05-07-2004, 06:46 PM #1
I want to let everyone know I'm feeling fine
I've had no flare's and not much frequency today, I did alittle fast today all I did was drink water and ate veggies. Alove vera helps with the flares alittle but not very much, I know when I eat the wrong foods I get a big flare. I think I will go raw for now on, Veggies don't seem to bother me at all. I have been reading about foods that heals.
Last edited by sleepyangel30; 05-07-2004 at 06:53 PM.Angela aka sleepyangel30
05-07-2004, 06:56 PM #2
I want all days to be good days for you! Thank the Lord for this one!
Faith, Hope, and Love,
I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
or find me on facebook http://www.facebook.com/kat671?ref=profile
Be the Miracle! & Pay it Forward!
firstname.lastname@example.org please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
05-08-2004, 04:49 AM #3
Yea! I'll keep you in my prayers hope you continue to feel better! GraceWhen I am afraid, I will trust in you. Psalm 56:3
05-23-2004, 07:54 AM #4
I speak from my own experience, not promoting medical advice etc. Since adding raw foods bit by bit to what I am eating I notice it helps the IC. I have flares, ups and downs etc. but it is better than when I was eating meat and cooked foods, especially meat and higher protein. I eat a lot of raw food now. Here is a URL about eating raw foods. Everyone is different and you will find different ideas there but all and all I find it helpful. IC is a stubborn disease. I believe with God all things are possible.
05-23-2004, 07:59 AM #5
05-23-2004, 10:34 AM #6
Thanks songbird. It's true IC is a stubborn disease. i was reading a woman post at a msn ic support group she said one night god healed her from ic and it never returned. i love hearing miracle stories like that.
Last edited by sleepyangel30; 05-23-2004 at 10:44 AM.Angela aka sleepyangel30
05-31-2004, 02:28 PM #7
New to IC and have questions
Hi, I'm new to IC and have not been fully diagnosed yet and do not have it full blown. I have noticed that diet plays a big role in IC. I have just begun sticking strictly to the IC diet. Sometimes though it seems like I get flares and frequency when I stick to the IC diet but I do not know why.
I read that IC can be tied to allergies to foods, such as wheat or gluten products. I cut that out of the diet and my symptoms have died down some. I plan on sticking to that and then continuing that and hope it works and then I can introduce other foods into my diet that cause flares such as apples.
I also take aloe vera in the morning and night. Beta Carotine (supposed to build up the linning) and vitamine E in the morning. Herbal remedies called Immuity plus and UTI-Clear 3x/day. I am leery about taking meds.
I am hoping that since it was caught early that these things will help and I will go in remission (this might be wishful thinking).
I am wondering how women take birth control pills and how long they have been on them in conjuction with the IC?
Any suggestions? Feedback?
05-31-2004, 02:47 PM #8
Hi... I've been on BC pills for 12 years almost continuously. I was diagnosed with IC just 3 months ago...****
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
05-31-2004, 02:55 PM #9
Thanks for replying,
I have been on Birth control for 6 years. One of the pills was Yasmine and I was taking it continuously w/o the sugar pill week break. I noticed that symptoms really began when I was on that sort of birth control. But I do not know if it is just a coincidence. Now i have been switched to Ortho Novum and do take the week long break in between pills. I wonder if IC is partly due to birth control pills and taking them for too long.
05-31-2004, 03:31 PM #10
That's so great that you have the willpower to stick to the raw veggies, sleepy! I don't think I could.Jen
"When you get to the end of your rope, tie a knot and hang on" -Franklin D. Roosevelt
05-31-2004, 03:38 PM #11
you know what I have not done the raw veggies yet. but i will soon. i keep telling myself i'm going to go raw and i don't do it. lol i hate when i say i do something sometimes and i don't do it. right now i just watch what i eat. i will let everyone one know when i finally go raw lol. i feel like i have the wil power to do it though.Angela aka sleepyangel30
06-02-2004, 12:52 PM #12
- Join Date
- Feb 2003
I am also having good results with vegetables. They keep the urine alkaline and make me much more comfortable. I check urine pH too. I am loving the veggies, cooked and raw. The only bad thing for me is that I am losing to much weight.
Users Browsing this Thread
There are currently 1 users browsing this thread. (0 members and 1 guests)
By tcbc1989 in forum Help! I'm in an interstitial cystitis flare!Replies: 28Last Post: 02-08-2005, 03:51 AM
By Fracturedsoul in forum Introduce yourself and share your storyReplies: 22Last Post: 01-27-2004, 02:48 PM
By Fritter in forum Not Diagnosed Yet with Interstitial Cystitis?Replies: 6Last Post: 01-04-2004, 01:20 AM
By Alisha in forum College Students with ICReplies: 3Last Post: 10-28-2002, 04:56 AM