Thread: Prayers for my dad
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05-16-2008, 03:05 AM #1
Prayers for my dad
Hi everyone. As alot of you know my dad has cancer, he is ongoing chemo and radiation and he became very sick and weak, they had to stop the treatments for a few weeks. He developed a blood clot in his arm and was hospitalized again but they did not keep him long because his immune system is so impaired from chemo right now. He does not eat for days at a time and he lost so much weight. He is responding to treatment as far as the tumors are becoming smaller, but he does have a new one that developed in his lung that was not there before. All he does is cry and sleep. He is seeing a new oncologist next week just for another opinion as to his treatment plan. I just wanted to ask for some prayers for him and my mom. Thank you all so much. Lisa
Lisa
Current meds:Elavil, Lortab as needed, Vivelle dot hormone patch 0.1mg, estrace cream, lidocaine ointment, pepcid
Diagnosis: IC in 1999 , IBS, Pelvic floor dysfunction, vulvodynia, vestibulitis, chronic low back pain, scoliosis, hunners ulcers on bladder, hysterectomy 2/08, fibro 3/08, sciataca
Me and my girls, my son, me and my wonderful fiance, and our puppy Miley (who loves to cuddle).

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05-16-2008, 03:29 AM #2

Hi Lisa, my thoughts and prayers are with you and your family. Stay strong and think Positive!!!

Colette (c2miracle)
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05-16-2008, 03:34 AM #3ICN Member
- Join Date
- Mar 2007
- Location
- in the bathroom
- Posts
- 465
prayers on their way



JJ
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05-16-2008, 03:36 AM #4
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.

If not there, then here

Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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05-16-2008, 03:41 AM #5

I hope things get better with him..
NinaMeds on now:
dextro 10mg
5000mg Vitamin D- when tested, I was sooo low.
Compound Hormones- Had hysterectomy when 24, ovaries out 37
At night:
4mg Zanaflex- Fibro & PFD
plendil- Raynalds
I have Fibro, IC, IBS, PFD, Raynauds.
Tried:
Past Meds
Lexpro- changed to Cymbalta for better pain relief –off both
Ultram – three times a day. Helped , I was tired of always being so tired.
Elmiron-took for a year-
Topamax-Did not need anymore since on dextro.
Atarax- did not need anymore
Pictures: Hubby & Me, Ozzy, My three Sons!!
What a proud Mother I am!!
.



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05-16-2008, 03:47 AM #6
's to you and your entire family during this time...
hugs,
Brittany
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05-16-2008, 04:54 AM #7ICN Member
- Join Date
- Jul 2007
- Posts
- 1,019
I will keep you all in my thoughts and prayers.
Daily Meds:
IC-Meds
Ditropan XL 5 BID, Elavil 50 QD, Elmiron 200 BID, Hydroxine 50 BID. As Needed: Bacofen 20, Prosed DS, Hydrocodone/Apap.
Other Meds
Adderal 10 QD, Remmeron 37 QD (I take 1 1/2 of 25 mg)
With the help of my doctor moving my meds around a bit by increasing this and decreasing that I have found a good combination of meds (for now and I pray a long time from now).
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05-16-2008, 05:33 AM #8
Lisa I am SO sorry hun.. ((((((((((hugs)))))))))))

Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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05-16-2008, 05:38 AM #9
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05-16-2008, 08:45 AM #10ICN Member
- Join Date
- Feb 2008
- Location
- Long Island,New York
- Posts
- 240
I'm so sorry about your dad I will keep you and your family in my prayers
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05-16-2008, 09:07 AM #11




Hugs,
Tracey
How do you eat an elephant? One bite at a time...
Harry arrived 2/23/09!

*IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
IC Diet Cheat Sheet:
http://www.ic-network.com/diet/2009icdietlist.pdf
Dx's:
IC dx'd Nov 2004
Lymphocytic Colitis dx'd July 2005
Possible IBS
Current IC Meds
Vistaril 25mg in the evening
Previous IC Meds taken:
Cystoprotek - 2 caps 2x's a day
Elmiron, 100mg 3x's a day
Ditropan, 5 mg 3x's a day
Others:
Wellbutrin 150mg 2x's a day for Anxiety/IBS
Pepcid 40mg a day for GERD
Zytrec for Nasal Allergies
Align Probiotic daily for IBS
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05-16-2008, 12:10 PM #12
Lisa
I am so sorry that your father is going through this and your entire family. Will include you in my prayers and that your father gets some relief. I hope he is not in pain physically . I can see that he is in pain emotionally I hope his md's are helping him with some kind of anti anxiety medication. Vicky

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05-16-2008, 12:20 PM #13
for you and your family!!
Current diagnosis
Severe IC, Severe Endometriosis(keeps growing back all over despite surgeries and treatment), Chronic ovarian cysts, Chronic Pelvic Pain Syndrome,Fibromyalgia,Inguinal hernia, bursititis of the hip, Migraines, IBS, Celiac disease, CROHN'S Disease, Chronic Constipation, Chronic anal fissures, Vulvodynia, Pelvic Floor Dysfunction, Pirisformis muscle spasms,vulvar vestibulitis, chronic insomnia, Burning Mouth Syndrome, Brain TUMOR, Chronic Lyme Disease,Temporomandibular Joint Disorder,Degenerative disc disease,Arthritis.
Allergies: Elmiron, Levaquin, Sulfa-Anaphylactic shock,Morphine, Doxyclycline,Cipro
Treatments I have tried:Bladder instillations, Oral meds-Elmiron, Elavil (amitryptyline), Hydroxyzine (Vistaril & Atarax), Ditropan, Levsin, Urispas, Urised, Pyridium, Cystoprotek, Desert HarvestAloe,antibiotics,Ultram,Neurontin,Valium,Tramadol,Lunesta,Ketor olac,Cipro,Meloxicam,Dilaudid,Morphine,Vicoden,Darvocet,oxycontin,Lyri ca,Cymbalta,Nortriptyline,Enblex,Baclofen,Clonidine,oxybutynin,Detrol, Nitroglycerine ,Vesicare,Sanctura(there are more but this is enough
)
Physcial Therapy, Cystoscopy with Hydrodistentions, Numerous Nerve Blocks, Neuromodulation-including Sacral neuromodulation(Interstim) and post-tibial nerve stimulation (Urgent PC-12week), Botox, bladder instills, physical therapy, natural(herbs)Current meds: Long list..just email if you are interested
Interstim implants--8 plus surgeries for them.
I am selling IC awareness bracelets, keychains, pens and pins..if interested please email me! ThanksFeel free to email me at mlzippy7@yahoo.com.
One day at a time
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05-16-2008, 01:16 PM #14

I wish there could be something I could do to help. Please know how very sorry I feel that you and your family are having such an awful time.
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
.....My Meggie.....

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05-16-2008, 05:55 PM #15
Well wishes for your dad.....
Diana
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