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  1. #1
    ICN Member
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    Can swimming in a chlorine pool cause a flare?

    I wondered if any of you have experienced a flare from swimming in a pool in which chlorine is used? Does anyone have any experiece with "Baquacil" or "E Z Pool" pool chemicals. I have a great little pool but have had flare problems and wonder if this is the problem.

    Susan

  2. #2
    ICN Member
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    Dec 2004
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    Yes, both my IC and VV have flared from swimming in pools with chlorine. I believe ICNDonna knows of some non-chlorine treatments that she can tolerate.
    Salt water I am ok with.
    Symptoms started Nov 2003.
    Diagnosed Nov 2004.
    In remission since Aug 2009.

    Favorite quote: "Moderation kills." ~ Dr Caldwell Esselstyn, Jr.


  3. #3
    ICN Member Claredale's Avatar
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    I have a pool and I never noticed it causing flares when we first started using it with regular chlorine, but my symtoms were not as bad, plus my idea of swimming was lying on the float or just taking a dip to cool off. My kids eyes got so red due to the chlorine that we tried the Baquacil several years ago but since we live in the south and have so many long hot days then it will rain several inches over a couple days that it was practically impossible to keep the system right. I felt like I was constantly writing checks to get the chemicals right. The next year our pool store suggested the Nature II cartridge which doesn't use as much chlorine. We thought we were change over to the salt water system this year, but our pump is still hanging in there. I have a few friends that already use the salt water system and it is great. Somehow it changes to chlorine, but much lighter. I have no idea how it works even though hubby has explained numerous times. All I know is that the water is so soft and feels so good on your skin.

    To answer your question, I think I got a UTI from swimming in the hotel pool a couple weeks ago. I had only had one UTI in my life and that was years ago after I was diagnosed with IC. Since I was in pain 24/7, I didn't notice the difference until the nurse told me I had an infection. Since I haven't been in that kind of pain in a long time, I got a little taste of IC pain again! And it wasn't fun. Things are back to normal now.

    T83

  4. #4
    Forum Manager ICNDonna's Avatar
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    I cannot swim in a pool treated with clorine.

    Donna
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    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  5. #5
    ICN Member lissad's Avatar
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    I have gotten UTI's and vaginal infections from swimming pools . It is rare but it can happen .

  6. #6
    ICN Member
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    not only can I not swim in a chlorinated pool, but my vaginal area swells from it.. my clitoris and labia.. no idea why.. my kids don't seem to understand.. and my son was so upset the other day.. he said he hates my bladder
    Healing thoughts

    Bea

  7. #7
    Support Volunteer leelee88's Avatar
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    I cannot swim in pools with chlorine, we have a pool treated with non chlorine chemicals.. Another tip is if you are in doubt you can smear some vasiline on down there to coat that area so the chlorine cannot aggravate it..
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  8. #8
    ICN Member
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    About the Chlorine in pools and flares

    Thank you for all the answers about the pool. My physical therapist for pelvic floor dysfunction told me she had been told that we could try lightly rubbing almond oil or olive oil over the outer genital area. Somewhat akin to the vasoline someone suggested. If IC Donna or anyone else could name the alternatives for chemical in pools...I'd appreciate further suggestions. We are trying to figure out the best way to go with this issue. It seems the salt idea is good but just too expensive at this time for us.
    Thanks,
    Susan

  9. #9
    Support Volunteer leelee88's Avatar
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    I believe Donna uses Bacquicil, we use PristineBlue..I Pmed you the link..
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  10. #10
    Forum Manager ICNDonna's Avatar
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    We use Baquacil --- I should say that we use a generic for it --- the one we use is Revacil. It's totally odorless and works very well. If you're switching from clorine to baquacil, there are some steps you need to take, but the pool supply folks should be able to advise you.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
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    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  11. #11
    ICN Member
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    east
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    YES! I was in remission for years (I am talking from 1999 to 2007) and then when IC returned (hormones? stress of other illness?) I had an awful flare from swimming. As soon as I got in the pool it burrrrrrrrrrnnnnnnneeeedd. Check Jill's story - she had a pool reaction too. I only swim in clean lakes and ponds (if at all).

  12. #12
    ICN Member
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    My bladder and vagina react to chlorine and salt water. When I swam in salt water I was staying with family and would immediately jump in the tub with warm water. If I couldn't get to a tub I spray LaRochePosay or Perrier water from an aerosol can. I use it on my face because sometimes my skin reacts to tap water. I buy it at CVS.

  13. #13
    Support Leader Julie B's Avatar
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    I don't have a problem in ocean water or clean lake water. I avoid pools, however. It is a shame, I like to swim so much, but I don't want to buy my own pool just to use a safe chemical.

    Looking forward to camping next week! I hope Lake Michigan is warm and clean!
    Julie Beyer, MA, RDN
    IC Dietitian, Patient Advocate, Speaker, & Author


    Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

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    You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

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  14. #14
    Forum Manager ICNDonna's Avatar
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    I remember swimming in Lake Michigan. As I recall it was very cold, but I was young then.


    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  15. #15
    ICN Member
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    I've been doing swimteam for almost 20 years and have been swimming in many pools since I was 9. No flares. The same with an ocean (I swim in that often, practically daily) and a lake, etc. Nothing from swimming worsens it either. My pain is 24/7, so I just make do with it and keep going the best I can.

    As far as vaginal infections and swimming pools like with I read below, it helps to not wear a wet swimsuit for a long period of time. I have been careful and have only had 2 my whole life.

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