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  1. #1
    ICN Member
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    Why Does Lifting or Exercise Cause a Flare?

    I have been keeping a pain journal.
    As I look back, it never fails that when I do anything that involves lifting, or squatting (cleaning out the boilerroom after a water leak), I get weeks of
    "10" level pain in my urethral burning.
    I just don't understand why?

  2. #2
    ICN Member
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    Me too! I have been doing pretty well for the past several weeks and all of a sudden this week my pain has returned. I realized today that I worked out 4 or 5 days this week, so now my bladder hurts. Its very frustrating. I feel like I can't do anything.

  3. #3
    ICN Member
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    I am in the same situation. I work in the fitness industry. Thankgod I teach yoga and it is gentle and I lead the class, so my class depends on my bladder pain.

    I do know I also lead a fitness weight and band class, and anytime I involve strenious work to the abs, or lifting heavier weights....my bladder is DONE/sore....ugh.

    Just today I said to my husband I am so frustrated with my bladder pain, and how it effects everything I do. I thought I had it all under control and then I try to get back to a normal lifestyle (including the ic diet), but meaning my work...and BOOM! gets me again....

    I know right now it does not help that I am on my cycle.....as for me it is also very hormonal.....ugh!

    Peace
    Last edited by bluetou; 11-13-2008 at 08:30 AM.

  4. #4
    ICN Member
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    to all of those on this thread about exercise

    I am wondering if sweat and/or too much movement causes irritation of the bladder. Maybe it makes the lining shed faster?? This sounds like a complicated matter that maybe an IC doctor would have an answer for.

  5. #5
    ICN Member
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    Wink This is what has helped me in general

    I have had bladder issues for many years. But had minimal IC until about 4 months ago, then it got terrible. Some people have normal looking bladders, but still can have bad IC. They did a Potassium Sensitivity Test on me and I tested positive. I have IBS just like you.I am doing much better. I take Prelief before every meal, it helps with intestinal problems as much as it helps IC. Then I take the Elmiron by taking the caplule apart and put the powder in some water(1/2 cup or whatever you feel comfortable with) to drink it down. I don't want to take the capsule because it has some lactose. I follow the IC diet and take an Atarax in the evening. Many doctors feel the Elmiron and the Atarax help each other. Amazingly, I am feeling almost normal!!! So hang in there--it will just take some time.

  6. #6
    ICN Member BT2008's Avatar
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    This Is A Great Question!!!

    This is a great question! In fact, it is at the very top of my list of IC questions.

    In the four months that I have had IC, the one thing that I know for a fact that causes me pain is any kind of physical activity. I can't do anything anymore without paying for it within just a few minutes with moderate to excruciating pain: just standing in the kitchen and cooking a simple dinner, or lifting wet jeans out of the washing machine, or making the bed, and especially going to the grocery store; all of these things make me hurt SO bad!!

    Such simple things that I used to take for granted.

    The doc did find cracked and bleeding lesions when he did the cystoscopy/hydodistention. So I am assuming that physical activity somehow causes further trauma to those lesions.

    Unlike you KingofPain, my pain is not in my urethra; rather, my pain is directly in my bladder and radiates across my lower pelvic region.

    And 1curly1, I can't move around long enough without pain to even break into a sweat...

    This is my primary issue with IC: if anyone knows why physical activity causes IC bladder pain, please post an answer here!!

    Thanks,
    Beth
    Last edited by BT2008; 10-18-2008 at 12:37 PM.
    I am not a physician, so please do not mistake any of my comments as medical advice. I am just a fellow sufferer sharing my experience with IC.

    Scheduled for Radical Cystectomy & Indiana Pouch, July 16, 2009

    Hit with severe pelvic pain on 6/14/08 (7:05pm): GYN, MRI, CT, laparoscopy, colonoscopy: All Clear
    DX'ed with Severe IC: Findings during cystoscopy and hydro-distention on 9/11/08 showed: scattered areas of hemorrhage and glomerulizations, w/bloody efflux. Update: Had second cysto/hydro on 5/21/09: My uro said "there were thousands of lesions" all over my bladder.
    Current Meds: Bladder Instills (self-adm 3 x per week or PRN); MS Contin; Lortab (PRN); Zanaflex; Maxide; Estradiol Patch
    Other helpful remedies: IC Diet (very important!) especially no chemical additives or preservatives; Drink 1.5+ gal. of pH neutral water per day (I test my water frequently! This is very, very important!!); Prelief; Heating pad; and lots of hugs from my wonderful hubby!
    Meds I have tried, but could not take: Amitriptyline & Imipramine (both made me mentally nutzoid, gave me nightmares, and neither one touched the pain); Lyrica (didn't touch the pain either, plus it made me very nauseous after eating and then it triggered my IBS); Cymbalta (didn't touch the pain either and it made me horribly depressed--all I did was sleep and cry!); Percocet (did very little for the pain and gave me headaches); Discontinued using Sodium Bicarb & Kenalog in my instills (it burned really bad!).
    Discontinued Meds: Elmiron (replaced by Heparin in instills); Bentyl (antispasmodic and anticholinergic; Zanaflex works much better for me!); Valium Suppositories
    History: IBS (spastic colon) since 1982; Partial hysterectomy 1985--completed in 2002 with extensive adhesion removal (I think this surgery was my IC trigger!); Non-painful urinary frequency since 2002; No history of frequent UTI's; HPV and abnormal paps 1/07; Sporadic PFD

  7. #7
    ICN Member
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    My IC flares from anything that strains my back. I think it's due to my pelvic floor disorder.

