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  1. #1
    ICN Member Notgivingup0702's Avatar
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    Had trigger point injections today and have some questions..

    Hi guys- As some of you may know, I am in the midst of a major flare that started on May 31st for reasons unknown. I was doing really well for a few months and then it just hit me out of the blue. Infection has been ruled out twice since May 31st..... Anyway, the uro-gyn did "trigger point injections" inside of my vagina today because she was kind of at a loss as to what to do to get me out of this flare. It hurt tremendously, bur if it gets me out of the flare, it's worth it. My question is, does anyone know how long the therapeutic benefits of the injections are supposed to last? (I can feel the marcaine she injected waring off already)....Also, has anyone had this procedure and it truly "stopped" the flare and were able to get back on the path to healing?

  2. #2
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    TP injections

    Trigger point therapy covers a huge field--I have been a patient using it for years for non-IC problems (back, shoulder...)--best book is by Dr Janet Travel, another by Dr Robert Gerwin--see amazon
    TP injections can be with local anesthetic, botox, or "dry needling". These treatments relax spasms,but should be done in a comprehensive fashion--not just at random
    Usually TR" manual "myotherapy is used initially to get most TP calmed down--then the real culprits left can be injected--unless specific stretches are done in conjunction with injections, there will probably be no long term benefit
    You may want to read a bunch on myofascial pain syndrome and myofascial trigger point myotherapy which is the basis for injections--helps to understand what is going on.

    I am looking for info on visceral manipulation

  3. #3
    ICN Member Snowden1's Avatar
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    Hi,
    I had vaginal trigger point injections done. I wasn't really sedated for it. That day it didn't hurt. The next day hurt badly. I did not see any benefit from them at all. After calling in pain the next day the Dr. said, I was no longer a candidate. I really hope your experience goes better. I had some bleeding after mine too. Let me know how you are. They do work well for some people.
    Teresa

    We are not HUMAN BEINGS going through a temporary SPIRITUAL EXPERIENCE. We are SPIRITUAL BEINGS going through a temporary HUMAN EXPERIENCE....so that we may become more SPIRITUAL.

  4. #4
    ICN Member Notgivingup0702's Avatar
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    Sadly, I am not getting better. I am getting worse. No one knows why. They want to do another round of trigger point injections before my PT session on Friday. I am hoping I am making the right decision in going through with this.

  5. #5
    ICN Member skybluesoul's Avatar
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    I've been getting trigger point injections since December. They helped me tremendously in conjunction with physical therapy. In fact, I've been noticing a relapse of my PFD, and I think it's because I'm not doing my PT exercises at home as often as I should be. Anyway, just wanted to say that they have worked for me. They're very painful of course, but for now I'm going to continue getting them.

  6. #6
    ICN Member callie0767's Avatar
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    how are the trigger point injections i know they are painful but do they give u anything before hand? i have an appt w a new specialist in michigan(i live in indiana) and they suggested that may be one of my options since i havent tried it yet but am nervous about them. how often do u get them and how long do they help? thanks
    courtenay

  7. #7
    ICN Member skybluesoul's Avatar
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    Notgivingup,

    I'm sorry the injections aren't working for you. It might take a few rounds for you to feel a difference -- it did for me. I hope you find something that does work soon.



    Courtenay,

    For me they inject each point at least twice, first with a numbing agent (lidocaine, I think), then with traumeel. If the area is still tight, they will keep injecting until it relaxes. The lidocaine is the only thing I get for the pain, and it really doesn't soften it much at all. I just kind of grit my teeth, scream, and squeeze my husband's hand if he's in the room. The tighter your pelvic floor is, the more they will hurt. I usually get them once or twice a month. When I first started, it was every other week, then it tapered down to every 3-5 weeks. Sometimes I'm sore for a few days, but most times I just have a little bleeding but feel fine. It's hard to gauge how long they provide relief -- but at least a few weeks to a month. It's been about 4 weeks since I last had them, and I'm starting to feel tight again. I'm going again next week.

    I was very scared also before I got them done the first time, but now I guess you could say I'm used to getting them. I would suggest trying them because they may help you feel better for a time.

    -Amanda

  8. #8
    ICN Member callie0767's Avatar
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    thank you amanda for your reply. good to know u were scared and nervous . did they have to inject you more than once on your first time? thats what i am scared of along w just getting the injections but hopeful they help me. my pelvic floor muscles have been tense for a long time (2 to 3 yrs). my old pt thought they might never settle down. shes suggested i go to another pt because its been 3 years and she cant do much more w me. i got into a pt in indianapolis which is about an hour and a half from here but not until sept which seems like forever lol
    courtenay

  9. #9
    ICN Member skybluesoul's Avatar
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    Hmmm.....the first time, I think I got about 6 injections total. My pelvic floor has also been tight for years, so it's not impossible to find something that works. It's just hard that it's not a quick fix -- you have to keep working at it, and not give up the pt like I did for a bit.

