Thread: IC and Anxiety Connection ???
08-17-2008, 03:54 AM #1
- Join Date
- Aug 2008
IC and Anxiety Connection ???
Ive doing a lot of research on IC, and Im starting to wonder if there is a connection between IC, or painful bladder and anxiety and depression ??
Is there anyone who has anxiety, depression or high stress levels when they developed IC ?? Im just curious to see if theres a connection..
08-17-2008, 05:15 AM #2
I've had anxiety & stress issues from about the age of 10 on.... Depression in my twenties. IC at age 35 to present. My mom has had anxiety & stress for most of her life & she has IC also.
Some researchers have speculated that anxiety, panic attacks are on the same gene as the vulnerability to IC.Kadi
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
This week's favorite one-liner:
"Just remember, if the world didn't suck, we'd all fall off. ~Author Unknown
New second favorite:
Please, Lord, let me prove that winning the lottery won't spoil me.
Adding a third because I'm just so darn easily amused...
"Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup.
- Bruce Graham"
-Elavil 30mg at night
-Ditropan 5mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills every morning and night
-Pyridium if needed, usually once a week or so
-1 Vicodin at bedtime,
-Flexeril 10mg at bedtime
-Dye Free Benadryl for allergies occasionally
-Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
-Fur therapy: Hugging the cat!
08-17-2008, 05:39 AM #3
I bet you'd like this article from here at the ICN, Tatianne:
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
08-17-2008, 07:15 AM #4
I was Dx with IC right after a very stressful time in my life. So I do believe there is some sort of connection.Hugs
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
Diet Reference Sheet:
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
08-17-2008, 08:32 AM #5
- Join Date
- Aug 2008
I was just going thro a very stressful time myself and I am diagnosed with a anxiety disorder...i had intercourse two days before this started with an ex that i had just ended the relationship with..it caused a stir of great emotions inside of me and then 24 hours later the symptoms hit me of UTI along with cycles of anxiety attacks..Im not saying that its in our heads, Im thinking it might be our bodies physical reaction to over load of stress, as stress can do with so many things in our bodies.
Thanks for sharing...I really feel for myself I need to get a hold of the mind things that are causing the physical symptoms in my body.
Thanks again girls, love this site !
08-17-2008, 08:47 AM #6
- Join Date
- Feb 2007
- I live in Chicago IL
I have to say that I developed the IC first and then the depression and anxiety followed.
08-17-2008, 08:53 AM #7
- Join Date
- Jun 2006
- Omaha, NE
I've never felt depressed in my life...until I got IC 3 yrs ago. Now when I flare, I find it hard to be optimistic.
08-17-2008, 11:34 AM #8
I have battled depression more than once. I think it for me comes when I have alot to do and can't feel like I can get it all done.esophagus spasams
dyastalic disfuntion with stiffness of right heart valve
lymphedema of left leg and ankle
Pelvic Floor Disorder-having pelvic Physical Therapy
breast cancer 5 yrs remission
swollowing difficulties have throat stretched
Lots of medications more than 20 rx's
Lots of doctors
08-17-2008, 11:59 AM #9
I don't know if I was clinically depressed as I was never evaluated by a psychiatrist and never took any depression medication, but I did go through a series of devastating family events over a 3-year period immediately before I was diagnosed and I also started a business, which was very stressful, in the same month as when my IC symptoms became continuous. Every time I stress out about something, I get a flare. For me, this disease definitely appears to be stress-related.Let's help move IC research along! Do you flare when taking a prescription or non-prescription drug that may be unrelated to IC? Suspect a link between how your IC started and the medications you were taking at the time? The FDA wants to know about this so that they can investigate any possible links and make medications safer. Report IC to the FDA as a possible side effect: https://www.accessdata.fda.gov/scrip...tch-online.htm
I am on the path toward remission!
Had symptoms since 11/2007
Diagnosed with Ulcerative IC on 8/6/2008 (age 25) via an office cytoscopy
Urgency, Discomfort, Nocturia, 2 Hunner's ulcers visible without bladder distention, Occasional pinching pain that goes away quickly
My flare triggers:
Fermented foods and stress
IC supplements and lifestyle adjustments:
IC diet w/addl restrictions (high protein, low yeast/no fruit, low histamine)
Oil pulling with coconut oil
Candida cleanse with a Solaray product and diet
Sea buckthorn oil - 1 tbsp daily - this product helps heal wounds faster
Magnesium - helps the body produce hyaluronic acid, which is responsible for connective tissue health
Flax seed oil
Organic Manuka Honey - 2 tsp daily - heals wounds and has anti-bacterial properties
Melatonin as a sleep aid for evening flares
Stress management & positive affirmations
Cardio workouts 2-4x weekly
Food, exercise, medication and sleep pattern diary to identify flare triggers
Other things I tried:
Elmiron - took it for a month without side effects but decided to try natural treatments first
Elavil - drowsiness & heart palpitations
Urine pH testing - mine was in the range of 5.5 to 6.25; did not see any correlation w/flares
IgG Allergy testing by Immuno Labs - found food sensitivities
On my to-do list:
Get tested for vitamin/mineral defficiencies
Try passionflower extract for stress management
08-17-2008, 03:42 PM #10
My first ever twinge of IC pain came on suddenly during my great grandmother's funeral. I don't think it's any coincidence.Symptoms: Increased pain with activity (especially lower leg work and bending over); stabbing urethral pain, menstrual cramp pain, cannot wear tight pants, feel worse during spring/summer allergy season. The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC
First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007
IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation
Treatments for my IC/PFD:
Elmiron 400 mg per day; Physical Therapy for PFD; Zyrtec; Singulair
Ice packs and laying down
Tried and Failed: Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches, Cystoprotek (only tried a couple months but didn't seem to do much)
Other Diagnoses: PFD diagnosed 9/09; Fibromyalgia
Gastroparesis (delayed gastric emptying) Anxiety
Other medications: Ambien, Zegerid, Ativan, Zyrtec
MOMMY SINCE 10/28/08
EXPECTING BABY BOY 6/30/11
08-17-2008, 03:57 PM #11
- Join Date
- Jul 2008
- Costa Mesa, CA
Wow, I have always thought that IC was stress related and now after reading all the replies to this thread,know that their is a connection.Was dx after my whole family passed away in 3 years and had abad breakup.Boyfriend feels very regretfull and responsible for my dx.Women are such stress conducter's!!!!!!
