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  1. #1
    ICN Member
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    could cleaning products cause flares/pain?

    I often use comet to clean the tub. Now I'm wondering if this could be a problem. I always rinse the tub as much as possible. Which cleaning product(s) would be best to help prevent flares?

  2. #2
    ICN Member GriffsMommy's Avatar
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    I don't think that I've ever had a flare from a cleaning product myself. Are you taking baths in the tub after you clean it with the comet or are you more worried about just handling it in general?
    I would think if you didn't get your hands clean enough and then void then it's possible some of the comet could get down there when you wipe? I can't clean my bathroom or most of my house myself because I can't stand for any real length of time so I am lucky enough to have teenagers that do all of that for me.
    If you're worried about the comet no matter how you think it might be causing you a flare then perhaps you might want to look into getting those green cleaners that are available that are safe for the environment, they should be more safe for your body as well.
    Christine



    I have been diagnoised for 2 1/2 years. I have tried every oral med as well as rescue instills and DMSO.
    1st hydro 4/07 which showed no visible signs of IC but I had tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. I am still feeling the effects of the hydro two weeks later.
    This 2nd hydro proved that because no treatments have helped me that my IC has progressed

    Am being seen by Dr. Hanno's office in Philly

    None of my medicine or treatments are important anymore. One of our best IC sisters Barb has been taken from us too early. She was such a great friend to me, I feel like there is a part of my heart that will always be empty now that she is gone.

    Proud wifey of Shane, mommy of Griffin, and step-mom to Logan, Gage and Miranda
    Also proud new mommy to the best Bullmastiff puppy on earth



  3. #3
    ICN Staff SharonA's Avatar
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    I do want to caution you about something else. Many people say that fumes from chemicals can cause them problems. If you are concerned about this also, try to remember to not close yourself up in a room while using cleaning solutions. If you have to close the door, then open a window.
    Sharon

    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

    Where I can be found most days.

    If not there, then here


    Link to the ICN Patient Handbook:
    http://www.ic-network.com/handbook/

    Link to the IC Diet:
    http://www.ic-network.com/diet/


    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  4. #4
    ICN Member
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    fumes causing flares?

    Quote Originally Posted by SharonA View Post
    I do want to caution you about something else. Many people say that fumes from chemicals can cause them problems. If you are concerned about this also, try to remember to not close yourself up in a room while using cleaning solutions. If you have to close the door, then open a window.
    SharonA,
    So are you saying fumes cause bladder problems? I know fumes cause allergies and breathing problems for me. I do wear gloves if using any cleaning products. I use Comet or Mr. Clean to clean the tub, but I'm concerned now that even with good rinsing of the tub that residue could still get into the bladder. I don't get to take many baths now because of too much pain trying to clean. White vinegar and baking soda are good cleaners. I have tried any of the "green" cleaners yet.

  5. #5
    ICN Member
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    Quote Originally Posted by GriffsMommy View Post
    I don't think that I've ever had a flare from a cleaning product myself. Are you taking baths in the tub after you clean it with the comet or are you more worried about just handling it in general?
    I would think if you didn't get your hands clean enough and then void then it's possible some of the comet could get down there when you wipe? I can't clean my bathroom or most of my house myself because I can't stand for any real length of time so I am lucky enough to have teenagers that do all of that for me.
    If you're worried about the comet no matter how you think it might be causing you a flare then perhaps you might want to look into getting those green cleaners that are available that are safe for the environment, they should be more safe for your body as well.



    Christine,
    I wish I had your teenage daughters here to help. My daughters are grown and I now have three grandchildren (I'm only 48). My husband is good at helping. I'm sure learning a lot from this website. Things I don't think the specialists are even aware of.

    Have you tried any of those green cleaners? I just thought they probably have perfumes or scents added too. I'm am very sensitive to perfumes or any fumes as far as it causing breathing problems and allergies.

  6. #6
    ICN Member
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    Arrow heya

    Yeah i have found they do flare me if not bladder wise(the smell) or my skin down around the urethra gets all irritated.....
    so now i just rinse things in the shower now just to avoid irritation since i either get irritated if its not clean or if its too clean.....
    thats what i find anyway
    i hope your ok
    take it easy
    I am a cat lover----wouldn't be here without em

    been having a bad time so now trying meds to help the situation but its an uphill battle

    One day we will all have relief from pain....i do believe that but it doesn't come fast enough....