  8. #8
    ICN Member
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    That is why for soooo many years I thought it was actually just my back killing me! I didn't realize it was my bladder causing my lower back to hurt so bad! Way back I remember that too much coffee or pop made my back hurt too. This must have also been bladder pain.
    Started Cytotec 1-24-06

  9. #9
    ICN Member Want2BPainFree's Avatar
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    Exercise provokes my symptoms as well. Sometimes, like right now, even standing and walking is unbearable.

    I guess it is stress, physical and emotional that can make things worse.
    Sonja

    Dx: Idiopathic Dilated Cardiomyopathy/Congestive Heart Failure-1997, Vulvar Vestibulitis-2006, IC-Feb 2007, Atrophic Vaginitis 08, Heavy Long and Painful Periods leading to Partial Hysterectomy-2007, Rectal Fissure-2007, Pelvic Floor Dysfuntion-2008, Post-Menopausal-2010

    Meds: Coreg, Elmiron, Elestrin, Est/Test Topical Gel, Valium Suppositories, Lyrica, Dyrenium to counteract edema from Lyrica, Pain Meds.

    IC Diet: Very diet sensitive, esp. to spices.

  10. #10
    Forum Manager ICNDonna's Avatar
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    Many exercises put strain on the abdominal muscles, which include the smooth muscles of the bladder. About the only exercise I can do is walking. Wouldn't it be great if someone would publish an exercise DVD for people with interstitial cystitis!

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  11. #11
    ICN Member
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    I just wanted to mention during my searches of information on IC....I was punching in different things in my search engine, such as ayuervedic diet,yoga, ic......(as I eat very much around the ayuervedic diet, and my exercise has always consisted of yoga), this search popped up something very interesting..... I came across a yoga instructor who actually has IC.

    Her interview was very positive and so refreshing to read. Being a Hatha Yoga Practioner myself I felt very in touch with her interview and felt the positive energy she exudes. I will attach the link below, you should check it out, it is very informative and will give you a chance to maybe dabble in trying a little hatha yoga.

    Here is the link....

    http://www.ic-network.com/guestlectu...ranscript.html

    Peace

    Last edited by bluetou; 11-13-2008 at 08:28 AM.

  12. #12
    Support Leader yvette's Avatar
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    Talking My educated guess...

    In order for you to move for any reason, you really use all your core muscles in addition to your legs, arms, hands etc.

    If you ever have had a Cysto with Hydro you know that afterwardsyou can't left a mug let alone a whole box of something....you definitely will feel it in your whole midsection. Your whole torso really gets in on the action anytime you move in any way.

    Anyways, just my 2 cents
    Somewhere there's a reason /Why things go like they do /Somewhere there's a reason /Why some things just fall through /We don't always see them /For what they really are /But I know there's a reason /Just can't see it from this far /Maybe I don't like it, /But I have no choice /I know that somewhere, /Someone hears my voice / I thought I knew it all /I thought I had it made /How could it end this way? /I thought I knew Somewhere there's a reason /Why things don't go my way /Somewhere there's a reason /That I cannot explain /Just like the change of season, /Just may not be my turn /But I know there's a reason, /The lesson's mine to learn

  13. #13
    ICN Member
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    I hear ya!!!

    I work in a nursing home which envolves alot of heavy lifting, very tirering and alot of muscle straining. I asked my doctor if that type of work can make your bladder worse he said it shouldn't but stress does. I agree with him on the stress part but I know my type of work makes my bladder worse. Within an hour of me being at work all the muscles around my bladder tighten up. It's like im constently flexing the muscles but I don't know how to relax them again. It also always burns when I pee. When Im at home relaxing the burning isn't as bad and the muscles are more relaxed. I also used to work out my ab muscles every day before my bladder went to crap and now if i try to work out my abs it causes a flare. It sucks because my job pays really well which helps me pay for my meds but since it makes my bladder worse Im really thinking its not worth it and am looking for a new job.

  14. #14
    ICN Member
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    Thanks to all of you for posting....I just recovered from a flare caused by abdominal exercises and light weights. I thought I had eaten or drunk something that caused it. The IC network support forum is a blessing!

  15. #15
    ICN Member snowgirl's Avatar
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    when I was a recovery room RN we has to do a lot of lifting and turning patients. Yes it made me flare. Plust the patients could not help you as they were all sedated. For me not lifting patients anymore and not standing for a whole ten hour shift .......... resignining........ off on disability unfortunately my bladder is the best flare and pain wise in 23 yearss. My question is if I return back to work but at a lesser nursing job hopefully a desk job or part time 8 hours will my bladder return back to IC flare state and back into the fmla route again........... question for my uro I am still waiting on. Vicky

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