Any remidies for painful morning urination (burning)

[Natalie41]

The last 3 mornings I experienced horrible burning on my first trip to the bathroom. Does anybody know what can be done to prevent this. This morning the burning was sooooooo bad I thought I was going to pass out.
This is not exactly a new symtom for me but it seems to getting a lot worse during the last my couple of flares.

[Mothergoose]

I would just assume it is becuause your urine gets more concentrated over night. I drink a few mouthful of waters each time I wake up, but you have to find the right balance, so that you don't wake more often to pee.

[leelee88]

Great Advice Mothergoose!! I know if I do not drink enough water through out the day I am really burning the next morning!!

[Natalie41]

I am probably not drinking enough water in the evenings due to my incontience problem, which has been real bad lately especially overnight. I have had to switch from depend underwear to full-size diapers for overnight protection. Having to battle muliple health problems (MS,IC,IBS and PFD) is about to drive me crazy. I never seem to get enough rest. My marriage is suffering to the stress of these diseases and the lack of sex. I am having a really tough time dealing with all these ailments. I feel so overwhelmed and inadequate. I don't think husband has been as supportive as he was when I devlopeod MS 4 years ago. He tries to understand but I think my health issues are overwhelming him too. I also feel really bad for my two daughters. I feel like I am not nowhere near the mother I used to be and it really hurts not be able do as many things with them as I would like to do. They are only going to be in the nest so long and I feel there are times even though they are as sweet as they can be I can tell that somtimes they are tired of me being sick all of the time. I just don't how much longer I can take all this sickness without having a nervous breakdown. I am becoming a shut-in and that is not how a 44 year old woman with a family should live. It's sooooooo
depressing not to be able do the things you once did. I used to be very active
in all sorts of activities with the girls. Now it's struggle to go anywhere. If it's not MS attacks it's IC flares and bladder infections, or pelvic pain in general.
My whole life revolves around pain and illness.

A typical a day for me can go like this

6:30 - 7:00 am - Get up out bed (slowly) somtimes using a walker or cane. Put on new pair depends and go to the bathroom to use the toilet.

7am - 7:30 Take my meds fix breakfast (sometime) and make sure the girls get off to school OK ( My husband has already left for work by 5:30am)

7:30 - 8am Get dressed or go back to bed

The rest of the day is built around dealing with pain, fatigue, peeing, changing my depends usually about 4-5 times a day and and going to the bathroom about 20 times to pee voluntarily. Every few days or so there is the occasional bowel accident. The icontinence is one of my main MS symptoms. When I'm in an IC flare I can hardly get out of bed at all. I try to cook dinner 3 or 4 times a week when I feel like. My husband and the girls are adjusting to the meal situatuion fairly well but I worry about them not eating as healthy as they should. Evenings are for TV and helping the girls with homework. Talking to my husband is getting more and difficult as time goes on. We probably shoud seek counseling but I'm not sure he would go along with the idea. I hope I am not rambling too much. I'm sorry if this post is a litlte long winded but I really needed to vent tonight
and I know y'all understand what it's like to have a chronic disease. I know I am not alone on these boards as far as having mulitple health issuses is concerned. I just realized this thread was supposed to be about flare coping stratergies, which is what my original post was about. Please forgive me for whining and rambling but I am really depressed tonight and I need all the prayers and support I can get. Thanks for reading

[Briza]

Natalie, I have to agree that keeping well hydrated, even if it means getting up a few times in the night to pee, is imperative to keeping burning under control, whether day or night. I actually find that my urgency is less and doesn't lead to burning when I keep well hydrated, and that that will often allow me to hold it longer without addditional pain. Another option would be to take something like Pyridium, Pyridium Plus, Urelle, or Prosed DS right when you go to bed. All of these meds work very well for burning. Urelle and Prosed are safer for long term use. I use Pyridium with much success, but I only need to take it now and then, unless I am in a flare, like you know I have been in like you since Thanksgiving. Hope any of this helps or is something that is an option for you!
Therapy/counseling always a good idea when things are getting rough. It is NOT uncommon for men to resist therapy or any other treatments for problems or depression or whatever. My own male therapist told me that! But certainly you can start by going alone and it may very well give you some much needed help that you need and deserve. If hubby decides to tag along eventually, even better. But don't put it off if you feel you need it just b/c hubby won't go.
Best wishes,Bri

[Smokey]

try taking two prelief tablets before you go to bed. also have you checked for a uti? and drink, drink and drink

[Briza]

Natalie,
I just now saw that you have Uristat listed in your sig...same thing as the Rx pyridium I take, I have never noticed a difference Uristat vs Pyridium as for the symptoms it helps me for. So possibly taking Uristat right before bed, or the prelief as lorenab mentioned, or both, would help w/ the morning burning. I am so sorry you are having to deal with multiple health issues, I do as well, but luckily have never had to deal w/ incontinece issues...I can only imagine how frustating that is. You are right, you should not have to be dealing with all of this at 44. I understand how you feel...that it ages you beyond your years (((hugs))). Many prayers your way. Is there nothing to help you with the incontinence? I'm sorry, I'm just not that familiar with it or what helps with it or MS or the problems that MS can cause, but I am here to listen and learn.Take care, Bri

[ICNDonna]

I'm so sorry. It must be terribly frustrating to hve to deal with incontinence every day. Is there anything the doctors can do to help with this?