  7. #7
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    Chemical odors

    Hi,

    I am convinced that if I am around certain chemicals just inhaling the odor can set off asthma or IC. I've had flares of both from cleaning the house...
    ERRRRR

  8. #8
    ICN Member GriffsMommy's Avatar
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    No, I have never personally used the green cleaners but I know I just saw a commercial that clorax is now making them so maybe take a look at what's in them and see if they would be a better option for you. Yea, having the teenagers does help, two boys and a girl though. They are actually set to do a top to bottom cleaning of the house this weekend since I'm having a hysterectomy next Thursday and want to start with a clean house if we have any chance of them actually keeping it clean when I won't even be able to get up much for the first few weeks.
    Christine



    I have been diagnoised for 2 1/2 years. I have tried every oral med as well as rescue instills and DMSO.
    1st hydro 4/07 which showed no visible signs of IC but I had tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. I am still feeling the effects of the hydro two weeks later.
    This 2nd hydro proved that because no treatments have helped me that my IC has progressed

    Am being seen by Dr. Hanno's office in Philly

    None of my medicine or treatments are important anymore. One of our best IC sisters Barb has been taken from us too early. She was such a great friend to me, I feel like there is a part of my heart that will always be empty now that she is gone.

    Proud wifey of Shane, mommy of Griffin, and step-mom to Logan, Gage and Miranda
    Also proud new mommy to the best Bullmastiff puppy on earth



  9. #9
    ICN Member jen48446's Avatar
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    Cool

    Yes, most products you find in retail stores can cause many, many issues. The manufacturers are improving their products but they're still not as good as they could be.

    You're welcome to PM me to e-mail or call me if you have further questions, I have reference materials on this issue

    Jen
    All in remission since 7/06: IC, IBS-C, arthritis, carpal tunnel, hypoglycemia, RLS, seasonal allergies, sinusitis, depression, anxiety, infertility, hormone imbalance.

    Please don't discontinue any prescription medication without discussing it with your physician first!

    Please read Screaming to be heard by Dr. Elizabeth Vliet.

    I do deep cleansing breathing & relaxation morning & night along with doing Yoga everynight now, it's been a huge blessing for my body!

    Please Don't stop anti depressants or mood stabilizers "cold turkey"!

    http://www.icawareness.com/stories.html

    Jen Meier Cascaddan on Facebook

    Married for 17 years, have 1 cat that I consider my "son"

  10. #10
    ICN Member hdb1982's Avatar
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    I do housekeeping for a living so I have a few ideas on this subject. For tubs I use a mr.clean magic eraser to scrub away the soap scum then take a "green" antibacterial spray and spray it down, let it soak a minute, then rinse. I dont do this myself b/c the cleaning stuff doesn't bother me but I am not sure about the home owners so I do it in the homes I clean. It works very well. I keep a magic eraser in my bathtub and I find if I do a quick wipe down after every other bath/shower I don't have to scrub to hard. If you think the smell is bothering you you can wear a mask. If you don't have an exhaust fan you can get a desk fan and put it in the window facing out to suck out the fumes. I always spray everything down, shut the door, let it soak for about 15 minutes and come back and wipe/rinse everything. It makes it easier because the soaking helps you not need to scrub as hard and I don't have to be in the room the entire time breathing in the fumes. Clorox is making a multi surface andtibacterial spray that does not have a strong odor. I think it comes in orange citrus and lemon. You can use it on toilets, counters, appliances, doors, sinks, tubs, showers. They also have a thing called a scrub buster. It it mechanical and looks like a huge lint roller but instead of sticky tape it has tiny little rubber fingers. It has a round barrel about 4 inches around. Kinda hard to explain how it looks. My mom loves hers. YOu just turn it on and the barrel rotates and the little fingers scrub soap scum and mildew for you. If you are trying to scrub mildew from tile grout you can clean it with something antibacterial then there is something called grout paint/protector you can wipe in the grout tunnel then it wipes clean from the tile. Makes it look brand new and it has some type of chemical in it that eats the underlying mildew. I can't remember the exact name but they have it at lowes. I use a lot of comet and scrubbing bubbles. I have found they are hard on my hands, pledge furniture polish as well. I switched to pledge multi surface, works on wood, plastic, metal, stainless steel, mirrors glass and countertops as well and doesnt bother my hands plus you dont have to carry around so many rags. It really makes me have a lot less cleaning supplies in my car. Sometimes I have to resort to the oldfaithfuls. Softscrub works good on flat top stoves, just a small dab and a little water and spread it on and buff it out. If you have a glass shower make sure you use the squeegie(SP) everytime you get out. If anyone else has any ? about cleaning hit me up, it is my speciality and I have books of "home remedies" for cleaning.
    With Lots of Love and Wishes for Pain Free Days~Heather

