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Thread: Philly, PA Dr?

  1. #1
    ICN Member mich2604's Avatar
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    Location
    PA
    Posts
    505

    Philly, PA Dr?

    Anyone have a Dr that does trigger point injections into the vestibule? or anyone know of someone on the East coast that does these?

    thanks
    Last edited by ICNDonna; 04-08-2010 at 01:28 AM.


    Lyme disease diagnosed 11/05
    vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
    IC diagnosed with hydro/cysto- may 17, 2006

    Over growth of lactobicilli found 8/07 treating with doxy.

    Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

    8/22/07- was able to get my first speculum exam, with pap

    Strep D found in bladder with United medical labs May 2006
    2 strains of strep in stool culture 9/06
    high Strep ASO titre found 10/06

    NEW MED

    Capsasin cream-once a day for 20min,
    BUt wont lie it does burn

    About to start valium supositories for PFD

    Trigger point injections- oct 07

    Current meds:
    Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
    Zanaflex 2mg
    IC and low oxalate diet, no sugar diet
    Xanax for appointments to help relax me since they cause so much pain

    Started PT 3/07, PT has really helped me in ways I never knew that it would

    Meds ive tried
    Lyrica
    Klonopin
    Singulair
    Claritin
    Pyridium
    Soma- can barely tolerate half a pill
    Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
    Estradiol cream
    Urelle- caused worse bladder spasm and retention

    Various antibiotics for lyme which caused yeast and made the IC and VV worse

    waiting for the next chronic illness to pop up


    "Did you know?
    Every 15 seconds,
    a person is
    diagnosed with
    interstitial cystitis."
    Source: J. Dimitrakov, MD

  2. #2
    ICN Member
    Join Date
    Oct 2008
    Location
    Pennsylvania
    Posts
    1,546
    I had this done at a previous urologist's office & it was horrible & it didn't help me. What did, & does help me is having physical therapy for my pelvic floor. My therapist includes internal work for my trigger points & this really helps. Her name is Erica Fletcher & she is right outside of Philly in Narberth,

  3. #3
    ICN Member mich2604's Avatar
    Join Date
    Jan 2006
    Location
    PA
    Posts
    505
    Who was your urologist?

    I have heard some good things about Erica- she doesnt take my insurance though... PT has helped me too but the combo of the vulva injections and PT really helped.

    Do you see a Uro other than Dr W?


    Lyme disease diagnosed 11/05
    vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
    IC diagnosed with hydro/cysto- may 17, 2006

    Over growth of lactobicilli found 8/07 treating with doxy.

    Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

    8/22/07- was able to get my first speculum exam, with pap

    Strep D found in bladder with United medical labs May 2006
    2 strains of strep in stool culture 9/06
    high Strep ASO titre found 10/06

    NEW MED

    Capsasin cream-once a day for 20min,
    BUt wont lie it does burn

    About to start valium supositories for PFD

    Trigger point injections- oct 07

    Current meds:
    Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
    Zanaflex 2mg
    IC and low oxalate diet, no sugar diet
    Xanax for appointments to help relax me since they cause so much pain

    Started PT 3/07, PT has really helped me in ways I never knew that it would

    Meds ive tried
    Lyrica
    Klonopin
    Singulair
    Claritin
    Pyridium
    Soma- can barely tolerate half a pill
    Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
    Estradiol cream
    Urelle- caused worse bladder spasm and retention

    Various antibiotics for lyme which caused yeast and made the IC and VV worse

    waiting for the next chronic illness to pop up


    "Did you know?
    Every 15 seconds,
    a person is
    diagnosed with
    interstitial cystitis."
    Source: J. Dimitrakov, MD

  4. #4
    ICN Member
    Join Date
    Oct 2008
    Location
    Pennsylvania
    Posts
    1,546
    Erica doesn't take my insurance either. It has been a sacrifice financially to see her, but it has been worth it. I see Dr. Hanno down at HUP. He is wonderful. I sent you a pm.

  5. #5
    ICN Member Lyn40's Avatar
    Join Date
    Apr 2002
    Location
    PA
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    408
    I haven't been on here in awhile, or I would have responded earlier. But, Dr. Susan Kellogg in Philly does the trigger point injections. She is in the practice with Dr. Kristine Whitmore. They are top IC/Vulvodynia specialists. The injections really helped me. I have gone through them twice. She is hard to get in to see right away, but Amy or Jen, the NP's can also do them, and they are very good, nice, and understanding.

    I also saw Erica Fletcher for pt. If you are out near chester county, I now see Rachel Miller in Downingtown (Empower Physical Therapy). I think she is even better.

    Lyn
    IC - dx in 2001
    Vulvodynia - dx in 2006

    "The way I see it, if you want the rainbow, you gotta put up with the rain." Dolly Parton

  6. #6
    ICN Member
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    Pennsylvania
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    Susan Kellogg is not a medical doctor. She is a PhD. But her title Dr. is a correct one. I just wanted to clarify in case someone thought she was an M.D.

  7. #7
    ICN Member Bronx's Avatar
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    Feb 2010
    Location
    Philadelphia, PA
    Posts
    20
    I would have recommend Dr. Whitmore office they do the trigger point injections. She is in the practice with other NP's but i see them monthly the office can be crazy but its worth it they kno what they are doing.

