Mayo Clinic Offers Fairly Nice Intro on IC

***icnmgrjill*** · 08-21-2008, 10:00 AM

Medical Edge: Painful bladder syndrome difficult to diagnose, treat

http://www.postbulletin.com/newsmana...?z=10&a=356786

**wolfaleena** · 08-21-2008, 10:28 AM

Thanks Jill ... Mayo Clinic had a decent article.
Does anyone know of any IC specialists at the Mayo Clinic?

**Jeff** · 08-21-2008, 01:29 PM

You can possibly diagnose pelvic pain with thermal camera imaging:

http://thermalbodyscan.com/DITI.aspx

**snowgirl** · 08-21-2008, 01:40 PM

Is this what a PET scan is or different? Vicky

**Jeff** · 08-21-2008, 06:30 PM

Perhaps i should have post this in another forum.If so,you can move it if you want.

Vicky,i'm not sure but i've been told there is thermal camera.
Some pain clinic have them apparently.You could be rigth tho,other scans might do thermal imaging.I just think it's a very neat diagnosis test.

**noble1** · 08-25-2008, 12:38 PM

Wow!! I wonder what my body looks like with the fibro I have, the endo and now possibly the IC! Hmmm...wish I owned a machine like that so I could take a peak!

**Miss Who** · 08-28-2008, 11:14 AM

Jill,
I was reading your post about the Mayo Clinic because my co-workers have seen me struggling with IC (really bad flare for over 1 year) and I am on FMLA and they keep telling me I need to find a doctor who knows more, but my doctor is Raymond Bologna and I know that he is good doctor and up on IC, but they insist that I should go to the Mayo Clinic because they can find a cure.
I am to the point that I have to do something, to get myself under control because I am rarely able to work, and our budget is shot and if I don't get back to work regularly we won't be able to keep up on our house mortgage.
I asked the PA today about disability and she said she doesn't think I would qualify.
Anyway, I noticed that you listed on your post that you have gastroparesis and I found out about 4 years ago that I have it as well.
do you hear of this in IC patients?
In 2002 I had the interstim implanted and it helped with everything, pain, frequency and urgency for about 5 years. but since last July I have been in pain constantly. I have a pain block (injection) scheduled next Thursday and I am hoping something can help.
I know that I CAN NOT go on this way for much longer.
Any suggestions??? anyone??

**Vicki** · 09-01-2008, 02:08 PM

I have been to mayo three times at the insisting of my parents. I never got any results from them. They tried several things and told me to get an interstim. I never got one and I am doing okay without it. They are great with some things but I got no results with my bladder.

**Arizonian** · 09-06-2008, 11:31 AM

I volunteer at The Mayo Clinic in Scottsdale, AZ and also, this spring, consulted with one of their urologists on my I.C. I have had I.C. for 5.5 years, have had no success with any drug or treatment including Interstim and the Restore Ultra neuromodulator. I am having the latter removed in 2 weeks.
I've been in a IC flare for the 5.5 years. This urologist told me that there was nothing he could do for me, nor could any other urologist at the Clinic. Dr. Novicki, who used to work at The Clinic and was familiar with I.C., retired about a year ago. If you were thinking of traveling to Scottsdale, I would advise against it. Perhaps the Rochester campus has a specialist but I have no way of knowing.