    ~I was diagnosed with Interstitial Cystitis at the age of 23, 4 months after getting married. I also have severe Endometriosis, Adhesion Disease and Pelvic Floor Dysfunction. All of which were diagnosed AFTER being diagnosed with IC. Before IC my only health issues were a history of migraines since I was a child and a battle with cervical dysplasia. I had a LEEP in 2007 and have been clear of the cancerous cells since.~

    ~Please feel free to PM me if you have any questions, concerns or comments. Or if you just need a friend, someone to listen. I am almost always lurking around online somewhere. LOL~


  11. #11
    ICN Member
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    If you wet a washcloth and scrub your shower/bath with a little plain shampoo after/during baths a few times a week you never have to scrub!

    I rarely use chemicals because they really bother my allergies. So far, we're surviving

  12. #12
    ICN Member BrittanysDance's Avatar
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    Chemicals do bother me somewhat, but it really depends on how much. Bleach is a KILLER for me and will set me off both bladder and migraines and my youngest has asthma so I really need to be careful what I use to clean. Most "intense" cleaning is done when he is at school and I can open windows.

    I second the shampoo thing for soap scum - also - Lemon Joy Dish soap works TERRIFIC (or Dawn, whatever brand, but it has to be lemon) for busting through soap scum without even really scrubbing with much effort.

    I also found that those Clorox Toilet Wands work GREAT for cleaning the tub! You dont have to bend down at all and WOW do they bust through the grime (and smell pretty good too), not too much bleach in those either. If you start with the tub, you can move to the sink and then finally the toilet by adding Soft Scrub and no more aching back bending down and you only go through ONE Scrubby! :woohoo:

    On days that I dont fully "scrub down" my bathroom and kitchen, I use Clorox Scented Wipes - those things are LIFESAVERS! Especially if you have guests that suddenly stop by and you dont have time to clean your bathroom. Just grab a wipe and go go go! Smells like you just cleaned it and looks great too! Great for the floor too (tile, linoleum, etc) because it disinfects.

  13. #13
    ICN Member
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    I clean my tub with dish washing soap like joy. The builder chipped the tub and had the chip filled certain cleaners turn the chip filler colors. So I need to stay away form anything with bleach in it. I do clean my tub often but the joy works great for me. I have also used the mr clean sponge. It has no sponge and works great on a dirty tub. It did turn my chip filler colors though.
    Daily Meds:

    IC-Meds
    Ditropan XL 5 BID, Elavil 50 QD, Elmiron 200 BID, Hydroxine 50 BID. As Needed: Bacofen 20, Prosed DS, Hydrocodone/Apap.

    Other Meds
    Adderal 10 QD, Remmeron 37 QD (I take 1 1/2 of 25 mg)

    With the help of my doctor moving my meds around a bit by increasing this and decreasing that I have found a good combination of meds (for now and I pray a long time from now).

  14. #14
    LolaDoggie
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    I don't know if they do or not. But, I decided not to chance it. I've changed my cleaning products to the kinds professional janitors use. I get them at the professional supplier. I know they don't irritate my allergies and whatnot. I had noticed IBS flares when I cleaned and that stopped. They do a good job too. It's more money. I'm a cheapskate otherwise, but what can you do? It's worth it to me to not be sick.

    You could try home made cleaners. You could try the "greener" alternative cleaners. I mean...it's worth a try.

  15. #15
    ICN Member Kara29's Avatar
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    Sometimes it's just trial and error. It may be helpful to write down when you get a flare and what chemicals or even foods you ingested that day. A journal is a great thing to help you and your Doctors in trying to figure out a treatment plan for you.

    Kara
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

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