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Thread: Doing better
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02-16-2010, 06:28 PM #1ICN Member
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- Jun 2009
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- Maui
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Doing better
I am feeling better. I'm not sure why, just getting a little bit better day by day. I'm thinking now that I have PFD and not IC. I don't seem to have any food sensitivities. Light exercise (mostly walking) seems to help me. I've been stretching and taking a lot of supplements.
I feel very lucky.
I wish all of you relief from your illnesses.
Don't give up hope.
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02-17-2010, 03:23 AM #2Forum Manager
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- Mar 2000
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That's good to hear.
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
.....My Meggie.....
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02-18-2010, 05:57 AM #3ICN Member
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- Mar 2004
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- N. Idaho
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- 4,372
That's wonderful! I hope things continue to improve for you!
Vicki"The happiest people don't necessarily have the best of everything; they just make the best of everything they have."
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02-18-2010, 05:02 PM #4ICN Member
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- Mar 2006
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- East Central IL (near Champaign and Bloomington)
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- 1,697
Im so happy for you! Its nice to see success stories!:woohoo:
Meds: Percocet PRN; Pyridium PRN. First symptoms Dec 2005. Diagnosed in March 2006.
I am the proud mom of a two year old boy! I was lucky enough to be in remission my entire pregnancy. If you have any questions regarding my pregancy, delivery, breastfeeding, or pumping, feel free to contact me!
Im on Facebook! Just tell me you are from the ICN. Look me up under Kim Wayne.
I love working as a CNA in a nursing home. Started school in August part time. Going for my LPN!!!!
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02-19-2010, 05:55 AM #5ICN Member
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- Mar 2009
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- 9
Heather, I have PFD as well; I can't get a concrete answer on the IC yet. May I ask what supplements you are taking that you find to be helpful?
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02-19-2010, 02:16 PM #6ICN Member
- Join Date
- Oct 2002
- Location
- Seattle
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- 1,133
good to hear
That is great news that the stretching is working. A few good books out there that go into detail about strething the pelvic muscles and trigger points. So much of that stretching stuff based on yoga.
42 years IC. 2013 tried liposome instillations at California Stem Cell TC and the pain I guess from the catheter was too much. I tried 3 times. I am going to stick with trying a few old medications for now - hyomax and try vaginal valium. I still think herbs are so much safer than drugs.(I took an overview course a few years ago.) But there is so much little research on herbal remedies for this complex disease and people in pain need help as soon as possible, therefore RX drugs are necessary. I myself was trying elmiron (after cystoprotek and aloe vera did not seem to coat the bladder for me) Back to herbs, if you think that your IC is caused by histamines and allergies, etc, there are many researched herbs and herb formulas for that type of thing so perhaps that may be a path for you. But since IC is so complex, those herbs may not help. Perhaps if you think you are getting infections, there may be herbs that could deal with chronic, drug resistance problems but you would need some professional guidence. I believe I keep inflammation down by taking cucurmin extract, and other anti-inflammatory herbs - there are many good ones. You SHOULD find some that agree with you and your medication protocol if possible.
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02-19-2010, 06:06 PM #7ICN Member
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- Jun 2009
- Location
- Maui
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- 54
supplements
I'm taking Vit. B, L-arginine, Vit. A, acidophilus, psyllium husk, fish oil, magnesium, and Vit. C when I'm fighting a cold (like now.) It is a lot of pills, but I usually remember them. I'm not really sure which ones are helping. Most of them were recommended by my ob/gyn. I tried to start them a few days apart, but the improvement has been gradual, so it's hard to tell. I started with the mag., 'cause I had read on here that other people had had success with it. I will just keep taking them all for awhile and hope I keep getting better. I tried aloe, but it seemed to make me worse and I've been afraid to try it again.
Thank you all for your support.
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02-20-2010, 07:09 AM #8ICN Member
- Join Date
- May 2009
- Location
- North Texas
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- 537
That's great news.! I hope continue to get better.
Rebekah - Diagnosed with IC and Hunner's Ulcers in March 2009
Two Hunner's Ulcers were removed by laser surgery surgery Jan 15 , 2010
Proud Mother of Jeremy Jr. Born on Wed May 4, 2011
"For every door that is closed a new one is opened"
The Lord's Prayer
Our Father, who art in heaven,
Hallowed be thy Name.
Thy kingdom come.
Thy will be done,
On earth as it is in heaven.
Give us this day our daily bread.
And forgive us our trespasses,
As we forgive those who trespass against us.
And lead us not into temptation,
But deliver us from evil.
[For thine is the kingdom,
and the power, and the glory,
for ever and ever.]
Amen.
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