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  1. #1
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    Pain behind belly button

    I notice that I have this pain right behind my belly button. It's there like 80% of the time, and whenever I press the area around my belly button. The pain goes straight down from my belly button down my pelvic region in the center.

    Does anyone else experience this too?

  2. #2
    ICN Member Katrina's Avatar
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    That is slightly higher than where I would say my main source of IC pain was for me. I would say the worse point for me begins a half an inch or so below my belly button. I know when my bladder was at it worse tons of things would make the pain worse and spread out. Any pressure or movement was excruciating.

    It isn't uncommon for a trigger point to make the pain worse when touched.
    I would be somewhat concerned and would suggest discussing this pain with your doctor to be sure of what is going on.

    I hope you find a fast path to relief!
    Faith, Hope, and Love,
    Katrina


    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
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  3. #3
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    Those are the symptoms I had with an umbilical hernia. I'm not saying thats what you have , you should just visit your doc.

  4. #4
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    Those are the symptoms I had with an umbilical hernia. I'm not saying thats what you have! You should just visit your doc to investigate.

  5. #5
    ICN Member samik's Avatar
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    pain in belly button area

    I am going through myofacial connective tissue manipulation physical therapy and I learned that you have a ligament that runs from your bladder up to your belly button. I was taught that if you start at your pubic bone with both hands using your index and middle fingers, walk off your pubic bone and sink into the bladder area, you don't have to press hard. Pull in an upward direction to your belly button, only go as far as your fingers will let you and hold that position for about one minute. This gives your bladder a little stretch like when we have a stiff neck, we move to stretch it. You can do this whenever you feel that pressure, before bed is a good time. It does help my symptoms a little and a little is better than nothing. I have some other tips if anyone is interested.

  6. #6
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    Well, I feel like my bladder is heavy and swollen when I have the symptoms.

    I feel like there's a string attached to the inside of my belly button, and something is pulling on it. Sorry, it's kind of hard to describe, and that's the best I can do to describe that feeling. It goes from my belly button, straight down.

    But the most pain is from my belly button and it goes down about an inch. That whole area feels painful when my bladder acts up.

    What can I do?

  7. #7
    ICN Member samik's Avatar
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    hollandlop- belly button pain

    Well, try the excercise I posted yesterday about pulling in an upward motion. It feels lide pulling because of that ligament. gravity also plays a huge role in that dragging pulling feeling. I have alot of problems with urgency, frequency and pressure pain on my bladder. I have had 5 laproscopic procedures for endo plus a vaginal hysterectomy. I have alot of scar tissue on the bottom and sides of my bladder. When a person has that much scar tissue you also get that pulling and burning feeling because scar tissue shrink wraps you organs, ligaments and muscles which makes them immobile or less pliable. Our organs, muscles and ligaments need to be able to move otherwise they get sore and don't work as good. I take amitriplyline for pain and to help me sleep. I do the diet, and am on elmiron and hormones. I really recommend the myofacial connective tissue manipulation therapy. I feel a bit better. It's a slow process, but I do feel better. Research the internet and find a physical therapist near you that specifically works with people that have bladder and pelvic floor issues and mentions the type of therapy I suggested. You can also try breathing techniques. It takes some practice, but scan your body for stress and tension a couple times an hour. breathe in and slowly release and check your "openings" as my PT calls it. Meaning opening your vagina as if your sitting on the toilet. You don't need to hold it there just so you are releasing the tension in there. This will help the urgincy also. Most of us don't realize it, but we all have tension in the pelvic floor area because we have that fear of peeing our pants or thinking this will help strenghten your bladder and pelvic floor . In reality the worst thing you can do for your bladder is kegal excercises. We need to "let go" not tighten. Sorry it's so long, but I hope this helps.

  8. #8
    ICN Member BT2008's Avatar
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    Me Too!

    Wow! I have had several episodes of belly button pain too! The last one about a week and a half ago. My belly button was very sore to touch, and whenever my abdomen moved my belly button would hurt! And of course, my body decided to also have a very swollen IC belly during that time as well...Ouchie! Yowie!

    I also had this happen at least two other times last fall--somewhere during the time when I was in my super-colossal first-time flare that lasted for over six months. When the bb pain persisted for several days, I finally looked it up on the internet; all I could really find was that it is a symptom of appendicitis. But, mine went away soon after and I never followed up on it.

    So, like you I have certainly had this mysterious belly-button pain, but unlike you it is not the main source of my pain. Mine was merely episodic and only lasted a few days each time it occurred.

    BTW: I have had extensive abdominal adhesions in the past, so I have wondered if maybe I have some scar tissue messing with my bb. And, samik, I remember my bb ligament being mentioned regarding the adhesion surgery somehow, but I don't remember now what the surgeon said (that was back in 2002).

    If you find out what it is, be sure and post it here. Even though it is way down on my priority list of problems, I would still like to know the cause.

    I hope you find some relief soon!
    ~Beth
    I am not a physician, so please do not mistake any of my comments as medical advice. I am just a fellow sufferer sharing my experience with IC.

    Scheduled for Radical Cystectomy & Indiana Pouch, July 16, 2009

    Hit with severe pelvic pain on 6/14/08 (7:05pm): GYN, MRI, CT, laparoscopy, colonoscopy: All Clear
    DX'ed with Severe IC: Findings during cystoscopy and hydro-distention on 9/11/08 showed: scattered areas of hemorrhage and glomerulizations, w/bloody efflux. Update: Had second cysto/hydro on 5/21/09: My uro said "there were thousands of lesions" all over my bladder.
    Current Meds: Bladder Instills (self-adm 3 x per week or PRN); MS Contin; Lortab (PRN); Zanaflex; Maxide; Estradiol Patch
    Other helpful remedies: IC Diet (very important!) especially no chemical additives or preservatives; Drink 1.5+ gal. of pH neutral water per day (I test my water frequently! This is very, very important!!); Prelief; Heating pad; and lots of hugs from my wonderful hubby!
    Meds I have tried, but could not take: Amitriptyline & Imipramine (both made me mentally nutzoid, gave me nightmares, and neither one touched the pain); Lyrica (didn't touch the pain either, plus it made me very nauseous after eating and then it triggered my IBS); Cymbalta (didn't touch the pain either and it made me horribly depressed--all I did was sleep and cry!); Percocet (did very little for the pain and gave me headaches); Discontinued using Sodium Bicarb & Kenalog in my instills (it burned really bad!).
    Discontinued Meds: Elmiron (replaced by Heparin in instills); Bentyl (antispasmodic and anticholinergic; Zanaflex works much better for me!); Valium Suppositories
    History: IBS (spastic colon) since 1982; Partial hysterectomy 1985--completed in 2002 with extensive adhesion removal (I think this surgery was my IC trigger!); Non-painful urinary frequency since 2002; No history of frequent UTI's; HPV and abnormal paps 1/07; Sporadic PFD

  9. #9
    ICN Member BT2008's Avatar
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    I don't know if this explains anything or not, but--

    "The median umbilical ligament extends from the apex of the bladder to the umbilicus [navel or belly button], on the deep surface of the anterior abdominal wall. It is covered by the median umbilical fold. ... It may be used as a landmark for surgeons who are performing laparoscopy, such as laparoscopic inguinal hernia repair. Other than this, it has no function in a born human and may be cut or removed with impunity."

    So, perhaps when we get belly button pain this ligament has somehow become inflamed or affected in some adverse way...

    But, I really don't know how or why...

    I guess it's just another IC weirdness that some of us--but not all of us--have, either all the time or just some of the time...

    ~Beth

    Source: http://en.wikipedia.org/wiki/Median_umbilical_ligament
    I am not a physician, so please do not mistake any of my comments as medical advice. I am just a fellow sufferer sharing my experience with IC.

    Scheduled for Radical Cystectomy & Indiana Pouch, July 16, 2009

    Hit with severe pelvic pain on 6/14/08 (7:05pm): GYN, MRI, CT, laparoscopy, colonoscopy: All Clear
    DX'ed with Severe IC: Findings during cystoscopy and hydro-distention on 9/11/08 showed: scattered areas of hemorrhage and glomerulizations, w/bloody efflux. Update: Had second cysto/hydro on 5/21/09: My uro said "there were thousands of lesions" all over my bladder.
    Current Meds: Bladder Instills (self-adm 3 x per week or PRN); MS Contin; Lortab (PRN); Zanaflex; Maxide; Estradiol Patch
    Other helpful remedies: IC Diet (very important!) especially no chemical additives or preservatives; Drink 1.5+ gal. of pH neutral water per day (I test my water frequently! This is very, very important!!); Prelief; Heating pad; and lots of hugs from my wonderful hubby!
    Meds I have tried, but could not take: Amitriptyline & Imipramine (both made me mentally nutzoid, gave me nightmares, and neither one touched the pain); Lyrica (didn't touch the pain either, plus it made me very nauseous after eating and then it triggered my IBS); Cymbalta (didn't touch the pain either and it made me horribly depressed--all I did was sleep and cry!); Percocet (did very little for the pain and gave me headaches); Discontinued using Sodium Bicarb & Kenalog in my instills (it burned really bad!).
    Discontinued Meds: Elmiron (replaced by Heparin in instills); Bentyl (antispasmodic and anticholinergic; Zanaflex works much better for me!); Valium Suppositories
    History: IBS (spastic colon) since 1982; Partial hysterectomy 1985--completed in 2002 with extensive adhesion removal (I think this surgery was my IC trigger!); Non-painful urinary frequency since 2002; No history of frequent UTI's; HPV and abnormal paps 1/07; Sporadic PFD

