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Thread: User CP Groups?
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11-11-2008, 12:47 PM #1ICN Member
- Join Date
- Oct 2005
- Location
- Central, NY
- Posts
- 2,809
User CP Groups?
Under the User CP and the heading Social Groups (I don't have any idea of how to use this?)
What's the groups part of the new setup on our profile page? Like it says search groups and create groups.....what is that and how do we use it?
Thanks,
KaraComplex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
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11-12-2008, 03:51 AM #2ICN Staff
- Join Date
- Jan 2002
- Location
- Memphis, TN
- Posts
- 10,854
You can find the answers to your questions in the "FAQ" link in the dark blue ribbon. This is what I found.
http://www.ic-network.com/forum/faq...._social_groupsSharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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11-12-2008, 06:48 AM #3ICN Member
- Join Date
- Oct 2005
- Location
- Central, NY
- Posts
- 2,809
I still don't understand
I can't find 'Group Memberships' on my user CP or profile page...............I am very slow at this........sorry
KaraComplex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
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11-12-2008, 08:24 AM #4ICN Staff
- Join Date
- Jan 2002
- Location
- Memphis, TN
- Posts
- 10,854
I went into your profile and did not see Social Groups either. I went into mine and it was there. I certainly don't understand that. 
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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11-12-2008, 08:24 AM #5ICN Staff
- Join Date
- Jan 2002
- Location
- Memphis, TN
- Posts
- 10,854
Check my profile out and let me know if it shows up for you.
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
-
11-12-2008, 08:27 AM #6ICN Staff
- Join Date
- Jan 2002
- Location
- Memphis, TN
- Posts
- 10,854
I just went into my User CP and found this:
Networking
Contacts & Friends
Social Groups
Pictures & AlbumsSharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
-
11-12-2008, 11:10 AM #7ICN Member
- Join Date
- Oct 2005
- Location
- Central, NY
- Posts
- 2,809
Sharon, I am still having trouble seeing it. For now I will just add photos......thanks for trying to help out!
I still don't see it. I may have to call Jill or Donna Tomorrow???? Donna if you see this and are able can you call me tonight so I can figure this thing out?
Thanks ahead of time for the Help,
KaraComplex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
-
11-13-2008, 01:38 PM #8ICN Member
- Join Date
- Oct 2005
- Location
- Central, NY
- Posts
- 2,809
I still can't get it?
KaraComplex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
-
11-17-2008, 04:54 PM #9ICN Member
- Join Date
- Oct 2005
- Location
- Central, NY
- Posts
- 2,809
I still need help? Any Volunteers? I can't view a list of social groups that already exist, I can only view the one's I've created???
Kara
Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
-
11-17-2008, 05:21 PM #10ICN Member
- Join Date
- Jul 2007
- Location
- Almost Heaven West Virginia
- Posts
- 1,074
Kara, is this what your page looks like when you choose social groups from the user CP?
You are a Member of the following Groups
Group Name Joined Options
Cats and Kitties Group
For those of us who have Cats or kittens and want a place to talk about them......... Kara
11-12-2008 Leave Group
Childfree not by choice
Here's a place for those of us who could not have kids can talk about our feelings and how to go on in a society that is filled and centered aroud families and kids. Kara
11-12-2008 Leave Group
Search Groups
Available Groups
Created Group Name Members Messages Pictures Last Post Reverse Sort Order
11-12-2008
Childfree not by choice
Here's a place for those of us who could not have kids can talk about our feelings and how to go on in a society that is filled and centered aroud families and kids. Kara
2 5 1
11-16-2008 08:18 PM
by Kara29 Go to last post
11-13-2008
Music Videos
I use Music Videos to describe my feelings. Kara
1 10 10
11-14-2008 10:16 PM
by Kara29 Go to last post
11-13-2008
Youtube (your favorite videos)
I love Youtube and often find lots of cool stuff on there to keep my mind off of IC. Kara
1 0 0 Never
11-12-2008
Cats and Kitties Group
For those of us who have Cats or kittens and want a place to talk about them......... Kara
2 0 0 Never
11-12-2008
Pudendal Neuralgia/Pudendal Nerve Entrapment Group
Here's a place for us PN/PNE'ers out there who also may have IC and other related conditions.
1 0 0 Never
11-12-2008
Facebook Users
This is for the addicted Facebook Users out there, a place for us ICer's to talk and share about our facebook life........... Kara
1 0 0 Never
The "available groups" should be right under the list of groups you are a member of, on the same page. If it isn't there you should probably contact Jill and tell her there is a tech issue on your user CP, that all the options aren't available to you and see if she can work on it. If it isn't populating for you I don't think there is anything any of us can do as it is a true tech issue.Last edited by hdb1982; 11-17-2008 at 05:23 PM. Reason: add
With Lots of Love and Wishes for Pain Free Days~Heather
~I was diagnosed with Interstitial Cystitis at the age of 23, 4 months after getting married. I also have severe Endometriosis, Adhesion Disease and Pelvic Floor Dysfunction. All of which were diagnosed AFTER being diagnosed with IC. Before IC my only health issues were a history of migraines since I was a child and a battle with cervical dysplasia. I had a LEEP in 2007 and have been clear of the cancerous cells since.~
~Please feel free to PM me if you have any questions, concerns or comments. Or if you just need a friend, someone to listen. I am almost always lurking around online somewhere. LOL~
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