  8. #8
    ICN Member crkshnks79's Avatar
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    Apr 2008
    Location
    Boothwyn , PA
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    Dr Echenberg also does the trigger point injections but he is out in Bethlehem and I dont know if thats within a decent distance for you . I used to get them once a week , and also injections in both abdomen sides foe nerve damage there as well . It did wonders for my POudendal nerve damage ! Before I started those shots I felt like my vagina & rectum was constantly being shocked , it was excruciating . Dr Echenberg is a God send , he helped me so much but I dont see him anymore because the 2 hour drive was killing me . I hope you have luck where ever you may go , and Thank you to whom ever mentioned Whitmore's office , I think Ill make an appt there


    Lauren

  9. #9
    ICN Member
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    bellefonte pennsylvania
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    i live in state college pa and have had issues with docs for years i finally went to dr. philip hanno in philadelphia and he is absolutely wonderful,i am diagnosed with sever ic, ibs,fibro,vulvo,chronic pain syndrom,pelvic floor spasms,chronic fatigue,severe anxiety and depression,retention frequency, i have tried everything and nothing has helped still tryin to get it all situated and get the right docs and meds i need but i am only 24 and that is a problem for docs aorund me but dr.hanno was extremely careing and i felt very comfortable with him go back to see him in 2 weeks

  10. #10
    ICN Member
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    Dr. Hanno is my urologist too. I was blessed to have found him.

  11. #11
    ICN Member jennymm's Avatar
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    Near Philadelphia
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    Dr hanno

    Karenanne,
    I just started with dr hanno. I am curious what he has you doing as far as treatments?? He started me on dmso's and i had my second one this week.
    Thanks
    Jenny
    Thanks for your support, Jennymm
    meds I am on
    DMSO - will be done oct. 5
    Lyrica 100 am / 100 mg pm
    continous birth contol no periods, seasonique
    urelle 3 x day
    Clonazapam .5 mg
    valium suppositories
    Voltaren cream
    pelvic floor phys therapy
    conditions: IC, tight pelvic floor (getting better), freq/ urg, severe pain when holding it, urinate about every 20 minutes ( even at night) to get 5 minutes painfree, infertility, endometriosis, 2 miscarriages, 2 ectopics
    PROUD MOM OF MY SWEET LITTLE BOY FROM TAIWAN, ADOPTED JUNE 28, 2008 at 5 MONTHS OLD
    I have tried everything except interstim, botox, bladder diversion.

  12. #12
    ICN Member
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    Jenny: He started me with amitriptyline & luckily I responded to it pretty fast. I do not have Hunner's ulcers. Don't know if you do. He also prescribed physical therapy for the pelvic floor. And I stay pretty strict on the diet.

  13. #13
    ICN Member jennymm's Avatar
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    KarenAnne

    Hi, i have done my circuit of docs for the last 10 years since we moved here. I am 38 yrs old now. I was on amitriptyline for 8 yrs and it helped alot. Not perfect but better. Then I got a really bad reaction to it and had to stop. Saw 3 or 4 docs ... They put me on everything under the sun, nothing worked. Also had another hydro and he (not hanno) damaged my bladder. Now i am w/ hanno doing dmso. Oh my gosh, they hurt. I wondered if he did that with you too but i think I am past the meds stage so now its dmso , next botox if that doesnt work
    I did the pelvic floor therapy and it was helpful as well.
    Are you in chester county? I just started a support group in downingtown. Its alot of fun and really encouraging. The woman are great. Let me know if its something you would like to do and i will give you my email.
    Jenny
    Thanks for your support, Jennymm
    meds I am on
    DMSO - will be done oct. 5
    Lyrica 100 am / 100 mg pm
    continous birth contol no periods, seasonique
    urelle 3 x day
    Clonazapam .5 mg
    valium suppositories
    Voltaren cream
    pelvic floor phys therapy
    conditions: IC, tight pelvic floor (getting better), freq/ urg, severe pain when holding it, urinate about every 20 minutes ( even at night) to get 5 minutes painfree, infertility, endometriosis, 2 miscarriages, 2 ectopics
    PROUD MOM OF MY SWEET LITTLE BOY FROM TAIWAN, ADOPTED JUNE 28, 2008 at 5 MONTHS OLD
    I have tried everything except interstim, botox, bladder diversion.

  14. #14
    ICN Member
    Join Date
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    7

    PT's in Philly area

    I have also heard good things about Rachel Miller but have personal experience with Jackie Suniaga (Jackie Hajinian) at Main Line Spine in King of Prussia. Very kind, caring and excellent with IC and pelvic floor issues.

    Jamie

  15. #15
    Support Leader Julie B's Avatar
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    Hi Philly people! I know it is a bit of a drive, but I am speaking and doing a book signing at the Central NJ IC Support Group on October 9, 2012: https://www.facebook.com/events/263493670429623/ Hope to see you there!

    To learn more, contact Michelle Brill at Brillo4@aol.com!
    Hugs, Julie B

    Do you need help figuring out the IC Diet? I also do phone, Skype, or Facetime consultations through the ICN. Learn more here...

    Join the IC Diet Facebook Group!

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