Thread: Myself PFD
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12-05-2008, 07:39 AM #1ICN Member
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Myself PFD
I just found a product called Myself on Amazon. Has anyone used it? Should we use it? Any ideas for help doing Kegels at home between pt sessions??
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12-05-2008, 07:50 PM #2
Noooo.... you do NOT do Kegels when you have PFD... because PFD patients have muscles that are too tight... and when Kegels only tighten them and make the tension and discomfort worse. Rather you do exercises that are designed to help relax those muscles.
Two things that can help. A brand new book called "Heal Pelvic Pain" describes the exercises in depth that you can do at home. See the picture of the book in the lefthand column. It's in our shop under pelvic pain resources.
Also, you'll want to buy a CD called Relaxation for Pelvic Pain (or something similar) that is an audiotape that you use at home to relax those muscles. It's also in our store under pelvic pain resources.
http://www.icnsales.com
Jill
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Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.
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12-07-2008, 02:45 AM #3ICN Member
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Thanks
My therapist is having my do Kegels after I go to the bathroom. Should I stop doing that too?
I was just diagnosed and I am totally lost. Thanks for the suggestions from the store!
Marcia
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12-08-2008, 08:33 PM #4
No disrespect to anyone but I think it has been pretty well established that whether Kegels are recommended or useful or not to a particular PFD patient is most often determined by which type of PFD the patient has.
Patients with tight pelvic floors muscles it seems are NOT recommended to do Kegels because they can aggravate already tense pelvic floor muscles.
Patients who have weak pelvic floor muscles (possiblly a result of childbirth or other reasons) seem to benefit from practicing Kegels to strengthen and regain control over their pelvic floor muscles.
So from what I have learned here on ICN and my own other research, it depends on the type of PFD the patient has to determine whether Kegels might be helpful or not.Best wishes,Bri
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12-09-2008, 01:16 AM #5ICN Member
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Thanks for the information. I did not know there were different types of PFD.
Marcia
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[SIZE="1"]- 1997 Lupus diagnosis
- 2002 Type II Diabetes
- 2007 Hashimoto's Thyroiditis/ Mixed connective tissue disease
2008 Interstitial cystitis/PFD
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12-10-2008, 02:42 PM #6
kegels
I am allowed to tighten my pelvic floor 5 times a day. Only one tightening per session. My problem is I can't relax the muscles after I tighten them, well... I can if I have a dark room and soft music, and a whole lot of time, but for reality's sake I can't practice the relaxation without pulling my pelvic floor up before I try to relax it. (no pushing, no pushing, it's like a broken record in my head) I had 8 weeks of intensive therapy before I was allowed to get even this close to a Kegel. I did purchase a Crystal Wand Acrylic Kegel Exerciser from Amazon, on the advise of my PT, to be used only for trigger point relaxation, not for Kegels. We did a ton of training with this little torture device and two weeks later I ended up with tendinitis.
Oh well. I'll have to tell Santa I want the new book.
I was born with one ureta not attached to it's kidney, I've been poked and prodded for so long. I never had "private" parts. I had constant infections and took low dose preventive antibiotics into my teens.
DX with IC July 1993 after seeing 3 different Uro's and finally switching Primary care doctors and affiliated hospitals.
I have 2 beautiful daughters, the oldest has been in heaven since she was 14 when she was hit by a car
The youngest is 20 now. She has had one UTI. She went into complete panic that she would end up like me. Now she has some idea of what the pain is like. Poor kid has been forced to know where every bathroom in Disney World is.
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12-11-2008, 04:07 AM #7ICN Member
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Thanks
I am glad you warned me about the device too! IC has become such an "interesting disease" with so many twists and turns!!!
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