Results 1 to 7 of 7

Thread: Myself PFD

  1. #1
    ICN Member
    Join Date
    Jan 2008
    Posts
    40

    Myself PFD

    I just found a product called Myself on Amazon. Has anyone used it? Should we use it? Any ideas for help doing Kegels at home between pt sessions??

  2. #2
    ICN President icnmgrjill's Avatar
    Join Date
    Mar 2000
    Posts
    3,219
    Noooo.... you do NOT do Kegels when you have PFD... because PFD patients have muscles that are too tight... and when Kegels only tighten them and make the tension and discomfort worse. Rather you do exercises that are designed to help relax those muscles.

    Two things that can help. A brand new book called "Heal Pelvic Pain" describes the exercises in depth that you can do at home. See the picture of the book in the lefthand column. It's in our shop under pelvic pain resources.

    Also, you'll want to buy a CD called Relaxation for Pelvic Pain (or something similar) that is an audiotape that you use at home to relax those muscles. It's also in our store under pelvic pain resources.

    http://www.icnsales.com

    Jill
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Diana Brady CNC on alternative medicines. http://www.icnsales.com/icn-personal-coaching/

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.







  3. #3
    ICN Member
    Join Date
    Jan 2008
    Posts
    40

    Thanks

    My therapist is having my do Kegels after I go to the bathroom. Should I stop doing that too?
    I was just diagnosed and I am totally lost. Thanks for the suggestions from the store!
    Marcia

  4. #4
    ICN Member Briza's Avatar
    Join Date
    Dec 2004
    Posts
    6,363
    No disrespect to anyone but I think it has been pretty well established that whether Kegels are recommended or useful or not to a particular PFD patient is most often determined by which type of PFD the patient has.
    Patients with tight pelvic floors muscles it seems are NOT recommended to do Kegels because they can aggravate already tense pelvic floor muscles.
    Patients who have weak pelvic floor muscles (possiblly a result of childbirth or other reasons) seem to benefit from practicing Kegels to strengthen and regain control over their pelvic floor muscles.
    So from what I have learned here on ICN and my own other research, it depends on the type of PFD the patient has to determine whether Kegels might be helpful or not.Best wishes,Bri

  5. #5
    ICN Member
    Join Date
    Jan 2008
    Posts
    40

    Thanks

    Thanks for the information. I did not know there were different types of PFD.

    Marcia
    ---------------------------------------------------

    [SIZE="1"]
    1. 1997 Lupus diagnosis
    2. 2002 Type II Diabetes
    3. 2007 Hashimoto's Thyroiditis/ Mixed connective tissue disease
      2008 Interstitial cystitis/PFD

  6. #6
    ICN Member cia's Avatar
    Join Date
    Aug 2006
    Location
    Boston
    Posts
    203

    kegels

    I am allowed to tighten my pelvic floor 5 times a day. Only one tightening per session. My problem is I can't relax the muscles after I tighten them, well... I can if I have a dark room and soft music, and a whole lot of time, but for reality's sake I can't practice the relaxation without pulling my pelvic floor up before I try to relax it. (no pushing, no pushing, it's like a broken record in my head) I had 8 weeks of intensive therapy before I was allowed to get even this close to a Kegel. I did purchase a Crystal Wand Acrylic Kegel Exerciser from Amazon, on the advise of my PT, to be used only for trigger point relaxation, not for Kegels. We did a ton of training with this little torture device and two weeks later I ended up with tendinitis. Oh well. I'll have to tell Santa I want the new book.
    I was born with one ureta not attached to it's kidney, I've been poked and prodded for so long. I never had "private" parts. I had constant infections and took low dose preventive antibiotics into my teens.

    DX with IC July 1993 after seeing 3 different Uro's and finally switching Primary care doctors and affiliated hospitals.


    I have 2 beautiful daughters, the oldest has been in heaven since she was 14 when she was hit by a car The youngest is 20 now. She has had one UTI. She went into complete panic that she would end up like me. Now she has some idea of what the pain is like. Poor kid has been forced to know where every bathroom in Disney World is.

  7. #7
    ICN Member
    Join Date
    Jan 2008
    Posts
    40

    Thanks

    I am glad you warned me about the device too! IC has become such an "interesting disease" with so many twists and turns!!!

Thread Information

Users Browsing this Thread

There are currently 1 users browsing this thread. (0 members and 1 guests)

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •