Thread: Philly, PA Dr?
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04-07-2010, 07:57 PM #1
Philly, PA Dr?
Anyone have a Dr that does trigger point injections into the vestibule? or anyone know of someone on the East coast that does these?
thanksLast edited by ICNDonna; 04-08-2010 at 01:28 AM.

Lyme disease diagnosed 11/05
vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
IC diagnosed with hydro/cysto- may 17, 2006
Over growth of lactobicilli found 8/07 treating with doxy.
Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:
8/22/07- was able to get my first speculum exam, with pap
Strep D found in bladder with United medical labs May 2006
2 strains of strep in stool culture 9/06
high Strep ASO titre found 10/06
NEW MED
Capsasin cream-once a day for 20min,
BUt wont lie it does burn
About to start valium supositories for PFD
Trigger point injections- oct 07
Current meds:
Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
Zanaflex 2mg
IC and low oxalate diet, no sugar diet
Xanax for appointments to help relax me since they cause so much pain
Started PT 3/07, PT has really helped me in ways I never knew that it would
Meds ive tried
Lyrica
Klonopin
Singulair
Claritin
Pyridium
Soma- can barely tolerate half a pill
Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
Estradiol cream
Urelle- caused worse bladder spasm and retention
Various antibiotics for lyme which caused yeast and made the IC and VV worse
waiting for the next chronic illness to pop up
"Did you know?
Every 15 seconds,
a person is
diagnosed with
interstitial cystitis."
Source: J. Dimitrakov, MD
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04-08-2010, 06:21 AM #2ICN Member
- Join Date
- Oct 2008
- Location
- Pennsylvania
- Posts
- 1,546
I had this done at a previous urologist's office & it was horrible & it didn't help me. What did, & does help me is having physical therapy for my pelvic floor. My therapist includes internal work for my trigger points & this really helps. Her name is Erica Fletcher & she is right outside of Philly in Narberth,
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04-08-2010, 06:24 AM #3
Who was your urologist?
I have heard some good things about Erica- she doesnt take my insurance though... PT has helped me too but the combo of the vulva injections and PT really helped.
Do you see a Uro other than Dr W?
Lyme disease diagnosed 11/05
vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
IC diagnosed with hydro/cysto- may 17, 2006
Over growth of lactobicilli found 8/07 treating with doxy.
Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:
8/22/07- was able to get my first speculum exam, with pap
Strep D found in bladder with United medical labs May 2006
2 strains of strep in stool culture 9/06
high Strep ASO titre found 10/06
NEW MED
Capsasin cream-once a day for 20min,
BUt wont lie it does burn
About to start valium supositories for PFD
Trigger point injections- oct 07
Current meds:
Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
Zanaflex 2mg
IC and low oxalate diet, no sugar diet
Xanax for appointments to help relax me since they cause so much pain
Started PT 3/07, PT has really helped me in ways I never knew that it would
Meds ive tried
Lyrica
Klonopin
Singulair
Claritin
Pyridium
Soma- can barely tolerate half a pill
Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
Estradiol cream
Urelle- caused worse bladder spasm and retention
Various antibiotics for lyme which caused yeast and made the IC and VV worse
waiting for the next chronic illness to pop up
"Did you know?
Every 15 seconds,
a person is
diagnosed with
interstitial cystitis."
Source: J. Dimitrakov, MD
-
04-08-2010, 06:45 AM #4ICN Member
- Join Date
- Oct 2008
- Location
- Pennsylvania
- Posts
- 1,546
Erica doesn't take my insurance either. It has been a sacrifice financially to see her, but it has been worth it. I see Dr. Hanno down at HUP. He is wonderful. I sent you a pm.
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05-02-2010, 09:53 AM #5
I haven't been on here in awhile, or I would have responded earlier. But, Dr. Susan Kellogg in Philly does the trigger point injections. She is in the practice with Dr. Kristine Whitmore. They are top IC/Vulvodynia specialists. The injections really helped me. I have gone through them twice. She is hard to get in to see right away, but Amy or Jen, the NP's can also do them, and they are very good, nice, and understanding.
I also saw Erica Fletcher for pt. If you are out near chester county, I now see Rachel Miller in Downingtown (Empower Physical Therapy). I think she is even better.
LynIC - dx in 2001
Vulvodynia - dx in 2006
"The way I see it, if you want the rainbow, you gotta put up with the rain." Dolly Parton
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05-02-2010, 01:52 PM #6ICN Member
- Join Date
- Oct 2008
- Location
- Pennsylvania
- Posts
- 1,546
Susan Kellogg is not a medical doctor. She is a PhD. But her title Dr. is a correct one. I just wanted to clarify in case someone thought she was an M.D.
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05-30-2010, 07:45 PM #7
I would have recommend Dr. Whitmore office they do the trigger point injections. She is in the practice with other NP's but i see them monthly the office can be crazy but its worth it they kno what they are doing.
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12-09-2010, 05:56 AM #8
Dr Echenberg also does the trigger point injections but he is out in Bethlehem and I dont know if thats within a decent distance for you . I used to get them once a week , and also injections in both abdomen sides foe nerve damage there as well . It did wonders for my POudendal nerve damage ! Before I started those shots I felt like my vagina & rectum was constantly being shocked , it was excruciating . Dr Echenberg is a God send , he helped me so much but I dont see him anymore because the 2 hour drive was killing me . I hope you have luck where ever you may go , and Thank you to whom ever mentioned Whitmore's office , I think Ill make an appt there

