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  1. #1
    ICN Member Pucca's Avatar
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    Bacterial Vaginosis

    Has anyone here had any success with ANYTHING to get rid of this problem? I never had it until two months ago. I've gone through the Flagyl treatment from my gyno and tried the Rephresh gel she recommended. I am now trying the over-the-counter homeopathic remedy by VH Essentials, and with only two doses left it doesn't seem to be helping at all. In fact I have more discharge than ever. It is really discouraging.

  2. #2
    Support Volunteer sailawaygrl's Avatar
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    I went through this problem several years ago. I would take the Flagyl and then about a month later it would be back. Finally, my Dr prescribed me two rounds of the intravaginal medication (I am sorry but I don't recall the name). I battled these for over a year. I know how stressful this is, especially when you think you have the problem solved and then bang...back again.

    Good luck I hope you find relief
    Link to the patient information, everything from What is IC? to Disability
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    American Urological Association Clinical Guideline
    Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
    http://www.auanet.org/content/guidel...ent_ic-bps.pdf

  3. #3
    ICN Member Shalai's Avatar
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    I used to have trouble with this ALL the time, but at the time, I was on hormone replacement therapy creme. Since I stopped using that, it cleared up. I've tried since then to use the same creme, but each time with the same problem.

    If you can stand yogurt, it might help. It did help me at the time.

    Hope this helps
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  4. #4
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    Probiotics with live cultures help in keeping yeast infections and bacteria vaginosis away. Most brands need to be refrigerated after opening. There are some brands that dont need to be refrigerated. You want to make sure that they have "live cultures" in them. preferably in the number of "millions or billions" of live cultures. I take 2 probiotics a day from a brand I got at walgreens. They contain 100million live cultures per pill. They really help at preventing infections. I feel your pain. I have had BV several times also. Good Luck
    Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

    I have moderate-severe IC

    Currently stopped taking all medications due to pregnancy

  5. #5
    ICN Member Pucca's Avatar
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    Thanks!

    Thanks everybody for responding. I forgot to mention that I just began taking a probiotic that's sold from the refrigerator at the vitamin store. It's supposed to have the cultures that affect the vaginal area. These things probably take a while to work, but I think I will just go ahead and call the gyno again. I can probably still use the probiotics during treatment with whatever she prescribes. The problem never really went away completely after the first time, so maybe a different form of the meds would help, like the intravaginal kind that sailawaygirl mentioned. Oh BTW the gyno says the hormone replacement stuff HELPS some people... go figure. Just another maddening malady to add to the already-aggravating IC.

  6. #6
    ICN Member pen2005pal's Avatar
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    I had the same problem a few years ago. I was prescribed Vaginal Metrogel and it never came back. I think IC'ers are more susceptible because we live in the bathroom so much.

  7. #7
    ICN Member JennyBird's Avatar
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    I battled BV starting about 2 weeks before my wedding, and it lasted almost 7 months! It was horrible, and it flared my IC horribly. i was on metrogel, didn't work, flagyl didn't work, I was on so many I can't remember what they even were. The last I took was or clyndamycin for a week. This is in a vaginal cream as well, which also didn't work. The clyndamycin cleared it up, finally, but it also coincided with me going off the birth control pill. Every doctor I've seen since swears that the BCP causes imbalances in some women. Lucky me....

    i also started taking 3 probiotics a day, and still do. this may also have helped clear it up finally. i take flora Q 3x's a day. Just make sure your's has lacobaccillus (sp?) bacteria in it, in various forms. That is the good bacteria needed in the vagina to keep a good balance and prevent infections. this is the bacteria the doctors are looking for under the microscope to make sure you have a healthy balance.

    Hope this helps, and you clear up faster than i did!!! I KNOW how you feel, and it really stinks.

  8. #8
    ICN Member Pucca's Avatar
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    Now my doctor is telling me I never had BV in the first place -- my culture came back negative. She did another internal exam and admitted I do have a lot of discharge, which was sent off to the lab and came back negative as well. I am at my wit's end because now I don't even have anything I can put my finger on as to how to go about getting rid of this annoying discharge. When I started physical therapy for PFD I started using a lubricant for the dilators I had to use, and she said that maybe my body can't absorb them due to the vaginal atrophy issue I also have. (I'm tired of all these problems "down there!") So I stopped using lubricant and still nothing's improved. She said she mostly has seen this problem with women who use a lot of "toys" -- and I am definitely not in that category. I just hope that with time it will go away -- I don't know what else to do, and I guess I have to console myself with the fact that she says there is nothing more serious going on.

