Latest Blog Article:
Results 1 to 8 of 8
  1. #1
    ICN Member maryla's Avatar
    Join Date
    Jul 2004
    Location
    dayton oh
    Posts
    1,285

    GABA-IC Treatment~YES!

    Advertisement :
    Hi all,

    Just wanted to let everyone know, My uro gave me a script for the GABA-IC treatment protocol., :woohoo: :woohoo: :woohoo: and I am asking for prayers. I'm one of those that nothing has helped....this is my last hope........for now anyway! I hope to start it next Monday and will keep everyone posted.

    Hugs and Blessings!
    MARY


    Serenity isn't freedom from the storm.....it's peace within the storm.....I had my sick bladder removed Jan 7th 2010.....Even though I had many complications.......I would do it again in a moment.....I have no regrets......Sunflowers in memory of my sister who passed March 14th 2010......they were her favorite....

  2. #2
    ICN Member Pucca's Avatar
    Join Date
    May 2008
    Location
    Baltimore, MD
    Posts
    143
    Mary, I didn't know what this treatment was so I googled it. It sounds promising, to say the least! Did your doctor suggest this, or did you learn about it some other way and suggest it to him? I'll be praying that this is what works for you. Please keep us posted.

  3. #3
    ICN Member maryla's Avatar
    Join Date
    Jul 2004
    Location
    dayton oh
    Posts
    1,285
    Pucca,

    It's something that I found that others were trying here with good results and I took the info to my uro and he said, "it sounds very promising" he's tried everything he can do as far as the usual treatments, and he's praying that it works for me too!

    Hugs and Blessings,
    MARY


    Serenity isn't freedom from the storm.....it's peace within the storm.....I had my sick bladder removed Jan 7th 2010.....Even though I had many complications.......I would do it again in a moment.....I have no regrets......Sunflowers in memory of my sister who passed March 14th 2010......they were her favorite....

  4. #4
    ICN Member maryla's Avatar
    Join Date
    Jul 2004
    Location
    dayton oh
    Posts
    1,285
    Hello all,

    I received my GABA-IC stuff today and I just did my first of 7 instill. Just a little burning and dizziness. But I'm praying it helps. Actually I just got off the phone with the pharmacist who invented the treatment protocol and it sounds more promising than ever from our conversation.

    Hugs and blessings,
    MARY


    Serenity isn't freedom from the storm.....it's peace within the storm.....I had my sick bladder removed Jan 7th 2010.....Even though I had many complications.......I would do it again in a moment.....I have no regrets......Sunflowers in memory of my sister who passed March 14th 2010......they were her favorite....

  5. #5
    ICN Member
    Join Date
    Jun 2008
    Location
    North Eastern Ohio
    Posts
    157
    Please keep us updated on your experience with the GABA-IC instillations. Good luck!
    Diagnosed with IC on 7/25/2008 via cysto/hydro.

    Elmiron -- 100 mg 2 times a day (began 7/28/08)
    Elmiron instills (began on 7/29/08) (I now receive instillations on an as-needed basis -- which is rarely. They helped a lot in the beginning!)
    Cystoprotek -- 2 pills once a day (began on 7/31/08)
    Hydroxyzine -- 50 mg at bedtime
    Following the IC diet (began 7/26/08) (I now cheat a lot and am usually okay...even with white wine, beer, tomatoes, chocolate, etc. Although I do always take Prelief first).
    Urelle as needed

    Symptoms: frequency, bladder pressure.

    So far I believe that one of my triggers is caffeine (coffee, diet soda, tea). Causes frequency.


    Voici mon secret. Il est tres simple: on ne voit bien qu'avec le coeur. L'essentiel est invisible pour les yeux ~ Le Petit Prince

    (Here is my secret. It is very simple. One can only see clearly with the heart. Everything that is essesntial is invisible to the eyes.)

  6. #6
    ICN Member Bluheaven's Avatar
    Join Date
    May 2009
    Location
    Aloha Oregon
    Posts
    112
    I'm curious as to what's in the stuff? It doesn't say on the website.
    Danielle

    Married July 26th!! :woohoo:
    IC and PFD
    Dx'd 4-23-09 via hydro-distention
    Meds: Elmiron - Atarax - Valium
    Meds as needed: Percocet - Dilaudid - Lidocaine -
    Other Treatments: IC Diet - PT - Stretches - Yoga - TENS Unit - Heating pad


    My BluHeaven: The Photos | The Blog

  7. #7
    ICN Member
    Join Date
    Oct 2002
    Location
    Seattle
    Posts
    1,183

    is it this patent?

    You can find patents online. This sounds like it might be it. It has gaba... in it.

    http://www.faqs.org/patents/app/20080275015
    I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.

  8. #8
    ICN Member Bluheaven's Avatar
    Join Date
    May 2009
    Location
    Aloha Oregon
    Posts
    112
    hmmmm... that sounds very interesting... and promising as well!

    I'd like to know how this works for you. I'm also going to see if my doc has heard of it.
    Danielle

    Married July 26th!! :woohoo:
    IC and PFD
    Dx'd 4-23-09 via hydro-distention
    Meds: Elmiron - Atarax - Valium
    Meds as needed: Percocet - Dilaudid - Lidocaine -
    Other Treatments: IC Diet - PT - Stretches - Yoga - TENS Unit - Heating pad


    My BluHeaven: The Photos | The Blog

Thread Information

Users Browsing this Thread

There are currently 1 users browsing this thread. (0 members and 1 guests)

Similar Threads

  1. GABA analogues & Anticonvulsants for Pain?
    By cricket73 in forum Pain Management For Interstitial Cystitis
    Replies: 2
    Last Post: 03-22-2005, 11:06 AM

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •