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  1. #1
    Junior Member
    Join Date
    May 2002
    Posts
    1

    Unhappy IC/Hydronephrosis/ureteral stricture

    I am desperate for any advice from people who have
    or had simular problems. In april/2001 I was diagnosed with IC, took Elmiron for 6 months, which seem to help, but also made me lose
    10 lbs. in this short time. September/2001 I started getting severe abdominal pains and was given new diagnosis after CT scan of having left
    Hydronephrosis. Jan/2002 I had cystoscopy with
    Left Urethroscopy, during the procedure they noticed I have stricture in my left ureter. Stent was placed for 2 weeks, but did not resolve the problem. Since the surgery was not sucessful now I am told that I need another surgery which would
    require resection of the ureter and reattaching it to the bladder by making a new opening in the bladder. I was told it would be approximately a twelve-week recovery time if there are no complications. I got second opinion, which confirmed what the first urologist said. I am still having a lot of abdominal pain, I had hoped to avoid surgery, but every time I have a test it seems to show something new. I am 36 years old and have never had this many problems until recently. Does anyone have any suggestions? Thanks.

  2. #2
    Forum Manager ICNDonna's Avatar
    Join Date
    Mar 2000
    Location
    Oregon
    Posts
    32,891

    Post

    I am not familiar with anyone who has had hydronephrosis, but it does sound like you have explored your options before making a decision. Fluid retained in the kidneys can be extremely painful --- I hope this will be resolved by the surgery.

    Sending healing wishes,
    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

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