eater.
    The IC diet was a struggle at first.Now having to eat less food,boy that will be tuff.
    Hugs
    Machele


    Diagnosed w/ IC Oct 98 via Hydro
    Migraines,IBS,VV,PFD,Endometriosis,
    insomnia,depression
    Disability in 99 very easy
    Hysterectomy in 2000 left in ovaries
    Right ovary out in March 03 Cysts
    Too many Hydro's to count

    Meds,
    Lortab
    Amitriptyline Up to 100mg
    Lorazapam. stopped useing.Trying benadryl for sleep
    Imitrex when needed plus injections if needed for migrains,


    Dance as if no one is watching.Laugh as much as you can.Live as if there's no tomorrow

  7. #7
    Forum Manager ICNDonna's Avatar
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    I haven't had to eat less food, just a little different, such as more veggies, less breads. It's really not difficult. I suggest you ask your doctor to refer you for classes to learn how to plan your food intake.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  8. #8
    ICN Member KatieB's Avatar
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    Texas
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    Maybe just to ease your mind

    You should download an average diabetic diet along with the IC diet. I think you'll see that there are many foods on both diets that you will be able to enjoy. I truly understand your fear, but I think information is your best friend. I would still encourage you to go to diabetes classes, my mom has diabetes and apparently classes for newly diagnosed are becoming the way to settle fears. Which it did with my mom. I believe they are offered at most hospitals. And I would also say that a nutrionist would be a great way to help yourself.
    Of course you can't do those things today (Saturday) so I think a little research on both diets will help you settle your fears. Lots of people have many coexisting problems that require diet modifications. It doesn't mean it's the end of the world, although I'm sure that's how you feel. Please take care of yourself by doing the necessary research. You can do that today without the help of any class or nutritionist. That way when you do your follow up with them you will be much more knowledgeable and know the questions to ask.
    Good luck to you!
    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
    Lexapro-20 mg
    Aciphex
    Ambien-as needed
    Percocet-7.5 up to 3 per day as needed
    Valium-10 mg x2 per day
    Phenergan-1 at night
    Prelief w/everything
    Now recovering from acute pancreatitis

    Currents treatments that help somewhat:
    Heating pad
    Hot baths
    Ice
    Being VERY still while lying down with legs elevated

  9. #9
    Support Volunteer sailawaygrl's Avatar
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    Donna, I am already taking 2000 mgs of metformin daily for my insilun resistance. I wonder if this means that I will have to use other ways to treat my diabetes as well. (If I indeed am a diabetic now) I am terrified that I will need insulin and keeping up with my blood sugar sound scary. Education classes will definately be on the agenda for me, I guess I should go even if I am just still pre diabetic in order to get things under control. I am getting shaky alot and feeling really bad in general, I am ready to get this under control.

  10. #10
    Support Leader dyno's Avatar
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    I think the education classes would be very helpful for you. It will just be a matter of learning how to manage it. I like the suggestion of printing off the IC diet to take with you when you talk to a nutritionist about it all.
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

    Information for Patients can be found here.
    http://www.ic-network.com/patientlinks.html


    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at joleneb2@yahoo.com

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

  11. #11
    ICN Member mary124's Avatar
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    Donna is correct, if you haven't done the education classes than I would do that. I don't have diabetes (my husband does, though) and we just went thru a medication study and diet class again-it helped alot. You got to watch the carbs, and check your blood sugar daily.

  12. #12
    ICN Member
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    I know this is an old thread, but a month ago I just got diagnose with type 2 diabetes. I have not been taking this well at all, not that anyone would, but with my IC I feel like it's impossible. My IC is very severe, some foods people even hear seem to tolerate I can't. I can eat any fruits, except for blue berries, which are only in season during summer and frozen ones are like watery and sore tasting. I can't eat carrots, nor any spices, I have to keep my sodium low and many of the things I find I can eat with my diabetes has high sodium.

    I have been on two different metformins 500mg-1,000mg doses and they are making me very sick: nauseous, non-stop diarrhea, cramps, gastrointestinal problems and I've had headaches since I was a kid, but they seem worse now. I haven't been able to get back to my doctor as I and my parents have been having financial problems and my doctor won't prescribe anything else for me unless I come in, which could be several weeks away at this point.

    I try to eat foods, combinations of meats, vegetables and a little starch, but it's making my blood sugar go really high, like over 200. It has been lower, sometimes between 110-150, but that's when I've felt too sick to eat or unable to find anything.

    I did searches on various blood sugar meds and according to the information that all cause the same symptoms as the current metformin stuff I'm taking. I'm very scared, feel stuck and closed up even more. Having IC was bad enough, this is just worse! And it came right before christmas, meaning I was forced to eat a tiny portion when I'm starving, while the rest of my family got to feast. My mom made baked goods, which I couldn't eat either. My life right now, is a literal hell. I can't cook that well, I'm already picky, certain foods also make me gag and feel nauseous like eggs, chicken, some veggies, combinations of foods. I go to sites online and 90% of them have something that flares with my IC or is too elaborate to even consider making, let alone aford. I just want something quick and easy!

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