Thread: Help referral needed asap
10-03-2009, 02:24 PM #1
- Join Date
- Jul 2007
Help referral needed asap
I live in North Orange County California. I have been seeing the same gyn for over 10 years. She's been Rxing regular Valium tabs per Dr. Brookoff's protocol for me for the last 15 months. Some of her staff have become too difficult to deal with; very unfortunate b/c I really liked her care, she trusted me b/c of our long term doc- patient relationship and it will be very hard to find another doc who will Rx the amounts needed for the Brookoff protocol--- it's cheap and I don't like the idea of messy suppositories.
10-04-2009, 03:18 AM #2
Before you change, I suggest you talk with the doctor about specific problems with her staff.
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
10-04-2009, 07:07 AM #3
I'm sorry your dr's staff has been difficult. I have dealt with the same but sometimes it is in our best interest to work things out if possible. Esp if you have been taking valium daily you don't want to be left without a dr to prescribe because discontinuing even a low daily dose taken regularly can leave you with intolerable and disabling withdrawals along with the pain of PFD. And finding another dr to prescribe valium is often difficult. I hope things get worked out for you.In remission since Aug 2009!
New to IC? read this--IC Treatment and Diagnostic Guidelines--American Urological Association
http://interstitial-cystitis-diet.bl...nosis-and.html *** http://www.auanet.org/content/guidel...ent_ic-bps.pdf
What helped me get to and stay in remission? stress reduction, diet, time, meditation, stress reduction, stress reduction, stress reduction!--I no longer take medications for IC, PFD,VV, anxiety, or depression. Making career and lifestyle changes to reduce stress and learning techniques to manage anxiety set the stage for my bladder to heal.
My history: No history of bladder issues***Onset of IC and VV sxs Nov 2003***Diagnosed Nov 2004 based on symptoms and hydro/biopsy results***Cysto-Hydro did not give therapeutic relief, I had complications and long recovery ***Hunner's Ulcers found and removed during hydro***Symptoms: the usual~pain, burning, spasms, frequency, urgency, nocturia, lower back and upper thigh pain, very bloated "IC Belly"
Treatments that helped my IC,VV,& PFD symptoms: pyridium, elavil, tylenol 3, ibuprofen, lidocaine gel and patches, cold packs, heating pad, diet, lots of water
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