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  1. #1
    ICN Member zanne's Avatar
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    rectal pain pressure...

    Does anyone ever have rectal pain/pressure...when it hurts to sit and you feel pressure when you stand? Just wonder if that is one of the symptoms of IC...I was dx 2 years ago and now I am having problems with rectal pain/pressure. I also had endo and 3 mos ago I had an abdominal supra cervical hysterectomy...I am feeling alot better since but now it seems I am having this pain/pressure when sitting. If its not IC I will probably have to go to an gastro doctor.

    Thanks for any info...
    Sue

  2. #2
    ICN Member maryla's Avatar
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    Sue,

    I have it ALL the time. My pt thinks it's spasms. I have PFD too and I have real bad colon and rectal spasms when I have a bm sometimes. I have vaginal valium suppositories and when it gets real bad I insert them rectally as well. Hope this hhelps.

    Hugs and blessings
    MARY


    Serenity isn't freedom from the storm.....it's peace within the storm.....I had my sick bladder removed Jan 7th 2010.....Even though I had many complications.......I would do it again in a moment.....I have no regrets......Sunflowers in memory of my sister who passed March 14th 2010......they were her favorite....

  3. #3
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    I have anismus, (rectal spasms), levator(pelvic floor) too. Started after I was straining due to constipation and urinating so much. I used to have to sit on a pillow all the time, and couldnt walk more than 15 minutes at a time. I found relief with Baclofen( muscle relaxant, antispastic) 10 mg 3 times a day and 5% lidocaine ointment ( Valium didn't touch my rectal spasms). When I first had the symptoms my MD had to first put me on cymbalta because spasms were pinching my pudendal and I even had to lie down on couch to eat. Now I just take the baclofen and it stops the pain if I get a flare up. I Take peri colace if i get constipated.

    A good pelvic floor physical therapist will help calm and stretch those muscles . Mine has me use vaginal dilator, it stretches the rectal muscles as well

    My gastroenterologist diagnosed me but didn't know how to treat it.
    When I finally went to a uro gynecologist is when I started to get proper treatment.

    Good Luck
    current meds- ditropan 5mg xl, neurontin 300 mg. zanaflex for pelvic floor spasms Most meds, IC meds included, cause me bladder pain

    previous med- elmiron( nothing after 8 months), atarax ( to sleepy), ditropan ( retention), Cymbalta, cystoprotek( worsened flare) has helped many others, aloe vera ( worsened flare), lyrica( irritated bladder.

    interstim implant (reduces my ic pain)January,2007

  4. #4
    ICN Member zanne's Avatar
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    maryla and scrambles~

    Thanks for your responses....I will have to go back to my gastro dr I don't know of any uro gyne in my area...so I will see what he says. Thanks again..anyone else have this pain would love to hear more info.
    Thanks,
    Sue
    Dx with IC April 30 2007
    Dx with Endo Sept 2007
    Supra Cervical Hysterectomy April 9 2009

  5. #5
    ICN Member jameson77's Avatar
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    Hey Sue....
    Just wanted to let you know that i have the same problem. My PT has really worked on the tightness in the rectal area, specifically the levator muscles. I sit on a coccyx cushion that my PT recommended (PM me if you would like the website), as it helps me SO much while i am sitting behind a desk 8 hours a day. She has done internal PT which is a little awkware but really helps me. We are using the dilators next week. I just have to be careful about sitting too long and my PT recommends me using my cushion all the time, which of course can be hard to do. Let me know if you have any questions!
    Meredith
    Dx's: Moderate IC, PFD, Infertility, Chronic Lower Lumbar Issues/Sacroileitis.
    Current Meds: Gabapentin, Hydroxyzine, Zyrtec, Pyridium, Lidocaine/Sodium Bicarb/Elmiron At-Home Instills, Macrobid, Prilosec, 2% Lidocaine Gel, Ativan, Hydrocodone.
    Meds that Didn't Help: Ultram (Severe Retention), Tylenol 3 (Itch), Lyrica, Wellbutrin, Lexapro, Elavil.
    IC Handbook Link: http://www.ic-network.com/handbook/

  6. #6
    ICN Member zanne's Avatar
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    Meredith~

    Thanks for your response...what type of Doctor would I go see for this? I had endo and I had a supra cervical hysterectomy in April 2009, I just saw my surgeon for my 3 mos checkup and I mentioned this to him because I thought I had a hemorrhoid but he said it was just some loose skin. He really didn't say anything. It comes and goes...some days are really bad and some aren't bad.

