Thread: I'm feeling depressed today.
09-03-2008, 09:37 AM #1
I'm feeling depressed today.
I go along for awhile feeling "normal" and kind of forget about this disease and then BAMB...a flare and I am right back to where I started from or so it seems. I know there is no cure, but I get discouraged knowing that it is always there waiting for something to set it off and me to feel lousy again. I am still watching my diet (not quite as strickly as when first dx), taking my meds and trying to do everything right, but still it rears it's ugly head every now and then. I guess I just needed to vent today to someone who would truly understand. Thanks for allowing me to do that.
09-03-2008, 09:56 AM #2
- Join Date
- Dec 2007
- British Columbia, Canada
I know what you mean....
And even in the websites that have the definition of this disease and such they say even if you are on meds and doing the diet and stuff you still can have flares and docs don't know why and they also still don't know why some patients have success with one treatment and stay with that and why some people get all lost and try everything and nothing eases the pain....
i hate that....docs have no answers with this condition we have....and they have no clue how frustrated we are and how much the pain effects us on a daily basis and also the toilet we have to have around our ankles too..
this is a very frustrating thing we got....
i just hope that some day we will have that 'magic' pill and we all can rest easy but until then we have this forum to help us through the hard times...
i hope your flare goes away quickly
just remember you are NOT alone in this fight
take care and take it easy
I am a cat lover----wouldn't be here without em
been having a bad time so now trying meds to help the situation but its an uphill battle
One day we will all have relief from pain....i do believe that but it doesn't come fast enough....
09-03-2008, 10:55 AM #3
Believe me we do understand. We all have bad days and have felt like you are today. I am sending you a hug and hope that tomorrow is better.Jolene
"Life is what happens when you are making other plans" John Lennon
IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html
Information for Patients can be found here.
Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]
Newbie Angel...I will be happy to answer any questions or just listen. Email me at firstname.lastname@example.org
"IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."
09-03-2008, 11:06 AM #4
IC can be difficult to deal with because we never know from one day to the next just how we are going to feel. Shoot...It can even be one minute to the next. What I have had to do is realize that it is not my fault. I did not plan on feeling bad. I do everything I can not to have flares, but they do happen. When they do, I have to let go of the guilt and take care of myself, first.
Sending you lots of understanding (((hugs))) and a to go along with them.Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
Link to the IC Diet:
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
09-03-2008, 01:47 PM #5
- Join Date
- Nov 2007
I could of wrote your message. I was getting on this message board because I was feeling the exact same way today. I also have been doing great and the last couple of days I have been in a bad flare. I get discouraged just like you too but realized how many good days I have had. In the beginning everyday was a bad day and now I have more good days. I have to hold on to that.
I hope you find relief soon!
09-03-2008, 02:40 PM #6
I can relate! I know when I have good days for awhile I get so bummed out when I flare. I just keep reminding myself it is just a flare and it will pass. I hope you start feeling better soon.. (((hugs)))Hugs
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
Diet Reference Sheet:
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
09-03-2008, 03:38 PM #7
- Join Date
- Aug 2005
I can definitely echo all these posts. Sometimes it seems like it comes out of the clear blue sky. I have figured out that when my stress levels are up my bladder lets me know about it. We all need to vent sometimes.Here on these boards it is so nice to have people that actually get it. I hope you feel better soon.
09-04-2008, 09:45 AM #8
Thanks to everyone who replied and tried to lift my spirits. I try to keep it off my mine, because I am a firm believer that stress/worry makes things much worse for me. It's just so hard since it's an illness people who don't have it can not relate to and you really can't explain how you feel to them. Therefore, I carry it inside until I just can't anymore and then I have to be alone.
09-05-2008, 02:51 PM #9
- Join Date
- Aug 2005
that's what this board is for. Please don't feel alone cause we are all here.
We know what your day is like cause we live it too. This site keeps me sane because I have never met a person in my area with IC. ITs great to be able to get on these boards and have so many people understand. I hope you
are having a much better day.
09-06-2008, 08:32 AM #10
Still not over this flare or whatever it is, but hopefully I will be soon. I'm not supposed to see my dr. until November, but may have to call if things don't improve soon.
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