Thread: Talking with family
10-19-2009, 10:21 AM #1
- Join Date
- Oct 2009
Talking with family
Looking for people to tell their stories on how you discussed your IC with your families.
I have yet to tell my parents as I am waiting to see them in person and I am not sure what I will say. Not sure I want my dad to know - I am still his little girl.
Maybe I will take my mom out for a private talk first.
Anyway - I was just curious about your experiences and the responses that you got.
10-19-2009, 11:27 AM #2
I live in the same town as my parents so I had told them what was going on from when I first had symptoms. They have always been very, very supportive and understanding.
With other family I either explained IC as feeling like a horrible UTI that never goes away (some of the women could relate) or I would compare it to the feeling you get on a roadtrip when you have to pee SO badly, but there isn't a rest stop in sight. And then when you DO find a rest stop and pee - there is no relief. You still feel the way you did in the car on the Interstate. All the time.
I have always had a lot of understanding when I explain it. I know not everyone has had that experience, though.Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
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