04-28-2004, 08:07 AM #1
The URO just put me on Ditropan XL
Hoping it will help with the frequency. Sometimes I go as much as 20 or more times per day and it is so disrupting my life. I have heard alot of good things about the Ditropan.
Wish me luck!
I am a little confused though.....Is IC overactive bladder as well, or do just some people with IC have the overactive bladder...... I know you can have overactive bladder without IC. So then does Ditropan help IC???
~TRACEY~ Wife and Mother of three beautiful
04-28-2004, 01:05 PM #2
Overactive Bladder and Ditropan
I feel for you! I once went through a period where I was running to the bathroom 60 times a day, so I know what you're going through.
I've read a little about it, and overactive bladder and IC are 2 different conditions. In overactive bladder, the bladder contracts, or spasms, more than it should.
I think if you have IC, Ditropan probably won't help and may make you worse. Before I was diagnosed with IC, a clueless doc gave me Ditropan. BIG mistake! It made me worse, because it gave me urinary retention--I couldn't pee.
Good luck, and hang in there. Things will get better.
04-29-2004, 01:22 AM #3
Ditropan helps some people with IC and not others. I take it occasionally when I am having bladder spasms and the urgency is really bad... it kind of helps to take that and a pain med (although sometimes taking it and a pain med makes me jittery-- kind of odd, considering both have "drowsiness" as a side effect).
I also get into retention trouble if I take too much of it... I used to try to take a Ditropan XL (the long acting kind) every day to control my frequency. I found that it did not necessarily help the frequency, and I did start retaining more and more urine.
Now, I asked my uro to prescribe the regular Ditropans that are NOT long acting... and I only take one every now and then on an as-needed basis for spasms. That way, if I do begin to retain, it resolves itself better after 4-6 hrs when the pill wears off rather than 24 hours later when I'm in agony already!
However, some people with IC swear by Ditropan... I hope it works for you!!!****
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
04-29-2004, 01:57 AM #4
I was taking Ditropan XL at the beginning of my diagnosis but found the same thing happened to me - urine retention. But everyone is different. You should certainly try it!
04-29-2004, 03:20 AM #5
I could not take Ditropan or Detrol because of retention. I hope you are one of the fortunate ones for whom this works.Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
Link to the IC Diet:
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
04-29-2004, 03:54 AM #6
I was taking Ditropan Xl and it really helped me. The Detrol LA may me retain. After 2 months on the Ditropan I was getting nauseaed so I quit taking it. I don't know if that was the reason because a lot of people had the stomach flu and sick about the same time. It really helped me with the spasms. If I have another bad flare, I will probably start back on the Ditropan XL.
04-29-2004, 04:16 AM #7
IC and OAB are two separate conditions. I have both and I take Detrol LA for the OAB. I don't have any problems with retention, though -- it just settles my bladder down.Namaste
"You must be the change you want to see in the world." - Mahatma Gandhi
"The most important medicine is tender love and care" - Mother Teresa
Proud mother of Ahleia, born on April 9, 2007
IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!
Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35
Kripalu yoga, Chiropractic, Massage therapy and Reiki
04-29-2004, 04:28 AM #8
I was on ditropan too. I stopped taking it during the day though because it irritated my bladder more because of the urine sitting so long in my bladder. But it sure helps at night!! I love that stuff at night!
Good luck with it!
04-29-2004, 07:16 AM #9
Thanks so much everyone for your replies....
I will give a go, and we will see.:thumbsup:~TRACEY~ Wife and Mother of three beautiful
04-30-2004, 06:19 AM #10
I forgot to tell you that I do get bladder spasms occasionally. Then I take Levsinex. I don't remember the dose or type of Ditropan I was on--perhaps it was just too much or the wrong type. The others who replied are right--everybody's different, and it's worth trying. If it helped some of them, it might help you. I hope it does! Good luck, and let us know how it goes.
04-30-2004, 12:39 PM #11
That didn't last long.......
I have already had to stop the Ditropan XL unfortunately. It got so I couldn't pee! First I had to push the urine out and I thought that was wierd because I only get that during a bad flare and then I simply COULD NOT pee. Scarey.
I stopped it. I assume that is the retention.
It sure was uncomfortable. Now I can pee normally (and frequently again).
Thanks for all your replys everyone.
~TRACEY~ Wife and Mother of three beautiful
05-01-2004, 05:49 AM #12
Yep, that's the retention. Sorry it didn't work for you!. But something will--there are a lot of treatments and combos of treatments. Thanks for letting us know. Any idea what you'll do next?
05-01-2004, 06:31 AM #13
Uro said he will put me on Atarax next....
If the Ditropan didn't work out.
Does anyone know what a common dose of the Atarax is......?
:thumbsup:~TRACEY~ Wife and Mother of three beautiful
05-01-2004, 07:05 AM #14
I looked up the dose in a guest lecture on the ic-network. It's an interview in 2002 with Dr. Theoharis Theoharides, an IC specialist. He says he starts patients at 25 mg. at night, which they do for 1 or 2 weeks. Then they take 50 mgs. for 1 or 2 weeks. If the patient is feeling sedated, he keeps them at 50 mg. If she's not sedated, he has her go up to 75 mgs., usually 50 at bedtime and 25 sometime before noon. He says some docs start patients at 100 mg., which would "put an elephant to sleep!"
Hope this helps!
05-01-2004, 07:32 AM #15
Wow, sounds to me like huge dosages!
Sounds like alot! He will most likely start me at 25 mgs. then.
Be well!~TRACEY~ Wife and Mother of three beautiful
Users Browsing this Thread
There are currently 1 users browsing this thread. (0 members and 1 guests)