  9. #9
    ICN Member JennyBird's Avatar
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    That's annoying. could you maybe have an allergy to the diliator, I mean to the material it's made out of? Are you having irratation/itching along with the discharge?

    A couple things that may help. The probiotic still may help you balance out, which may help the discharge in the long run. also, has the doctor done a "one swab" culture on you? It's a more in depth test than just the usual pap swab done in the gyno office. My doctor also told me that drinking lots of water helps thin out the discharge. You may already be drinking alot of water, but I thought I'd let you know.

    I see you live in MD. I grew up in Columbia! I live in NJ now, but Dr. Goldstein who is a vulvo-vaginal specialist mainly practices out of Annapolis and DC, and has a small office in NYC. If it continues, you may want to try seeing him. I went to his NYC office. He helped me at first, but I ended up going to another doctor for various reasons i won't go into. it may be worth giving him a shot though.

    Hope you feel better soon!

  10. #10
    ICN Member Pucca's Avatar
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    Jennybird -- Greetings from Maryland!

    I don't have any vaginal itching or discomfort, so that probably rules out allergy. I do think the sudden manipulation of the area (after about a year of no vaginal sex or putting anything else in there) has somehow caused a reaction in my body. After my very first PT session, where the therapist massaged me internally and externally, I had a very heavy discharge all at once.

    I've used up all my probiotic but I plan on getting more. I figure that even if it doesn't help with the discharge, it might help with the IC.

    My gynecologist has put me on Vagifem, little estrogen tablets that go right in the vagina. It's to treat the vaginal atrophy, which hopefully will get better and will in turn make my vaginal walls more absorbent, so that the discharge might lessen. (I have a feeling she is making this up to give me some hope!)

    Thanks for the doctor recommendation; I will definitely keep him in mind if this does not go away soon!

    Take care and be well!

  11. #11
    ICN Member JennyBird's Avatar
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    Pucca,
    at least you aren't having any itching or discomfort. I know the discharge must still be annoying though. You may have hit on something, I started going to PT again after a month off, and I had a discharge suddenly after that. No smell, but just increased discharge. I know the muscles release lactic acid when they are massaged, so maybe that has something to do with it?

    I've never heard of Vagifem, but I do insert vallium vagionally to relax the muscles. Sounds like it's doing the same for you.

    I really hope you are feeling better soon. All this stuff is SO frustrating!! Feel free to contact me anytime!

  12. #12
    ICN Member Pucca's Avatar
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    Jennybird -- I forgot to mention that I don't drink enough water and never have. (Or any other beverage.) For some reason I rarely get thirsty, and therefore forget to drink. I take bottled water to work and it takes me an entire workday to drink one. I didn't know about water thinning out discharge; that's interesting. I will really try to drink more!

  13. #13
    ICN Member JennyBird's Avatar
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    Maybe it will help to drink more...glad i could give you that tip! They say normal intake s/b 8-10 8oz glasses of water per day.

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    Hi,

    I used to have chronic BV recurring every month, around the week after my period. People have linked it as a hormonal thing as well.

    I did a lot of research and found two strains of bacteria that can directly address the imbalance in the vaginal flora - REUTERI and RHAMNOSUS. Find a refrigerated probiotic at a health food store (refrigeration = much higher count and stronger dose) that contains BOTH these strains. It wasn't good enough for me to find something just with rhamnosus. I think reuteri is the key.

    I found Nature's Way offers their version called Primadophilus Reuteri. A small bottle refrigerated with maybe 30 capsules. Taken once daily. Something like that.

    Anyway I needed to stay on it consistently to keep the BV at bay. It was an expense, so I also strategized by only taking it for a week or two around and after my period. This seemed to work. Mostly after my period was more important than before my period.

    I hope you find something that works for you. I refused to go the antibiotic route because its also costly and can cause yeast infections (a lot of women who experience repetitive BV cycle between yeast infections due to courses of antibiotic treatment, which is terrible).

    I also later made a connection between using the Nuva ring as my contraception to the BV being brought on. After consulting several gynecologists and two friends who have also used the ring, they noticed the ring itself is quite harsh in the local area that it's placed - your vagina. And it sort of burns itself into your tract. It's strange. So unfortunate as it was an incredibly reliable and convenient form of protection from unwanted pregnancy!


    Good luck.
    Louise

  15. #15
    ICN Member pen2005pal's Avatar
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    Louise,

    That is EXCELLENT advice! You are a very smart girl. I really mean that. I haven't had it in years but I found that Natures Way on Amazon and I am going to buy it just to remain healthier.. among the many other supplements I already take. Thank you for that great advice!!

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