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  1. #1
    ICN Member gigisgirl's Avatar
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    Jun 2006
    Posts
    156

    pelvic pain specialist appt today

    Well it went pretty well. I waited since October to get finally get an appt with this pelvic pain specialist. I wasn't surprised at what he had to say. He said I have some pretty bad PFD including Piriformis Syndrome and Levator Ani Tension Myalgia whatever that means (I need to look it up). God that exam was PAINFUL for sure. He said I need to stay on the neurontin, add a long acting narcotic (which we thought), see a PT and a pain psychologist. He said something intersting that I had never thought of. That part of the reason to see the pain psychologist is b/c with this condition happening after my bad pregnancy, labor and delivery that there might be some kind of things that need to be worked out. Interesting thought I thought. Anyway, so I'm off to my pain mgt appt. so I can tell him that I do a long acting narcotic. I just really hesitate to go on methadone which is one he has talked about or oxycontin. I'll let ya know when I get back what we decide.

    Jill
    IC found on hydro 2/2004, total hysterectomy, rectocele and vaginal wall reconstruction 2/2004.
    I have had previous Heparin instills that worked great.
    8/2007 Pain, urgen/freq returned.
    Since then I have had weeks and weeks of instills,
    PFD diagnosed 02/2008 finally


    IC
    PFD
    IBS
    Anxiety

    MEDS:
    Fentanyl patch, Hydroxyzine, Klonopin, Tizandine, Climara patch

  2. #2
    ICN Member Tracie's Avatar
    Join Date
    Oct 2007
    Location
    Fort Myers, FL
    Posts
    189
    What did they say about the Levator Ani? That muscle is my main problem. I even had Trigger Point Injections there and it hasn't even helped. i believe it made things worse!
    Dx Pelvic Pain Syndrome 10/2007. Cysto/Hydro show Negative for IC

    Current Meds:
    Levbid for urethra spasms (haven't needed this for 2 years)
    Pyridium when needed
    BC pills
    Macrobid for after intercourse (haven't needed this for 2 years)
    tried and stopped Elavil because of side effects
    Ice packs are almost instant relief for my external burning/ and I love MSM gel/hydro cortizone cream
    Trigger Point injections for tender and tight Levatar Ani muscles (did not work)

  3. #3
    ICN Member gigisgirl's Avatar
    Join Date
    Jun 2006
    Posts
    156
    He said that's where he could feel all the spasming. They showed me a picture of the pelvic floor muscles and I have spasming on both sides when he did the exam. He said trigger point injections may help a little but that they mostly help with the muscles in the abd wall and the pelvic floor muscles are deeper and more difficult to do trigger points.
    IC found on hydro 2/2004, total hysterectomy, rectocele and vaginal wall reconstruction 2/2004.
    I have had previous Heparin instills that worked great.
    8/2007 Pain, urgen/freq returned.
    Since then I have had weeks and weeks of instills,
    PFD diagnosed 02/2008 finally


    IC
    PFD
    IBS
    Anxiety

    MEDS:
    Fentanyl patch, Hydroxyzine, Klonopin, Tizandine, Climara patch

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