Thread: Beyond fed up
07-16-2008, 03:24 PM #1
Beyond fed up
Again I have several ovarian cysts going on at the same time , simple and hemmoragic . Last week my gyn's office sent me to the ER because of the pain , of course they found cysts . SO I go back to my gyn today because Im still in pain ( level 10 , and Im afraid to stand up or have to walk around ) Also I feel nauseous , run down , my breasts are ridiculously sore ( side affect from the cysts screwing up my horomones , Im def not pregnant or menstrating ) . I tell him all this and he tells me " well thats all normal , and your fine " I dont feel fine ! Ive been on 6 different birth control trying to stop these , at least that the docs say BC is supposed to do . Ive had them for 8 years now ( not the same cysts ) I get them all the time and Im tired of dealing w it ! I asked him whatelse can I do to help stop these from forming ? He says nothing just BC , well obviously its not working and I tell him I want my ovary removed , he looked at me like I had 3 heads , and tells me "thats ridiculous , all women get cysts , theres no need for that " well when I wind up in the ER every couple weeks because a one or two of them decide to burst , I dont think its ridiculous (record number of 3 cysts bursting at the same time ). UGH I REALLY DISLIKE DOCTORS !! I currently have a simple cyst that is the size of my ovary , on my left ovary and a hemoragic cyst thats 3/4 the size of my ovary on the right ... gee cant wait for those to burst and for me to be sick as a dog !! Sorry for the rant but Im beyond ticked off right now !! Why cant doctors just AT THE LEAST listen to what their patients have to say or ask without being crappy about it ? Or show some simple compassion ? Im so sick of being told "well why dont we try this birth control now" UM BECAUSE THE LAST 6 DIDNT WORK Now my horomones are screwed up from them and I feel horrible , Im so moody and I hate feeling like this !! Im not "fine " and yes the cysts will resolve on their own (some of them take months ), but then as soon as they burst , 2 or 3 more will be right back in a matter of weeks ... Any suggestions ? Because Im seriously over this and doctors in general
07-16-2008, 04:13 PM #2
I am so sorry to hear your pain! I have lots of issues with cysts as well. I know the pain of them bursting....not fun!!!!
I hope you and your dr can figure out what is best for you!
Hang in there and take care!!Current diagnosis
Severe IC, Severe Endometriosis(keeps growing back all over despite surgeries and treatment), Chronic ovarian cysts, Chronic Pelvic Pain Syndrome,Fibromyalgia,Inguinal hernia, bursititis of the hip, Migraines, IBS, Celiac disease, CROHN'S Disease, Chronic Constipation, Chronic anal fissures, Vulvodynia, Pelvic Floor Dysfunction, Pirisformis muscle spasms,vulvar vestibulitis, chronic insomnia, Burning Mouth Syndrome, Brain TUMOR, Chronic Lyme Disease,Temporomandibular Joint Disorder,Degenerative disc disease,Arthritis.
Allergies: Elmiron, Levaquin, Sulfa-Anaphylactic shock,Morphine, Doxyclycline,Cipro
Treatments I have tried:Bladder instillations, Oral meds-Elmiron, Elavil (amitryptyline), Hydroxyzine (Vistaril & Atarax), Ditropan, Levsin, Urispas, Urised, Pyridium, Cystoprotek, Desert HarvestAloe,antibiotics,Ultram,Neurontin,Valium,Tramadol,Lunesta,Ketor olac,Cipro,Meloxicam,Dilaudid,Morphine,Vicoden,Darvocet,oxycontin,Lyri ca,Cymbalta,Nortriptyline,Enblex,Baclofen,Clonidine,oxybutynin,Detrol, Nitroglycerine ,Vesicare,Sanctura(there are more but this is enough)
Physcial Therapy, Cystoscopy with Hydrodistentions, Numerous Nerve Blocks, Neuromodulation-including Sacral neuromodulation(Interstim) and post-tibial nerve stimulation (Urgent PC-12week), Botox, bladder instills, physical therapy, natural(herbs)Current meds: Long list..just email if you are interested
Interstim implants--8 plus surgeries for them.
I am selling IC awareness bracelets, keychains, pens and pins..if interested please email me! ThanksFeel free to email me at firstname.lastname@example.org.
One day at a time
07-16-2008, 04:31 PM #3
- Join Date
- Jan 2005
I think you need to keep looking for a doctor that understands. I went through something very similar, I think I have told you before, and I know how hurt I was and how tired I got of being brushed off. I don't think they would be acting the same way if they were in the kind of pain we have every single moment of every single day.
I actually had an ob/gyn come in while I was laying in recovery after the surgery he did on me and clap my husband on the shoulder and say "Dude its mental, not physical!"!!!!! And this was the head ob/gyn at Kaiser! He then refused to give me pain meds after a SURGERY b/c he thought I was doing it all for meds! I refused to even go back to him for follow up on my surgery. I went to another ob/gyn and she was my "doctor right" who believed me, cared about me, wanted to help me. I will never forget that first appt with her, she hugged me and told me she wouldn't give up until she found out what was wrong with me. My husband and I both cried in the appt. She and I still keep in touch
Anyway, I decided after that day that I would fire any doctor who did not take me seriously, who did not respond to my concerns and especially any doctor who talked down to me! And i have. I have fired several doctors. They work for me, I pay them an insane amount of money and I wont do it for nothing.
Hang in there sweetie, I know how hard this is. We are always here to listen too. You deserve so much better care than this and it IS out there! I promise. Sometimes we have to look WAY longer than we should but it is so worth it.
love sarahCurrent meds; , effexor 37.5 mg 2 times a day, and lyrica 100 mg 3 times a day, lots of reading and snuggling with the pets!
07-16-2008, 07:35 PM #4
07-17-2008, 02:19 AM #5
I think a second opinion is a good idea for you.
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
07-17-2008, 11:50 AM #6
Love , Lauren
07-18-2008, 04:44 AM #7
- Join Date
- Oct 2000
- potomac,md. usa
It has been a long time since a post moved me the way yours did! Unfortunately what you say is probably true. What gives doctors or anyone for that matter the right to judge someone? The old saying "walk a mile in someone else's shoes" should be applied here! We have all been to doc's that are the pits--I had one jerk actually call me "the oxycontin Lady" as he yelled it through his office! But to have to worry on top of it all that you are being judged is wrong and clearly unfair! I wish with all my heart I could change it for you! Just know thay everyone here is on your side! Take care--Ginny
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