Donna

[Natalie41]

Somtimes when my MS is at bay my leaking is minimal but IC flares aggrivate it. I've tried some OAB mdeications (detrol and ditropan) and they didn't help.
Today I feel a little better than I did yesyerday. My urethral burning has let up a lttle bit and I don't feel as tired. Maybe this will be short lived IC flare.
I want to thank everyone for your replies. The support I am getting here is helping me cope immensely with the health issues.

[Mothergoose]

Sorry you are having to deal with so much. I found my son was happy if I just snuggled with him, or he crawled into bed with me. But he is a cuddler. I also tried to sleep when my husband or my son were out, so I wasn't too tired to at least get up with them. I can't go help at the school anymore, but I discuss it with him everyday and keep on top of what he is doing and what home work is due when.

I realized the more pain I was in and self absorbed about ( not that in any way am I say you are, it just I realized I was) I kinda withdrew from my family. This was causing me all kinds of problems, frustration with my husband, I thought he just didn't under stand. What he took it as, I didn't want to be near him, this was not the case I was just frustrated. He likes lots of attention too, any kind. I was so tired and in pain, that I felt it was too much to ask of me. But one day I decided that this was not how I wanted my life to go, so I made a point of telling him daily I love him, then I made sure I at least touched him when sitting watching TV or what ever, or even just reaching out and touching him while he goes to sleep. At first this was work, but before long he was changing and started to treat me as if he understood some what, not like it was all in my head. He started to do things with out alway relying on me to do everything. Things are much better now. But I also don't deal with quite as much as you do, I am going for testing for MS in December.

I don't know what the answer is for you, I just did things in small steps to begin with, and as I go it is easier.

We have diseases, they are not us, I do know only too well they can be over whelming at times, but make the best of your good days.

[izazen]

You might have a uti.

If you don't have an infection - try this - pour a bottle of warm water over your vulva at the EXACT same time that you urinate. It will take the sting out.

Cantharsis, a homeopathic remedy ($6.00 at a health food store) is wonderful for burning urinary problems. 5 pellets every 8 hrs. Its great stuff - amazing, in fact, and I don't use the term lightly.

[Natalie41]

I went to see my urologist yesterday after the burning became unberableble and no infection was found. To be on the safe side they sent the sample out for a culture. I might be an infection anyway because my urine has begun to devolop a really strong odor and my back and right side are starting to hurt and that could mean a kidney infection. I sure hope not my last was real a doozy.

[TexasHoney]

Natalie, My heart really goes out to you. I can't imagine what it must be like to have so many health problems ganging up you at once. IC by itself is almost enough to do me in. You really do need to see your uro and get checked out. Keep us posted As far that morning burning goes I have that a lot too. A lot of mornings I dread waking up knowing I've got to feel that sting when I go for that first pee. It's a horrible way for a girl to start the day. I often have to deal with even when I'm not flaring. Flares and uti's only make it worse. Btw I noticed in you other thread Heather's Knee was getting better. That's really good to hear. I hope she's a full recovery and is back on the volleyball next season as good new. Remember if you want to talk privately you can PM me anytime. I hope you get to feeling better real soon.

Hang In There

[amaranthe]

You have been given some excellant advice. I agree that it is probobly b/c your urine gets so concentrated in the middle of the night b/c you dont go to the restroom as often and also b/c most people dont drink anything in the night. So, it would definately help alot to take Urised, Prosed, or a med like that at bedtime and also try to drink more, (especailly at bedtime.) Even though drinking at bedtime will cause you to use the restroom in the night, by urinating in the middle of the night, it will keep your urine from being so concentrated and causing burning and pain in the mornings. When you get up in the night to go to the restroom, try drinking a bit again, (keep a glass of water at your bedside), and also try taking Urised, Prosed or a similar med again at that time.

Lots of times when I am flaring or in a bad IC episiode, I will set my alarm to get up in the night to take my meds. Even though I frequently awaken in the night to use the restroom, settiing the alarm still helps b/c it reminds me to take my meds and also helps for the rare occasions when I actually DO sleep thru the night.