    I'm no stranger to long drives too -- my urogyno is an hour and a half from me. Luckily, my pt was local, but I've stopped seeing her in the office (had lots of insurance issues) and am trying to get back into my home program. I hope the injections work for you!

    -Amanda

  10. #10
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    I had manual trigger point work on the areas where that is not too unpleasant a thing, such as abdomen and thighs; but TP injections in areas where deep massage would have been pretty nasty, like anal and vaginal areas. The idea in the end is to soften and lengthen the spastic, hypertonic muscles of the pelvic floor.
    For one thing, there are lots of pelvic floor muscles, and if the ones they hit are not the ones causing your main symptoms, softening up that muscle is not going to give you the result you want. For another thing, what made the muscle have trigger points in the first place? If the underlying problem is still there, you will get temporary relief for a few weeks from the injection, and then form more trigger points and get tight again.
    My trigger point work was not lasting until I had a pelvic joint dysfunction corrected, because that is what was underlying. Other causes of trigger points that keep coming back, may be problems with your gait or posture, or unconscious voluntary contraction of the pelvic muscles due to habit or when under emotional stress.
    Also some of the pelvic floor muscles are not very accessible, either by manual work or injection, because they are deeper within the pelvis. These require deep intravaginal or intraanal work, or injection with a VERY long needle by an anesthesiologist under fluoroscopic, ultrasound, or open MRI guidance.
    So, while TP injections can be a good part of a plan of pelvic floor care, they have to be planned in a way that makes sense in the context of what is going on in your pelvis...sometimes this ia difficult to figure out, and they just have to kind of experiment to see what works. So don't be discouraged if one particular set of injections was not helpful...you have that information now - make sure you keep notes on what muscles have been worked on and what results were achieved; and if any relief how long it lasted.

  11. #11
    ICN Member Notgivingup0702's Avatar
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    Thanks Karen. I had my second round of trigger point injections, followed by PT and I really don't think my pelvic floor is the main issue causing my IC. The photos of my bladder when I had the cysto/hydro in Nov 09 were just AWFUL... Bloody and terribly damaged. I am inclined to think it's more of a straight up bladder issue than a 100% pelvic floor issue. I was doing GREAT for a few months (doing instillations, diet, bladder retraining) and then this happened out of the blue. I am starting to think this isn't a flare at all, but rather that I was in a "remision" and now it is back full force. There is talk of doing Botox injections if this doesn't work, but I don't want to do that. I just can't believe after months of progressively getting better (and only waking up once per night) I am back to absolutely horrible. It is so disheartening.

  12. #12
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    notgivingup0702,
    in response to your PM I tried to send you a long detailed one, and got this message from the IC network:
    "Notgivingup0702 has exceeded their stored private messages quota and cannot accept further messages until they clear some space."
    I have the message saved, for when you have erased some stuff from your inbox, just let me know Karen

  13. #13
    ICN Member Notgivingup0702's Avatar
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    Thanks Karen! I cleared out some messages, so send away!

  14. #14
    ICN Member callie0767's Avatar
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    thanks for the info on trigger point injections.i am considering them but very nervous about it.my pt seems to think my bladder spasms are causing the pelvic floor probs.she cant do any more so im going somewhere else but cant get in till sept. in the meantime im going to michigan(im from indiana) for my bladder at the end of july. excited but nervous anyother info would be appreciated
    courtenay

  15. #15
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    Callie,
    Did your PT mention anything about your pelvis seeming misaligned in any way, or pelvic landmarks out of place, pelvis "anterior rotated", or any such thing...or did she make an assessment of your pelvic bones / joints at all? Just wondering because as I mentioned in previous post, I had joint dysfunction underlying the spasticity of my pelvic floor muscles and need the pelvic joints fixed before the muscles would respond well to PT. I got this done through the Hesch Method of Manual Therapy,; and there are several practitioners of Hesch Method in Indiana. I could provide you with some specific practitioner names, if you have any reason to believe you have pelvic joint dysfunction - either from anything the PT said, or legs of 2 different lengths, or any kind of joint problem in neck, back, knees etc, use of chiropractic care: basically, any kind of joint problem at all suggests a possible pelvic problem as the pelvis is the center of the skeletal system and other joints in the body compensate when it is misaligned.

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