Book selling "cure" for IC.. Need your help!

[icnmgrjill]

Many of you have probably seen the google on-line ads that say

"End Interstitial Cystitis"
New breakthrough reveals The Answer
to permanent relief for IC.
www.Interstitial-Cystitis-Cured.com

If you go to the website, you're promised a miraculous cure which you can learn about if you buy their book for $37.00. Ironically, you'll find nearly identical websites that promote the same book and state that they can cure various other diseases, such as overactive bladder and restless legs.

If a cure were to be found for IC, and god knows I hope it will be found, few would charge money for that information. It will be published in medical journals around the world. It will be distributed by the many IC support groups that work with patients. Noone involved in the IC support movement would have the audacity to charge a fee to read a book that describes a cure.

Do you feel that anybody should be able to get away with claiming "cures" like this? We don't and we believe that an investigation should take place.

I hope that you will join me in filing a complaint directly with the Office of the Attorney General, Commonwealth of Massachusetts by following the link below.

http://tinyurl.com/6r2sna

The AG will not take action unless they receive multiple complaints. Please help us get a proper investigation of this website and these "authors."

Jill

[mlzippy7]

This really is sad to take advantage of people desperate for relief from this illness!!!

[asIshallbe]

I was a sucker when I was first diagnosed with IC and I fell for this online downloadable book. They say the secret is to delete salt and sodium from your diet. They say that that is the answer. Sure!

[ICNDonna]

I think people who prey upon people with diseases for which there isn't currently a cure are the lowest of the low!

GRRRRRRR
Donna

[waterflow]

I found a web site (not this one) where someone wrote a book that cured IC and yes I was almost going to spend the money for it but I didn't have the money so didn't. I know there is no "cure" but I guess I was sort of hoping. Makes me think about back in the cowboy days when they sold the "cure in the bottle" to sick people and all it was, was alcholol. When people are desperate they will believe anything and spend money for a chance at help and there are people out there who are willing to make money off of it. Really sad for both people I think.

[VickiB]

Boy, a little research on these folks and it looks like they have multiple websites and an e-book to cure any number of things! Another scammer! Shame on them.

Jill, have you or anyone you know purchased their "cure" information?

Vicki

As an after-thought,..Could this sort of thing possibly fall under the FDA?

[glassd18]

We are so vulnerable to ads like these especially at the beginning of our diagnosis as we are all so desperate for relief. Ads claiming a cure and charging people for it is a scam like any other scam that people fall for, and if they can be caught and charged then they should be.

[Freckles]

Yes, these people should be locked up. I'll be sending a complaint. These are the worst kind of people. People that profit from the ill. I hope they get jail or prison time. Doubtful, since in America they slap you on the hand for everything. I didn't vote for President. I didn't think I was educated enough on either candidate to make the decision. I hope our new President will make some major changes in our health care system and also put a stop to crap like this.
Karen

[icnmgrjill]

Yes, I've talked with several patients who have purchased it. One man was so excited about the cure, he called me to tell me about it.. and I had to break it to him gently that it just wasn't supported by any credible IC research study.

Please... EVERYONE... file a complaint if you can. All we're asking for is an investigation. It's up to the state to decide if it's legal or not.

Jill

[justice4j]

http://www.youtube.com/watch?v=5sMXV...eature=related

This is a company also claiming a cure.....via YOUTUBE. They are also claiming prostate cures, etc.

Please join me in commenting. I LET THEM HAVE IT!

I will respond to the other scam as well. WHERE DO PEOPLE W/O CONSCIENCES COME FROM? NEVER MIND.....I KNOW

[ICNDonna]

I think some consciences are ruled by capital $$$$$'s --- it infuriates me that there are people out there who prey on others.

Donna

[glassd18]

I left my comment on Youtube!!!!

[justice4j]

http://www.youtube.com/watch?v=5sMXV...eature=related

I also tried to use the complaint drop down menu, but nothing really applied.


PLEASE, AGAIN, be sure to post in response to the YouTube video by Vita Herb claiming to cure IC ---link is above

[MommaWuzzi]

My hubby (God love him) is an "alternative" fanatic, always with the mantra "the big drug companies suppress cheap cures because of profitability" and bought that book. There is a typo in it somewhere (forget where now) where instead of IC/OAB it says either chronic fatigue syndrome or fibromyalgia... I forget which, but it talks about another chronic illness.

FURTHER, she attributes much of her theory to another book, "The Salt Solution." I am pretty sure that she's written MULTIPLE cure books that she sells as E-books, based on what "The Salt Solution" suggests it could help, and markets all of them similarly...

It makes me absolutely LIVID!

[ICNDonna]

I'm sorry your husband was suckered in --- be sure to file a complaint through the link in Jill's post.

Donna