    If you could advise who could diagnose me with this. I have a gastro doc I went to 2 years ago for a colonoscopy and they told me I had a hemorrhoid but I didn't know it at that time it wasn't painful and now it is starting to bother me but then I was told it wasn't a hemorrhoid.

    Thanks again for the info...so cushions do help when you sit. I know it is very painful sitting.

    Thanks again
    Sue
    Dx with IC April 30 2007
    Dx with Endo Sept 2007
    Supra Cervical Hysterectomy April 9 2009

  7. #7
    ICN Member Grammy's Avatar
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    rectal pressure

    This could be coming from prudendal nerve damage as sitting is one of the worst things for people like us. Big question--what happens when you lay down does the pain go away. It if does you should ask about pne as a possiblity for this pain. Most likely you will need to be on some sort of pain meds if the pain is horrible

  8. #8
    ICN Member zanne's Avatar
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    Thanks for all the responses....Does anyone know what type of Doctor I would go to for a diagnosis? Thanks for any info you can give me...

    Grammy~ Yes my pain subsides when I lay down.

    Sue
    Dx with IC April 30 2007
    Dx with Endo Sept 2007
    Supra Cervical Hysterectomy April 9 2009

  9. #9
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    Quote Originally Posted by zanne View Post
    Thanks for all the responses....Does anyone know what type of Doctor I would go to for a diagnosis? Thanks for any info you can give me...

    Grammy~ Yes my pain subsides when I lay down.

    Sue
    My tailbone pain does not go away when I lay down it seems permanent no matter what I do and I'm losing my mind.

    I'm really hoping my PT can help me knock this out of the box forever I have enough to deal with.

  10. #10
    ICN Member musiclover's Avatar
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    Before my urinary frequency even began, just a few weeks prior to it starting, I had such rectal pain. I thought maybe I had ulcers in there because it hurt so bad. I could't sit down, I definitely couldn't exercise, and even walking was a chore. I feel bad for you because I know the immense pain that it can cause. For me, it turned out to be pelvic floor dysfunction. I had physical therapy for several months, but it only took a few weeks to make that pain tolerable. Soaking in hot baths twice a day and stretching helped me a lot to get rid of that awful sensation.
    Update! Feeling much better these days and no longer on any meds!

    Pelvic pain began July 2008. Urinary frequency began in November of 2008. IC Doctor says I'm one of the worst frequency patients he has had.

    Things that helped me the most: IC Diet, Elavil (30mg), Elmiron since June '09 (500mg/day).

    Previously tried and quit: one series of six instillations, Neurontin, Ditropan, Oxytrol, electric stimulation to the pelvic floor, Desert Harvest Aloe, Cystoprotek and Flomax, Hydroxyzine (50mg), Alesse Birth control (this helped my period flares when my symptoms used to be bad), PTNS (I think this helped).

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  11. #11
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    Quote Originally Posted by musiclover View Post
    Before my urinary frequency even began, just a few weeks prior to it starting, I had such rectal pain. I thought maybe I had ulcers in there because it hurt so bad. I could't sit down, I definitely couldn't exercise, and even walking was a chore. I feel bad for you because I know the immense pain that it can cause. For me, it turned out to be pelvic floor dysfunction. I had physical therapy for several months, but it only took a few weeks to make that pain tolerable. Soaking in hot baths twice a day and stretching helped me a lot to get rid of that awful sensation.
    I'm seeing a Pt for pfd now and she's temporarily fixed this back thing before but it never stays fixed. I'm considering adding a chiropractor to the mix.

  12. #12
    ICN Member Katrina's Avatar
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    I can't get rid of this symptom but believe it to be mostly PFD ...to the degree of prudendal nerve damage in myself I hope not yet to the nerve directly but I know my muscles down there are in a lot of trouble....long story.

    I don't deni that in this group of people illiminating other things is a good idea but I guess is that your headed towards a physcial therapist and some tests to find out how bad things are as to if you need a further specialist.
    You had endo, surgery, and have IC...all three not good for the pelvic muscles and usually the diagnosis of PFD is easy as a biofeedback machine can tell you a lot about how your muscles are doing....if things are worse I would ask the PNE board.

    For a long time I brought a pillow with me where ever I went...that got to be problematic and while on Lyrica the pain has been less noticeable when out and about so now my main thing is sitting on a heating pad at home and in the car...which I do at odd temperatures but find helpful.

    I hope that things are simple for you and your path to relief is short!
    Faith, Hope, and Love,
    Katrina


    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
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