Lauren
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09-07-2011, 03:44 AM #9ICN Member
- Join Date
- Jan 2010
- Location
- bellefonte pennsylvania
- Posts
- 10
i live in state college pa and have had issues with docs for years i finally went to dr. philip hanno in philadelphia and he is absolutely wonderful,i am diagnosed with sever ic, ibs,fibro,vulvo,chronic pain syndrom,pelvic floor spasms,chronic fatigue,severe anxiety and depression,retention frequency, i have tried everything and nothing has helped still tryin to get it all situated and get the right docs and meds i need but i am only 24 and that is a problem for docs aorund me but dr.hanno was extremely careing and i felt very comfortable with him go back to see him in 2 weeks
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09-09-2011, 05:29 AM #10ICN Member
- Join Date
- Oct 2008
- Location
- Pennsylvania
- Posts
- 1,546
Dr. Hanno is my urologist too. I was blessed to have found him.
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09-09-2011, 07:15 AM #11
Dr hanno
Karenanne,
I just started with dr hanno. I am curious what he has you doing as far as treatments?? He started me on dmso's and i had my second one this week.
Thanks
JennyThanks for your support, Jennymm
meds I am on
DMSO - will be done oct. 5
Lyrica 100 am / 100 mg pm
continous birth contol no periods, seasonique
urelle 3 x day
Clonazapam .5 mg
valium suppositories
Voltaren cream
pelvic floor phys therapy
conditions: IC, tight pelvic floor (getting better), freq/ urg, severe pain when holding it, urinate about every 20 minutes ( even at night) to get 5 minutes painfree, infertility, endometriosis, 2 miscarriages, 2 ectopics
PROUD MOM OF MY SWEET LITTLE BOY FROM TAIWAN, ADOPTED JUNE 28, 2008 at 5 MONTHS OLD
I have tried everything except interstim, botox, bladder diversion.
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09-09-2011, 08:15 AM #12ICN Member
- Join Date
- Oct 2008
- Location
- Pennsylvania
- Posts
- 1,546
Jenny: He started me with amitriptyline & luckily I responded to it pretty fast. I do not have Hunner's ulcers. Don't know if you do. He also prescribed physical therapy for the pelvic floor. And I stay pretty strict on the diet.
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09-10-2011, 04:55 AM #13
KarenAnne
Hi, i have done my circuit of docs for the last 10 years since we moved here. I am 38 yrs old now. I was on amitriptyline for 8 yrs and it helped alot. Not perfect but better. Then I got a really bad reaction to it and had to stop. Saw 3 or 4 docs ... They put me on everything under the sun, nothing worked. Also had another hydro and he (not hanno) damaged my bladder. Now i am w/ hanno doing dmso. Oh my gosh, they hurt. I wondered if he did that with you too but i think I am past the meds stage so now its dmso , next botox if that doesnt work

I did the pelvic floor therapy and it was helpful as well.
Are you in chester county? I just started a support group in downingtown. Its alot of fun and really encouraging. The woman are great. Let me know if its something you would like to do and i will give you my email.
JennyThanks for your support, Jennymm
meds I am on
DMSO - will be done oct. 5
Lyrica 100 am / 100 mg pm
continous birth contol no periods, seasonique
urelle 3 x day
Clonazapam .5 mg
valium suppositories
Voltaren cream
pelvic floor phys therapy
conditions: IC, tight pelvic floor (getting better), freq/ urg, severe pain when holding it, urinate about every 20 minutes ( even at night) to get 5 minutes painfree, infertility, endometriosis, 2 miscarriages, 2 ectopics
PROUD MOM OF MY SWEET LITTLE BOY FROM TAIWAN, ADOPTED JUNE 28, 2008 at 5 MONTHS OLD
I have tried everything except interstim, botox, bladder diversion.
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09-13-2011, 09:04 PM #14ICN Member
- Join Date
- Feb 2007
- Posts
- 7
PT's in Philly area
I have also heard good things about Rachel Miller but have personal experience with Jackie Suniaga (Jackie Hajinian) at Main Line Spine in King of Prussia. Very kind, caring and excellent with IC and pelvic floor issues.
Jamie
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08-12-2012, 06:02 AM #15
Hi Philly people! I know it is a bit of a drive, but I am speaking and doing a book signing at the Central NJ IC Support Group on October 9, 2012: https://www.facebook.com/events/263493670429623/ Hope to see you there!
To learn more, contact Michelle Brill at Brillo4@aol.com!Hugs, Julie B
Do you need help figuring out the IC Diet? I also do phone, Skype, or Facetime consultations through the ICN. Learn more here...
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