I am also sorry that you have been depressed and down in the dumps about the IC and the toll it takes. I go thru that alot too whenever I stop and think about it. As difficult as IC can be and depressing as it is to think of the other things it takes away, the times and energy it takes away from my kids gets to me the most too. But,it helps me alot to think about the good things that they will get from having a sick parent. (And yes, they DO get some good things out of it!) For example, all of the children who have and ICer for a parent are going to be naturally more compassionate than normal kids b/c they will have all grown up around someone who suffers. They are also all going to be alot more independant and self-sufficent than their peers, since they have all had to learn early to do many things for themselves. They also will all learn how to cope with adversity by watching us and will learn how to deal with the blows that life deals them, since they will have watched us deal with this every day. Our kids are going to grow up learning how to prioritize their time and do the most important things first in case they cant get to the rest. They will also have learned THAT very valuable skill by seeiing us do it every day. Another thing, I'd say that most of our kids are growing up learning how to cook and clean and are learning early on that their parents are human too and that it takes EVERY member of the family (including kids) to keep a house running smoothly. They are all having to learn responsibility because we are sick so they are growing up having to be resposible. These are all good things to learn, and things that everyone SHOULD learn sooner or later. However, I think we also all know lots of ppl who have never learned these things, and plenty of people who didnt learn them until they were well into adulthood. But, our sweet children are learning these valuable things every day! Lastly, they also benefit from our having IC because alot of us are MORE accessable to them b/c we are IC patients than we would be if we didnt have it. For example, like many ICers, I am disabled and on SSD. Because I am disabled with IC, I am home every day, including when they leave and come home from school, on their snow days, thru the summer, on holidays and inservices, etc. If I didnt have IC, I'd obviously still be working, and they'd be going to a sitter for those times. But, at least now, I am the one who is there for them, raising them, and instilling MY values into them, not some stranger. I am also here to hug them and kiss them daily, to eat meals with them, pray with them, help them with their homework, to give them baths, read them their bedtime stories, talk to them about any problems or concerns they are having, etc. This are just a few examples of the ways our kids are actually BETTER OFF because we have IC. I am sure there are other things too, but I am starting to get sleepy since I took my meds not long ago, so I will let others name other things, if they wish.

I DO have several things that I do with the kids when I dont feel well, things that allow me to rest while I interact with them. Here are just a few of the things we do together on my bed or while I lay on the couch and rest: I read to them or let them read to me while we cuddle. We also play alot of board games on my bed like Candyland, Chutes and Ladders, Old Maid, Go Fish, the Memory Game (where you try to find sets of 2 cards that match each other), playing rock-paper-scissors, playing "beauty shop" (where they brush my hair and arrange it different ways and also paint my nails and toenails), playing massage parlor (where we take turns giving each other back rubs), Playing cars or video games on my bed, playing Dr. (where they check my temp, bring me my meds, look at my throat and ears, tap my knees, etc.), playing school on my bed, playing "Simon Says" while I am laying down, watching tv or a movie/DVD, playing "TV Reporter" (where they/we take the camcorder and film each other, asking each other questions that are sometimes silly and sometimes serious. Then we the tape on TV of our "interviews".), making things out of Play-Doh, coloring or drawing together, getting out our "craft box" that has scissors, felt, ribbon, material scraps, glue, glitter, markers, crayons, pieces of cardboard, old cookie-cutters and stencils, etc. and making cards for people in our family and on our churches sick list that week, going over Bible stories together and doing a craft that goes with it, playing things on the computer, playing with Legos together and building something together, singing songs together and teaching them new Christmas songs, teaching them to sew by hand, make quilts, teach them to crochet, knit, or cross stitch, writing letters together to faraway friends/relatives, cutting out magazine pictures and gluing them to posterboard to make nice backdrops for them for when they play Barbies, farm, aliens, army, putting on a puppet show etc. There are SO MANY other things to do while I am laying down on the couch or bed resting, yet they want to visit me and for me to play with them. Those are just a few things to give you some ideas for inspiration.

I hope you and others reading this will be able to get a few ideas from it for things you can do with the kids when you need to lay down and rest, yet the kids are raring to go and want you to play with them.

I hope you start feeling better soon. I hope you will try some of the suggestions the ladies gave you. They really are terrific ideas that should helo you feel better in no time at all!

Sending the kindest regards and big hugs,
Amaranthe

P.S. Sometimes when we play "Simon Says", I have them do some housework. (Like Simon Says, "Go pick up all the trash in the living room and throw it all away." etc.) By making a game out of doing some of the housework, it makes it fun for them and helps me out too! Other times, I make cleaning a game by setting an egg timer or the microwave timer for 5 minutes (or other times) and then tell them to see how much they can do to get a room clean before the timer goes off. Lots of times once they see a room is almost clean (yet I have already quit playing the game), they go ahead and still clean without being asked b/c they want to see the room finished and all the way clean! It definately makes me feel like a good mother and like I have been doing something right whenever they do that!

[Natalie41]

The results of my culture came back today and what I suspected a couple days ago is true. It turns out that I had a uti and it traveled to my kidneys.
I have been totally miserable the last two days. I can't win for losing. My body continues to fail me and i just can't seem to catch a break. I hope the antibiototic (macrobid) they gave me helps. I have barely been able to get out of bed today. It was a struggle to go to the pharmacy to pick up the Rx. I feel bad all over. My MS symptoms are raging as also
I felt completely wore when I got home. I'm really having hard time coping.
Please pray for me.