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Thread: Leaving for the Beach
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08-03-2008, 04:34 PM #1ICN Member
- Join Date
- Jul 2007
- Location
- Almost Heaven West Virginia
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- 1,074
Leaving for the Beach
Well, I am heading out tomorrow at 8:30AM for Ocean City MD. While excited, I am already exhausted. All of the packing and planning wore me out. I have tried to make sure we have enough snacks, toys, movies and entertainment for a 4 and 5 year old for the 6 hour car ride. My shopping buggy at Wal Mart appeared as if we were leaving for a month. I had to get stuff for the trip as well as enough food to feed dear hubby while we are gone. He is a big eater for such a tiny guy. As we all know, it isn't as if he could go shopping for himself now could he? Then put in cleaning out the car top to bottom, front to back, the windows, changing the oil, checking the tires, man I am ready fall over. This is my first "far away trip" since IC so I am hoping it behaves, it has been as of late. I am not banking on that though and have my emergency kit ready. I also packed a small one for the car/beach so I don't have to carry everything from the hotel. A bag with my pain meds, Pyridium, tylenol, therma care wrap, Valium, and Xanax. Just a one day supply of each though to carry to the beach with me. The rest of the stuff I will leave at the hotel. I haven't decided as to wether or not I should use the hotel safe for my meds. Seems like a hassle but I'd be SOL if someone broke into our room. Anyone have a view on that? Well, I am going to go feed my growling belly, been so busy I haven't ate yet. I will probably check back one time before I leave. I will post a link to some pics when I get back. We were planning on Monday as our return day but mom got called into a mandatory meeting Friday so we will be returning Thursday. I think 4 days with 2 girls whom fight over air will be enough.LOL
With Lots of Love and Wishes for Pain Free Days~Heather
~I was diagnosed with Interstitial Cystitis at the age of 23, 4 months after getting married. I also have severe Endometriosis, Adhesion Disease and Pelvic Floor Dysfunction. All of which were diagnosed AFTER being diagnosed with IC. Before IC my only health issues were a history of migraines since I was a child and a battle with cervical dysplasia. I had a LEEP in 2007 and have been clear of the cancerous cells since.~
~Please feel free to PM me if you have any questions, concerns or comments. Or if you just need a friend, someone to listen. I am almost always lurking around online somewhere. LOL~
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08-03-2008, 04:58 PM #2ICN Member
- Join Date
- Dec 2004
- Posts
- 1,064
Have a great time! I am so jealous! I love the beach and cant wait to go again. Hope your bladder behaves for you so you can have a great time!
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08-03-2008, 05:16 PM #3ICN Member
- Join Date
- Feb 2007
- Location
- Wisconsin
- Posts
- 1,707
I hope you have a great vacation!!
Current diagnosis
Severe IC, Severe Endometriosis(keeps growing back all over despite surgeries and treatment), Chronic ovarian cysts, Chronic Pelvic Pain Syndrome,Fibromyalgia,Inguinal hernia, bursititis of the hip, Migraines, IBS, Celiac disease, CROHN'S Disease, Chronic Constipation, Chronic anal fissures, Vulvodynia, Pelvic Floor Dysfunction, Pirisformis muscle spasms,vulvar vestibulitis, chronic insomnia, Burning Mouth Syndrome, Brain TUMOR, Chronic Lyme Disease,Temporomandibular Joint Disorder,Degenerative disc disease,Arthritis.
Allergies: Elmiron, Levaquin, Sulfa-Anaphylactic shock,Morphine, Doxyclycline,Cipro
Treatments I have tried:Bladder instillations, Oral meds-Elmiron, Elavil (amitryptyline), Hydroxyzine (Vistaril & Atarax), Ditropan, Levsin, Urispas, Urised, Pyridium, Cystoprotek, Desert HarvestAloe,antibiotics,Ultram,Neurontin,Valium,Tramadol,Lunesta,Ketor olac,Cipro,Meloxicam,Dilaudid,Morphine,Vicoden,Darvocet,oxycontin,Lyri ca,Cymbalta,Nortriptyline,Enblex,Baclofen,Clonidine,oxybutynin,Detrol, Nitroglycerine ,Vesicare,Sanctura(there are more but this is enough
)
Physcial Therapy, Cystoscopy with Hydrodistentions, Numerous Nerve Blocks, Neuromodulation-including Sacral neuromodulation(Interstim) and post-tibial nerve stimulation (Urgent PC-12week), Botox, bladder instills, physical therapy, natural(herbs)Current meds: Long list..just email if you are interested
Interstim implants--8 plus surgeries for them.
I am selling IC awareness bracelets, keychains, pens and pins..if interested please email me! ThanksFeel free to email me at mlzippy7@yahoo.com.
One day at a time
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08-03-2008, 05:19 PM #4ICN Member
- Join Date
- Apr 2008
- Location
- Boothwyn , PA
- Posts
- 713
Lol ! 2 girls that fight over air ? Are you sure your not taking my kids ? I hope you have a wonderful time !! Wishing your bladder behaves as well
Oh and yes I would put your meds in the hotel safe , you never know and God forbid they get stolen and you wind up stranded !!!
Lauren
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08-03-2008, 05:21 PM #5ICN Member
- Join Date
- Sep 2004
- Location
- east coast, USA
- Posts
- 4,208
Have a safe, and fun trip!
Diana
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08-03-2008, 05:36 PM #6Support Volunteer
- Join Date
- Nov 2006
- Location
- Louisiana
- Posts
- 8,892
Hope you have a safe and fun trip.. Take care and stay safe!!
Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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08-04-2008, 12:38 AM #7ICN Member
- Join Date
- Jul 2007
- Location
- Almost Heaven West Virginia
- Posts
- 1,074
Thanks everyone. I finally crashed around 2am so now I am trying to get my butt moving. I will miss you all and will post as soon as I get back.
With Lots of Love and Wishes for Pain Free Days~Heather
~I was diagnosed with Interstitial Cystitis at the age of 23, 4 months after getting married. I also have severe Endometriosis, Adhesion Disease and Pelvic Floor Dysfunction. All of which were diagnosed AFTER being diagnosed with IC. Before IC my only health issues were a history of migraines since I was a child and a battle with cervical dysplasia. I had a LEEP in 2007 and have been clear of the cancerous cells since.~
~Please feel free to PM me if you have any questions, concerns or comments. Or if you just need a friend, someone to listen. I am almost always lurking around online somewhere. LOL~
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