Thanks for all of the info,I too love this site!!!
08-17-2008, 06:45 PM #12
- Join Date
- Dec 2004
I have 2 very good friends I talk to regularly who I "met" here on the ICN. All of us have had the worst flares we have ever had as a direct result of stressful events in our lives at the time. (I am not talking about a day or even week long flare. I am talking about flares that were so bad that they were serious enough to require ER treatment or even hospitalization.
One friend went thru an extreme period of stress when she lost her job b/c she was fired when she had to miss alot of work b/c of IC. She got an attorney, the ADA, and her union involved and they were forced to take her back, but then made her life at work pure you know what! This resulted in her having to be hospitalized for retention where her pelvic muscles just locked up from the stress of it all! (She ended up leaviing there and getting a job elsewhere b/c the stress was tearing up her bladder and body so badly. She is now back in remission.)
Another one was going thru major marital problems with the prospect of divorce, losing her home, and kids b/c her ex was slandering her. She also had her pelvic floor lock up resulting in retention related to the stress. (She was in remission prior to that). However, after the retention episode, it jumped started her IC symptoms again and they came back with a vengence. Her symptoms were much worse than they had ever been. She was even vomiting and lost an extreme amount of weight due to the stress and not being able to eat hardly anything. (They ended up working things out, and once that stress was removed, her IC was managable again on her normal "maintenace" levels of meds. However, during that time, her Dr had to add many other meds and increase the levels of her other ones, yet nothing seemed to help until the stress was removed.)
Lastly, I have also noticed a distinct correlation between my symptoms and stress level. When things are okay, my IC is managable with my 24 hour pain med and a minimal amount of breakthru meds. However, during periods of extreme stress, I have to go back on rescue instills, anti-anxiety meds, sleeping meds, anti-depressants, and numerous IC meds. I have also had boughts of retention during extremely situations and also have to take the max amount of my breakthru meds during those times to get my pain level under control. During those times, I have also been much more likely to get UTIs and other infections, and my SED rates have also always been high. I firmly believe that stress sets off the inflamatory process. Stress has been linked to high cortisol levels and they have been linked to inflammation.
So, yeah, I DEFINATELY believe that stress can affect our bodies in more ways than we will probobly ever understand! BTW, this is a great topic for a thread! It was interesting to read all the replies and the way it has effected IC in others.
08-18-2008, 05:08 AM #13
- Join Date
- Feb 2007
- I live in Chicago IL
I believe no doubt that stress can worsen your IC and cause a flare, that is for sure, but I honestly do not think it causes it. If that were the case, everyone would be walking around with this disease, or at least more than what there is.
08-19-2008, 09:02 AM #14
Speaking for myself IC has an emotional impact on one's life:
1. it affects our sleep
2. eating habit have to change
3. Losses: can't do the things you did before, finding new ways to do things.
4. People around you don't understand your illness.
5. Learning to accept oneself again as changes are made.
For me I believe stress and anxiety came when IC made a big impact on my life. The roller coaster of it all, but you can learn and make it alittle easier.
08-19-2008, 10:31 AM #15
I tend to believe that stress and anxiety can certainly be one of the denominators in what started my IC, but I have always believed and it my body has proven to me that stress and anxiety do impact my body in many different ways.
While growing up, I had plenty of times that I was stressed and my Ezcema would flare or I would end up with a migraine. I took on alot as a kid when I was growing up. I learned at a very early age that being unhappy or dwelling on things that made me sad was when I always found it harder to deal with things. I don't believe that my IC was "caused" by anxiety or stress, but again, I really don't know what started it since I never had any bladder issues prior to the onset of my symptoms. I just know when I first recognized the onset of my symptoms, I was in the middle of a long road trip with 3 carloads of people when my IC symtpoms started. I don't know that I was "stressed" but I had a MIL that thought I wasn't able to tend to my own two sons since she was always making certain I knew which car they were in. I guess she didn't notice that I hadn't lost my kids yet or that I always made sure where they were before the caravan took off to the next destination. It wasn't in a "nice" way either the way she dealt with me or my SIL who was almost 10 years my senior! Now my SIL has major chrnoic migraines and Lupus! We went through that routine at each and every "pitstop".
My body can definitely tell when I am having anxiety issues or things are getting to be too much for me before I even recognize it as happening. Expecially now that I have most of my symtpoms under control, I have learned different techniques to help myself calm down. Sometimes, I still get out of control and set off a trigger, but for the most part now, I either turn on a funny movie I have seen a hundred times, spend time with my hubby (unless he is my source of stress LOL) or just take my dogs out in the backyard or for a walk. I also call up a friend to chat that I know will calm me down.
Last edited by Claredale; 08-19-2008 at 10:45 AM.
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