  10. #10
    ICN Member Kirs10's Avatar
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    ME too

    There have been times off and on the I have flt the painat my belly button, and it is super sensitive. I can lean agains a count or put pressure on it at all. Mine seems to be gone in the morning, never lasting more than 24 hours.......Son't feel that you are the only one that has this (issue or symptom).........I hope this helps
    Started Vaginal Valium Suppositories April 2014
    Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
    Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
    Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
    Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
    Interstim repair December 2008,Removal of the Interstim August 2011,
    6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
    Diagnosed with Raynaud's Syndrome November 2013
    Ambien 5mg for sleep.
    Elivil 50 mg at bed
    Lisinopril 20mg in AM
    Effexor 225 mg
    Oxycodone 5mg if REALLY needed for pain
    Baclofen 20mg 3x a day
    Phenazopyridine 200 mg as needed
    Omeprazole 20 mg at night
    Lyrica 450 mg daily
    Requip .50 mg at night
    Ketorolac 10 mg as needed for migraines

  11. #11
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    Smile Me, too!

    I have belly button pain all the time! It always goes along with how my bladder is acting up. However, every doctor I've been to see never really knows if it is caused by the ic. For myself, it is a very uncomfortable pain that's behind my belly button and the pain goes straight down the center right to where my bladder is. Sometimes I feel like something is going to rip off from behind my belly button and it causes me to bend over in pain - lately, the navel pain has been really intense. As a matter of fact that's why I am up at the moment! It really hurts!

    Well, although I am not glad that I have this pain, I guess I can assume that it is caused by the ic. I was only recently diagnosed about two weeks ago after having trouble for about a year and a half. I do not know much about it. All I know at the moment I am having intense belly button pain, feeling very uncomfortable all the time, and urinating 30 or more times a day which is irritating! Plus, I am not sleeping nighttime! I have never been this bad before.

    Anyway, I see the specialist in two and half weeks, and I pray that they will put me on medication that helps. Presently, I am taking 3 100mg of Elmiron a day and today, I was given a prescription for Elavil to hopefully help me sleep night time.

    Well, just thankful for your post. If you have any suggestions of how to help the pain I would love to hear from you.

    Blessings upon you!

  12. #12
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    Smile Belly button pain

    I have belly button pain all the time too ! and when i stretch my arms straight up in the air..it hurts so badly. It feels like I have worked out and I'm really sore. The pain goes from my belly button down to my pelvis and bladder. I put a heating pad on it or I lay on my left side. I wondered where it came from and if anyone else had this. I have all kinds of symptoms and i begin to think are these all connected to IC. I'm glad of this post, and it makes me feel better that others understand the belly button pain.

    Many prayers for each of us.

  13. #13
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    Quote Originally Posted by samik View Post
    I am going through myofacial connective tissue manipulation physical therapy and I learned that you have a ligament that runs from your bladder up to your belly button. I was taught that if you start at your pubic bone with both hands using your index and middle fingers, walk off your pubic bone and sink into the bladder area, you don't have to press hard. Pull in an upward direction to your belly button, only go as far as your fingers will let you and hold that position for about one minute. This gives your bladder a little stretch like when we have a stiff neck, we move to stretch it. You can do this whenever you feel that pressure, before bed is a good time. It does help my symptoms a little and a little is better than nothing. I have some other tips if anyone is interested.
    I have the exact same kind of pain when I have a flair. My doctor (who knows very little about IC) tells me that stomach pain is not related to IC. He doesn't know what he is talking about. I have found many people in the IC community who have this exact pain. You are not alone.

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